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When did you last change your medications?

whistleswhistles Member Posts: 1,590 Disability Gamechanger
I have just come off my painkillers- gp consent and knowledge-  before anyone panics.  :)
Please don't tweak yourselves without getting professional help.

I have been on them a longtime- minimum of ten years at a guess. I believe they were/are causing adverse side effects beyond what they are supposed to solve. 
The ambulance crew paramedic queried why I was on them. I didn't know why he was in front of me so no chance of answering that question sweetie!

My other meds were increased and as most of us know they can have more than one usage. 
Day ten, now completely off and all is peaceful at this time. 
Do not follow me, I don't know where I am going.

Replies

  • wilkowilko Member Posts: 2,289 Disability Gamechanger
    @whistles, I am glad and wish a lot more people where proactive in their medication and health care. How many people read the leaflets that are in the packets especially the section side effects, between myself and consorting with the pharmthist on side effects I was getting and taking their advice I am now on my fourth Statin. My advice is have a word with your pharmthist about the medications you are taking asking such things as, can I take my morning med all at once or a set time between each. With food or before or after a meal ect. Keep posting whistles you have a talent for keeping us interested and motivated to reply.
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @whistles,
    was taken off a medication I’d been on for years, maximum dose and stopped working so asked to come off. Unfortunately the doctor did not say I should reduce the dose slowly and changed to a different tablet.
    The withdrawals I suffered were horrendous. 
    The new sleeping tablet didn’t work so now on a CD but having bad nightmares.
    i have looked online as the leaflet was not in the bag!!
    nightmares are a side effect but hopefully will ease.
    All I need is sleep
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    edited March 2018
    Yes I reduced it gradually over those ten days. Two weeks would have been slightly better, but started noticing side effects going on day five.
    It's not been replaced as yet because the other one is also used as a pain relief. 
    Do not follow me, I don't know where I am going.
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @whistles
    i made a note to self, never stop medication, wean myself off.
    Id have thought my g.p would have at least told me of possible withdrawal 
  • lillybellelillybelle Member Posts: 458 Pioneering
    I’ve had a couple of experiences whilst on different drugs
    the first drug change I started to right backwards. Actual letters backwards. Signing my name was a nightmare.
    the 2nd time I ended up in hospital for 2 weeks as I was a complete zombie and couldn’t be bothered communicating at all.
       So the side effects of what I have now are nothing compared to that
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    I was on one med (plus painkillers) for years that worked and then stopped working so well so a second med was added.  That worked well but after some years I was getting chest infections.  So I asked consultant if I could return to having the second med (infusion) every eight/nine months instead of the current every six months.  

    Consultant decided to change me to a different second med instead.  Which was when the trouble began.  Was told I needed a chest X ray first, and then a second.  I'm sure when registrar phoned me in Dec 2017 she said second x ray was clear.  But in Jan 2018 I got a phone message from registrar telling me to go for yet another x ray!

    February 2018 still had not began new med and my condition became uncontrolled - very severe pain, stiffness and fatigue.  I asked for my March clinic appointment to be brought forward but because clinical nurse specialist was away sick this proved not to be possible.  On 8 March nurse said she'd order med for me to take myself at home.  Apparently med takes four weeks to arrive.  if i've heard nothing by 4 April I'll ask where the med is.

    Meanwhile, my condition remains uncontrolled and getting worse.  The registrar delayed my starting my new treatment to cover herself.  The Nov x ray was clear so I could have begun the new med in Dec 2017 or early Jan 2018, three months earlier than it will have begun (if I'm lucky).

    Knowing NHS delays, I should have kept my mouth shut at the hospital about the chest infections and stayed on the original med!  Chest infections would have cleared sooner or later with anti biotics prescribed by my GP which the hospital would have known nothing about.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    It is always a good idea to talk to a pharmacist? especially if you take a cocktail of drugs. Pharma's are the experts in drugs and should know more about how diferent combinations work together and any side effects. There are countless combinations and it is unlikely that a GP will have the specialised knowledge as good as they are.

    CR
    Be all you can be, make  every day count. Namaste
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    I cant have any over the counter cough or cold stuff because it interacts with current meds. That's a nuisance and I have to hope my body can get rid of it by itself. Still got a random cough after four weeks. But not bad enough to see doc and pick up more bugs. 


    Do not follow me, I don't know where I am going.
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  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    edited April 2018
    They have just decided to stop gp prescribing meds that can be bought over the counter. Sure I read that somewhere.
    Over the counter is surely cheaper so no idea why would offer it? 
    The prices of cold and flu stuff I can't afford to catch a cold anyway!
    Do not follow me, I don't know where I am going.
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @whistles,
    i cannot use cold remedies, nasel sprays etc as too it’s dangerous with my antidepressants.
    Not suppose to eat cheese, steak , the list is endless 

    so so if Iv a cold, blocked nose etc, steam with menthol Chrystal and nasel strips.

    that with my gum shield, going my teeth is not very fetching 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Sorry grind my teeth 
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    edited April 2018
    Funnily enough I think it says avoid grapefruit and grapefruit juice with mine. 

    <3<3<3  cheese!
    Do not follow me, I don't know where I am going.
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @whistles
    so do I but only can have a wee amount.

    bang goes a cheese and ham toastie 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    I know we cannot ask for medical advice but I’m wondering if anyone has taken temazepam for sleeping?
    Iv recently been given this, I have had insomnia since Christmas, but these tablets are giving me nightmares and still not sleeping properly. I’m not sure how long they take to work properly.

    Any help would be gratefully appreciated 
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  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @Victoriad,
    the footwear is the obligatory taken baffies  :D
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Sorry, Iv got your sausage fingers,

    tartan baffies 
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  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Victoriad said:
    susan48 said:
    Sorry, Iv got your sausage fingers,

    tartan baffies 
    Do they cone in that large a size?

    Here in the central belt they absolutely do 
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  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    susan48 said:
    I know we cannot ask for medical advice but I’m wondering if anyone has taken temazepam for sleeping?
    Iv recently been given this, I have had insomnia since Christmas, but these tablets are giving me nightmares and still not sleeping properly. I’m not sure how long they take to work properly.

    Any help would be gratefully appreciated 

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  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Victoriad said:
    susan48 said:
    @whistles,
    i cannot use cold remedies, nasel sprays etc as too it’s dangerous with my antidepressants.
    Not suppose to eat cheese, steak , the list is endless 

    so so if Iv a cold, blocked nose etc, steam with menthol Chrystal and nasel strips.

    that with my gum shield, going my teeth is not very fetching 
    All you need is complete head of rollers and net headscarf........it’s the footwear I’m wondering about?

    Was that REALLY a photo of your footprints in the snow?
    Still traumatised by the size of them!  ;)

    It’s all that beige food in packets @whistles......methinks a change of diet is what the doctor should recommend.....or as we say up here 

    Och well Lass that’s a bigger grip of Scotland you have under your feet there :o 


    Yes it was. And perfectly sane and sensible behaviour to take off your footwear and walk about in the snow. 
    I have the paperwork to prove it.  ;)
    Do not follow me, I don't know where I am going.
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    I dont like taking medications as I feel that I am pumping my body full of chemicals and its changing me. However, it seems I cannot manage my health conditions without them. I would gladly smoke weed if it was legal here rather than take medication if it worked for me. Anyway, I havent been managing my pain so well, and went to my gp who says I have fibromyalgia. He suggested I increase my meds as they work for this condition and review it in two months. My jaw was on the floor! Increase my meds? They knock me out already! So, I am doing it as prescribed one more at bedtime for week one and so on going from 6 per day to 9 per day. Right now all I am doing is sleep on one more per day and feeling groggy. So I cant see me on three more per day. I really dont want to be less aware of my daily life.
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    As for medication. Because our health will alter over time, for various reasons. It makes sense to me to look at the medications and not to just carry on taking it year in, year out. 
    You can end up on medication to counteract the side effects, but worse you can end up with a MH diagnosis because of them as well!! 

    As for pip,  what I can gather it ignores the side effects of your medication because its unwanted but not seen as effecting you as much as your condition would- in regards to the descriptors.
    Coming off my meds doesn't effect my claim because they dismissed the side effects to start with!
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  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @Victoriad

    Thanks I have stopped taking them and reverted back to the previous sleeping tablet.

    I will take the tablets back to the chemist as it’s not good to store tablets up, just being mindful of my mind set.

    i just need a proper sleep, exhausted all the time
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    edited April 2018
    Low dosage was the reason among other things.
    I didn't need supervision to take.
    I had insight. 
    Do not follow me, I don't know where I am going.
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  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @Victoriad,
    i was only given then last week and taken one every other night.
    I know, unfortunately, what withdrawals are like, my last CD was stopped suddenly and changed. It was not a pleasant experience.

    I will let my gp know I’m not taking the new ones on Tuesday when they are open.

    Thanks for your concern x
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  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Two weeks today and feel so much clearer headed. 
    But more importantly the worrying chest pains have give that it says to immediately tell your gp about.
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  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @Victoriad,
    just an update, temazepam returned to chemist and doctor informed of this and note been put on my medical file
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    edited April 2018
    Claimed and shamed on bbc1 is interesting. Psychiatrist in the usa.
    Got 12 years for the fraud.
    Do not follow me, I don't know where I am going.
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    edited April 2018
    @whistles,
    is that on just now? Never have tv on during the day 
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  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    It was on this morning.
    Yes called Claimed and Shamed. He was teaching people how to be ill to get the disability benefits.
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  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    https://www.bbc.co.uk/programmes/b09yspwq

    Might be this episode. Says shown today.
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  • crippscripps Member Posts: 412 Pioneering
    What program is this !! Is it repeated anywhere? One thing I hate is benefit theats it makes me so angry
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @cripps, click the link above and it takes you to it 
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Bbc I player I believe. 
    Professional preying on the vulnerable in the States. 
    Do not follow me, I don't know where I am going.
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  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Was he elderly? Entitled to the pass.
    Haven't you seen the speed some do just to answer the phone. Think it's adrenaline.
    I miss the bus, there is another.
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  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Just had a gp ring back. The meds I have stopped have been taken off the repeat, yay.

    But I have another diagnosis to snuggle down with the other one. Oh for goodness sake.  :) Depending how it effects me as to what we do about it. 
    Gp left the door open if need to chat. That's the type of gp everyone needs.  :)
    Do not follow me, I don't know where I am going.
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