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Bad experience with ESA, now worried about PIP

Hi
I am a carer for my daughter of 32 years, she has a neurology condition and my anxiety has peaked since what i feel like is a bombardment of prove your daughter is sick.
My daughters condition is incurable and called idiopathic intracranial hypertension, she is in a lot of pain and has an LP shunt controlling spinal fluid to her brain.
We went to one of those ESA assessments and the report came back stating my daughter had back pain and anxiety and the stated that my daughter had a neurology problem and never once named her condition. He even addressed my daughter as a man and said she worked in a recruitment centre 5 years ago, well my daughter was diagnosed in 2010 and hasnt been able to work since her diagnosis.
So ESA have placed my daughter in WRAG. i am waiting for the decision of a mandatory reconsideration then its the tribunal if she doesnt get back into the support group
I googled the DR who only registered in 2010 after passing his bachelors in medicine in 1999 in Iraq so really has no knowledge of neurology, some of the questions on the report he just answered himself he never asked us, but its his word against ours.
Today a letter from PIP came asking if there are any changes, i am feeling so anxious as if they dont believe anything thats written or said and i sent ESA 23 pages of reports from nbeurology and my daughter sees her neurologist approx every 6 weeks
could anyone give me any advice
I am a carer for my daughter of 32 years, she has a neurology condition and my anxiety has peaked since what i feel like is a bombardment of prove your daughter is sick.
My daughters condition is incurable and called idiopathic intracranial hypertension, she is in a lot of pain and has an LP shunt controlling spinal fluid to her brain.
We went to one of those ESA assessments and the report came back stating my daughter had back pain and anxiety and the stated that my daughter had a neurology problem and never once named her condition. He even addressed my daughter as a man and said she worked in a recruitment centre 5 years ago, well my daughter was diagnosed in 2010 and hasnt been able to work since her diagnosis.
So ESA have placed my daughter in WRAG. i am waiting for the decision of a mandatory reconsideration then its the tribunal if she doesnt get back into the support group
I googled the DR who only registered in 2010 after passing his bachelors in medicine in 1999 in Iraq so really has no knowledge of neurology, some of the questions on the report he just answered himself he never asked us, but its his word against ours.
Today a letter from PIP came asking if there are any changes, i am feeling so anxious as if they dont believe anything thats written or said and i sent ESA 23 pages of reports from nbeurology and my daughter sees her neurologist approx every 6 weeks
could anyone give me any advice
Replies
I'm not qualified to answer your question but I notice it has been placed in an appropriate forum so the best and most qualified people will be getting back to you in due course. Please bear with us.
Warmest best wishes to you and to your daughter,
Richard
Have a look at the B&W self test
http://www.mybenefitsandwork.co.uk/pip/indexxx.php
When you fill in the review form, give details as you did before. any worstened condition will need to be fully explained. Even if you tick no change, your daughter could still be called for assessment
CR
All you can do is answer the questions as honestly as possible and see what happens. Unfortunately it appears that it doesn't really matter what you write on a claim form, the assessor will make their own mind up anyway. But you should still write as much information on the form as possible as what is written in the claim form is important when/if you get to appeal stage. Good luck.
Lee