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Professionals refusing to supply evidence

JurphJurph Member Posts: 346 Pioneering
I'm struggling to get evidence together for my tribunal.

I have Fibromyalgia, Depression and Anxiety. I was denied PIP with 0 points. The problem is that I'm only recently diagnosed.

I have 5 years of medical evidence that basically says I complained about pain but no tests showed anything wrong.

My GP referred me to a Occupational health as part of my local social services. I've seen her half a dozen times about what help I need st home but she's refused me evidence to help with PIP!

She said they don't do that because of the 'backlash'!

How on earth am I meant to appeal the decision when I can't get anything to back up what I've said?

No test can show what I suffer with. I don't get help from any other professionals so I'm stuck.

Replies

  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Hi jurph

    This is becoming a common problem.

    Have you got trained assisstance with your appeal ?

    However, it has been said before that the best evidence is your own anecdotal evidence and attending the tribunal so that you can explain anything the tribunal don't understand.
    Have you started a diary of what heppens each day ?
    This can be a big help with a varying condition

    Alsogo through each descriptor and note what you have trouble with, what help or aids you need to complete the activity and what happens if you don't get that help or can't use that aid. If possible give real recent examples

    CR
    Be all you can be, make  every day count. Namaste
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    I had this issue with the DLA. Both professionals passed the buck between them and neither signed the forms. 
    Got refused.
    Do not follow me, I don't know where I am going.
  • JurphJurph Member Posts: 346 Pioneering
    Hi! Thanks for your reply.

    Yes, I've got a diary (one that pre-dates my assessment that I think is helpful)

    My grounds for appeal was very thorough. The CAB helped me with that but they've said they can't supply a representative.
  • JurphJurph Member Posts: 346 Pioneering
    I feel so stuck. I thought she'd be a great help.

    She recommended having a shower put in so she recognises my struggles. However, the housing declined to do it.

    The only other professional I see is the GP who charges for letters
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    I’m similar. My gp charges 30 pounds for letters and I’m getting one done.  They are about the only ones I’ve seen over the years. I am getting help from a charitable organisation who are working with DWP and jcp. So they are writing a report too. It’s hard when you struggle for years with chronic pain and no diagnosis equals no other help in my case. Also with my mental health it’s been much the same having very little help. Avoidance is one of my symptoms. So I can empathise. You will get good advice on here and I hope it helps. Maybe ask your gp to refer you for further help with your conditions. At least that’s something showing you as proactive. Not that I’m saying you are not. It’s just we have to prove ourselves.
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    P S can you talk to o t manager about a report?
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • JurphJurph Member Posts: 346 Pioneering
    I asked @debbiedo49 they said they don't provide them
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    I think the issue is you are appealing. They don't want to put their name to anything used in court.
    Looking at it the other way around around, I wouldn't either. It might be outside their job description and we don't know if they are advised not to.

    Can you not submit the letters you got off them before? 
    You need to be provding how you are effected and how you meet the criteria. 
    Do not follow me, I don't know where I am going.
  • JurphJurph Member Posts: 346 Pioneering
    @whistles

    I don't have anything. She came round, said they'd put a couple of handrails in and discuss with my landlord about a shower.

    I don't have any reports or letters. She won't have written anything about anything other than the shower troubles anyway as she asked if my parents help with everything else. When I said they do, she just concentrated on the bathroom.
  • JurphJurph Member Posts: 346 Pioneering
    She came 3 times. Once on a good day, once was a flying visit then back on a bad day.

    Her 'assessment' was on the first good day.
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  • JurphJurph Member Posts: 346 Pioneering
    I have done, thank you.

    I just feel so trapped. I can't get the help I need. I think most don't even beleive I'm struggling.
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  • JurphJurph Member Posts: 346 Pioneering
    My driving licence is my life. I get your point but I couldn't be without it.
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  • JurphJurph Member Posts: 346 Pioneering
    I have a professional opinion.

    My diagnosis was made by a consultant rheumatologist. My GP sent me for a second opinion after tests done by another rheumatologist were negative.

    I'm seeing my GP next week to ask for evidence but the bottom line is I don't have any that proves my struggles with day to day living.

    I don't go out on bad days so no one sees me. Only my parents.

    The rheumatologist discharged me back to GP for management and they referred me for physio and CBT. I'm still on the waiting lists.
  • JurphJurph Member Posts: 346 Pioneering
    The ESA assessor managed to see it - they put me in the support group. The PIP assessor however thought I was making the whole thing up
  • tryingmybesttryingmybest Member Posts: 27 Connected
    Try fightback4justice they are legally trained & helped me win my transfer from dla to pip xx
  • JurphJurph Member Posts: 346 Pioneering
    Thanks @tryingmybest I've been in contact with them. Unfortunately, they don't have any representatives in my area. They basically said I don't have a strong case without evidence.

    They still advised me to appeal though. Perhaps the tribunal will understand!
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  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    You need to submit gp letter of the diagnosis.
    Photos of all aids 
    Medication prescriptions and any over the counter medication 
    Diary 
    Letter of support from your parents/ friends/ people you interact with a lot.
    How you are effected and how you are effected without the help.

    My only thoughts on this rightly or wrongly, is living with family they assume that help can be provided if you get it. 
    I am warden supported I actually couldn't provide recent evidence in regards to budgeting- because it's all done! I should have provided the evidence that shows its dealt with. But they were shut over Christmas and my due back date was the 8 Jan.

    Please help me out @Victoriad why isn't there a diagnostic test? If fibro effects so many things that must be able to be tested somehow? 
    I sort of see where your coming from in that in MH its invisible- but only until that person speaks or doesn't. The outwardly behavior is part of their condition.

    The driving license would be if he/ she is claiming mobility planning a journey. I don't see how it fits into care per se. Unless you are saying your medication causes you to be severely effected and too drowsy. It warms that on the packet.

    I can't touch piriton.
    Do not follow me, I don't know where I am going.
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  • JurphJurph Member Posts: 346 Pioneering
    @whistles. The assessor took a photocopy of my diagnosis letter. It's not mentioned at all in the report. This was from a consultant rheumatologist so I'd have thought it was pretty convincing.

    Fibromyalgia doesn't have a test that shows it definitively. They take a number of symptoms in to account and check a number of trigger points.
  • JurphJurph Member Posts: 346 Pioneering
    Basically, I've got 5 years worth of evidence that shows no physical problems. I was sent to specialists for wrist, back and ankle problems (without answers) before the consultant pieced it all together.
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