If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Filling in PIP form with Crohns

candyrobbiecandyrobbie Member Posts: 4 Listener
edited April 2018 in PIP, DLA and AA
I have severe Crohn’s Disease . I am currently claiming pip after being on an indefinite award of DLA. I am worried I will be refused. Does anyone have any advice on filling in the forms before I send them off to give me the best chance of being accepted ? Thanks 


  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Hi candyrobbie and welcome

    Things to know about PIP

    Get face to face advice from CAB, welfare rights or similar whenever possible

    DLA and PIP use different criteria for awards

    Just because you had DLA indefinately does not guarantee you will qualify for PIP

    When making the initial phone call ask for your DLA to be taken into consideration if applicable

    When you receive your PIP2 form you can ask for an extension of two weeks to complete and return it if need be.

    It is important to understand the points system, descriptors and criteria for an award Have a look at the B&W self test


    PIP is about how your condition affect your functionality. The "HOW"
    Medical evidence is only usefull to explain the "WHY. On its own, medical evidence will not win you an award
    Only send relevant medical evidence. More is not always better. HCP's and DM's will not spend time combing through your edition of War and Peace to find the facts.

    Most claimants will be required to attend a f2f assessment, usually at a centre.

    If you are unable to attend a centre and need a home visit, you will normally require a GP's letter stating explicitly that you cannot attend a centre and why. There must be no ambiguity.

    When you receive an appointment date you can rearrange it once only, you must then attend the new appointment

    Failure to attend will result in your file being returned to the DWP and your claim maybe closed.

    When you do attend the assessment you may take a companion for support.

    Make no special effort, be yourself

    Take your medication as prescribed

    Most people with long term conditions have learned to manage and conceal their condition. On the day you must become "disabled" for the assessor to see the real you, otherwise an incorrect assessment is likely.
    I am in no way suggesting that anyone should put on an act and pretend to be worse than they are, many people are already stressed, but at the same time it will not help if the claimant " Puts on a brave face" as my gran used to say

    If you have a home visit, the assessor is just the same as any visitor , they do not have the right to look around your home.

    If possible have a companion with you

    Keep to your normal routine. If at the appointed time you are normaly still in bed or not dressed, then, if you are comfortable, there is no reason to alter that.

    You decide which room the assessment takes place in
    Assessors may arrive early or late so be ready. Have your ID and medication list to hand.

    The assessor will be observing everything you do from the start, how you sit, stand, walk, handle items such as bags and coats.

    Don't expect them to answer many questions, they have an agenda and will want to stick to it.

    If you have a companion they can take notes.

    After the assessment you should ring the DWP and ask for a copy of the report, but wait for 3-4 days for them to receive it. Do not be fobbed off, you are entitled to it no matter what the phone jockey tells you.

    When you receive the report it will give you an indication of your possible award it is a recommendation only, it is the DM that makes the decision and it may differ.

    When you receive the decision letter, you have a month from the date on the letter to ask for a mandatory reconsideration, no extension is normally given. You can do so by phone and or letter.

    If you have received an award the decision letter will tell you what it is, how much and from when.
    If it is a new claim it will be dated from the day of the first phone call. If a change from DLA then it should be dated the day after your DLA stops. If it is a review then it should be a continuation with any back date if a higher award is given

    Look for both the end date and the "We will contact you after " date. Reviews are usually carried out a year before the end date. Some shorter awards have an end date and you will have to reapply.

    Some useful links




    Be all you can be, make  every day count. Namaste
  • candyrobbiecandyrobbie Member Posts: 4 Listener
    Hi CR ,

    Thank you for your detailed response.

    Wow, that’s  a lot to take in in one go ! 

    I have been reading up on pip and can see I’m going to need all the help I can get .
    Your point about Home visits is a new one to me so thank you for that.  I am mostly housebound on bed rest so to know I can stay in my usual place for the visit helps . Otherwise it’s a mission to get ready for a visitor . I am seeing my IBD team 19th April , so will get a support letter stating need Home visit . Do you know if this can be from a nurse specialist or does it have to be from a doctor?
    I already have extension till 28th April  
    When I phoned for claim forms I’m  not sure I Mentioned my DLA award . Should I phone back or mention it instead on my claim form do you think ? 


  • JennysDadJennysDad Member Posts: 2,308 Disability Gamechanger
    Just saying hello and welcome to you, @candyrobbie. Don't hesitate to talk to us about anything else we might be able to help you with.
    Warmest best wishes to you,
  • candyrobbiecandyrobbie Member Posts: 4 Listener
    Thank you for the welcome Richard ! 
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,729 Disability Gamechanger
    Hi @candyrobbie
    Welcome to the community, I have ulcerative colitis and I wrote a post about claiming PIP with IBD here that you might like to read.

    You can also speak to Crohns and Colitis UK about benefits.
    Senior online community officer
  • candyrobbiecandyrobbie Member Posts: 4 Listener
    Hi Sam ,

    I’ve had crohns for nearly 30yrs now and have a large amount of reports / docs letters, which I’m putting together as supporting evidence. In some They state that I’m housebound due to my incontinence so I want to include them , but they also state that a total Colectomy and stoma would increase my quality of life . I’m against having the major surgery for all sorts of reasons , so my question is ...
    should  I submit this as evidence ? I’m worried the assassors could take this to mean that my problems are mine by choice by way of not having the major surgery ? I have carers who can write about how they help me more specifically, so perhaps I should leave out the reports I’m not sure of?

    i don’t want to over do it with the amount I send in , however I’m thinking the reports show the frequency of endoscopies , EUA’s etc so should I still send them ?
    i don’t want the assessor to look at it all and think there’s too much work there to read through and just decline me as it might be easier for them ?

    Any advice would be much appreciated thanks ! 

Sign in or join us to comment.