Husband had a brain aneurysm op and is not the same man - can you help?

LexcolRC
LexcolRC Community member Posts: 4 Connected
I’ve come on this forum to enlist information and help with my husband whom had a brain aneurysm op last year and we have no help (he also suffered a stroke during the op) He’s not the same man at all.  It’s extremely disturbing; frustrating and painful.

Comments

  • susan48
    susan48 Community member Posts: 2,213 Championing
    My dad had the same op and stroke. He completely changed after that so I truly understand.

    is awful, I do hope your are getting support from a charity or organisation to try and come to terms with everything.

    They didn’t tell us this might have happened so it was a massive shock.

    x
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,605 Championing
    Welcome to the community @AlexisFSwain and thank you for sharing.

    Headway is a great charity supporting people who have had brain injuries and it might be good to take a look at their website as they have lots of information and support.

    They have local support, you can search here with your postcode to see what is near you.

    They also have grants to support people who have had a brain injury and their families.

    It might also be worth you checking the online benefits calculator to see if you could be eligible to claim any financial help.

    I hope this helps :)
  • LexcolRC
    LexcolRC Community member Posts: 4 Connected
    Thanx lots 4 replies - will make a start wiv Headway & 
    will try again 2 get someone 2 see him!!
  • Jean_OT
    Jean_OT Community member Posts: 511 Empowering

    Hi @AlexisFSwain

    Sorry to hear of the difficult circumstances that you and your husband are dealing with.

    Scope produces some information specifically aimed at people who have recently become disabled:

    https://www.scope.org.uk/support/disabled-people/becoming-disabled/overview

    Hope this helps in some way

    Best Wishes

    Jean

  • LexcolRC
    LexcolRC Community member Posts: 4 Connected
    Thank u Jean & will do
  • Ebony
    Ebony Community member Posts: 5 Listener
    This happened to me after coming out of intensive care, your husband needs time for his brain to re-adjust.
  • SunshineLou
    SunshineLou Community member Posts: 79 Empowering
    I have an acquired brain injury also and can vouch for what others have said.
    HeadWay has been a Godsend for myself and they have amazing free information booklets that can help to explain things and help you cope with the changes happening in your loved one.
    My husband left me after two years following my ABI and he’d always refused to get help in understanding me. This is despite the fact that he married me after my ABI too.

    Its very hard for families and friends to understand us and how our functioning changes. Obviously we all suffer to different degrees and I’m lucky in that my friends still say I’m the same person. I just have problems with a short fuse and occasional meltdowns etc... amongst others.
    Please feel free to ask any Q’s you may have.
    HeadWay can provide you with lots of support though. They’re amazing. They can even offer your loved one some social activities. My local group takes us on outings and we have regular coffee mornings and other social activities.
    All these things help us to feel part of the world again and I’ve found them invaluable!

    Hope you find the support you need @LexcolRC x x 
  • LexcolRC
    LexcolRC Community member Posts: 4 Connected
    Wow SunshineLou, thank u 4 ur lovely reply, sharing & offer, so appreciated.
    I wish u continued improvement as well xx
  • SunshineLou
    SunshineLou Community member Posts: 79 Empowering
    Thanks @LexcolRC  I’m 4 years post injury now and things have become much easier. Time is a healer. We may never be exactly the same again but we can, and do improve, but recovery is over years. It’s a long haul thing x x