Disabled people
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Strange p.i.p

cathiecathie Member Posts: 143 Courageous
I had a pip assessment today i thought it odd the guy done everything on a lap top with a dongle looking thing lite up red light when me and my friend asked if we could read the report he had written refused  .. last couple i have had i was told to read and sign thought it very strange anyone experienced this...thanks guys...
Only me .. cathie..

Replies

  • anixous2017anixous2017 Member Posts: 56 Courageous
    I had my at home as I suffer with severe anixousty and depression, and epilepsy, and I had a tumour in my right lung thankfully they removed , I am in remission now. But the person that came to see me I was so. Nervous but she was. So patient . I still lost but it went to appeal and I won, I never saw any reports unroll they were sent to me.
    Good luck.x 
  • anixous2017anixous2017 Member Posts: 56 Courageous
  • lillybellelillybelle Member Posts: 458 Pioneering
    I suffer uncontrolled epilepsy , so again had Home visit that was all done on computer. I asked what she had wrote and she said everything I had told her.
    when I received my report she had done just that although missed a few things out.
    however she then discredited a lot of it saying that in her opinion I was well enough to do things.
    got 6 points for care and 12 mobility.
    just sent an MR off as I feel that my safety aspect has not been taken into consideration and she had come to her conclusion before I had had any seizure. ( these I have daily and without warning)
    my problem is after a seizure and the safety aspect at this time which is mostly 3-4 times a day.
    if this does not change the result then it will be a tribuneral.
    i will not give up and take a decision from somebody who saw me for 60 minutes.
    safety aspect is extremely important and epilepsy could sometimes put you in a life or death situation especially when it is uncontrolled, daily and without warning
  • anixous2017anixous2017 Member Posts: 56 Courageous
    Lillybelle my epilepsy is uncontrolled I have 2/3 gran mal  attacks a day and 18 plus absences. Get a letter from your consultant and one from your gp. Don't give up , I also have severe anixousty and depression. I have have had safety stair rails put in shower and toilet . My husband follows me upstairs and when I have a shower sits out side door, so never give up, I have also gone through last six months with any body worse fear I had cancer in the top right lobe of lung. I had operation to remove .
    I am now in remission but every little ain I get bug cold I fear the worse, my anixousty levels are alful.
    I have to have regular checks for five years .
    Good luck to you .   
  • anixous2017anixous2017 Member Posts: 56 Courageous
  • lillybellelillybelle Member Posts: 458 Pioneering
    They had a GP letter, medicine details and neurology appointment letter.
    sent copies all in again with MR.
    i don’t intend to give up as epileptic people need to be treated properly.
    this illness can be fatal even though it is a condition. It seen unless witnessed.

  • anixous2017anixous2017 Member Posts: 56 Courageous
    No get your consultant to right a letter for you about your epilepsy . I am on three different medication. X

  • lillybellelillybelle Member Posts: 458 Pioneering
    There is no need as they are not disputing the diagnosis..
       otherwise they wouldn’t of awarded my enhanced mobility.
    i haven’t seen a consultant for a while but now it’s affecting my speech I have an appointment in June.
    ive had epilepsy since I was 12 so learned to live with it
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    cathie said:
    I had a pip assessment today i thought it odd the guy done everything on a lap top with a dongle looking thing lite up red light when me and my friend asked if we could read the report he had written refused  .. last couple i have had i was told to read and sign thought it very strange anyone experienced this...thanks guys...
    Hi cathie

    It is not unusual for the HCP to refuse you see what has been written. In practice it would not have told you anything as the actual report is written up later.
    You should ask for a copy of the report within the next few days, do not be fobbed off by the phone jockey, some will tell you it is not available until decision is made. This is untrue and you are entitled to it as soon as the DWP receive it

    CR
    Be all you can be, make  every day count. Namaste
  • sleepy1sleepy1 Member Posts: 299 Pioneering
    Tell them your experience.

    https://publications.parliament.uk/pa/cm201719/cmselect/cmworpen/829/829.pdf 

    All correspondence should be addressed to the Clerk of the Work and Pensions Committee, House of Commons, London SW1A 0AA. The telephone number for general enquiries is 020 7219 8976; the Committee’s email address is [email protected]
  • anixous2017anixous2017 Member Posts: 56 Courageous
    Lillybelle my epilepsy started when I was 15 I had meninghitus.  So like you I have to live with it, as they have never been able to control .
  • lillybellelillybelle Member Posts: 458 Pioneering
    Mine just started out of nowhere.
    just started jerking when I got up in the mornings, then having petit mall and falling.
    then the grand mall.
    dont know to this day why as there is no history.

  • anixous2017anixous2017 Member Posts: 56 Courageous
    I have grand mal and petty mal , although my consultant says petty they call absences. My advice ring your consultants secretary up and ask if you can have a letter asap to say what sort of fits you have and if not controlled. It will help.
Sign in or join us to comment.