Gastroparesis

laurahc__

Hi

I have suspected gastroparesis and have been on a liquid diet more or less since the beginning of February. I've seen gastroenterology once and have a follow up next month and I've been referred to a dietician but my appointment isn't until October, which is less than ideal because I'm already at high risk of malnourishment. 

I've been told that I have to continue buying supplement drinks because the "cannot be provided on the NHS" because I'm basically paying for them, instead of food. Just wondering if that is accurate? I'm currently on Ensure Juice plus and am interested to see if anyone has other recommendations or if brands are more or less the same? I can't have milkshake type products due to not being able to tolerate large amounts of dairy. 

In terms of my weight, I am technically not yet underweight although I've lost a lot of weight and it isn't sustainable and I'm not sure where to go from here. I'm already immunocompromised and I'm concerned that being malnourished is going to weaken my immune system further, resulting in me becoming very unwell. 

Any tips or advice would be appreciated! 

Sam_Alumni

Hi @laurahc__
This sounds like a really tough situation.

Are you concerned that you arent getting enough nutrients from the supplement drinks?  Can you speak to your GP about this?

You could also bring it up with the gastro doctors and ask what else you can do.

CockneyRebel

Found a few links that may be useful

https://www.nhs.uk/conditions/gastroparesis/

http://gastroparesisclinic.org/treatments.php?pageId=1186&moduleId=204

[PDF]Eating for Gastroparesis - Crystal Saltrelli, CHC

CR

laurahc__

Sam_Scope said:

Hi @laurahc__
This sounds like a really tough situation.

Are you concerned that you arent getting enough nutrients from the supplement drinks?  Can you speak to your GP about this?

You could also bring it up with the gastro doctors and ask what else you can do.

On the MUST scale, which measures malnourishment, I am at high risk of malnourishment. I'm trying to keep my intake up but it's difficult when I keep being sick. My GP is doing her best but she's limited in what she can do, we're waiting on gastro, but it's another 3 weeks before I see them.

laurahc__

CockneyRebel said:

Found a few links that may be useful

https://www.nhs.uk/conditions/gastroparesis/

http://gastroparesisclinic.org/treatments.php?pageId=1186&moduleId=204

[PDF]Eating for Gastroparesis - Crystal Saltrelli, CHC

CR

Ah, this is really useful, thank you.

Sam_Alumni

What a difficult time for you, Im sorry to hear things are so tough

Sam_Alumni

@KirstenNutritionAdvisor can you help at all?