Cerebral Palsy
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Chronic back pain

mollymitzmollymitz Member Posts: 6 Connected
edited April 2018 in Cerebral Palsy
I have two prolapsed discs and in chronic pain 24/7 

Replies

  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,729 Disability Gamechanger
    Hi @mollymitz
    Do you see anyone from a specialist pain team? Are you getting any treatment?
    Scope
    Senior online community officer
  • TimJohnTimJohn Member Posts: 2 Listener
    Hi molly you need to see ur GP and if you can afford it you should go for a private MRI Scan because i waited 2 years for one on the NHS  and by that time the damage to my spinal cord was done which means im gona have this pain for life and so will you. Good Luck

  • mollymitzmollymitz Member Posts: 6 Connected
    I have been operated on called a decompression but not worked so I just live with the pain on strong pain patches and zapain can barely walk today 
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,729 Disability Gamechanger
    That sounds really tough @mollymitz :(
    Scope
    Senior online community officer
  • allytheoneallytheone Member Posts: 2 Listener
    Hello all. I have spinal stenosis and severe pain in lower back. I also have severe pain in my right foot. I use severdol gabapentin and co codamol which my gp says pain coctail. I also now have wear pain patches on my foot. I also got told after more scans that i have a c6 problem but ive told surgeon i dont want the surgery as i have enough to deal with
  • feirfeir Member Posts: 396 Pioneering
    Hi. I also have spinal stenosis, tend to have a period type pain permanently in my back, buttocks, hips, and both legs are affected now. Walking/moving about isn't great but i can still manage it in very short bursts.

    The only thing that stops my pain is not moving, this isn't ideal but it helps a lot as no painkillers do anything any more. I discovered the not moving thing helped because i was struggling to move and so gave up trying.
  • WaylayWaylay Member Posts: 949 Pioneering
    Sorry to hear this, @mollymitz. I have chronic back pain too. I really would try to get referred to a pain management programme at a pain clinic. They're variable in quality, but the good ones (like mine) are really helpful. Hasn't reduced my pain, but I deal with much better now.
  • mollymitzmollymitz Member Posts: 6 Connected
    Thanks but been to them I felt no difference in pain or spirit so I left I just take my meds and get along don’t go out a lot now because copd getting worse but going to Cyprus soon so should get some pain relief 
    many thanks for ur suggestion 

  • allytheoneallytheone Member Posts: 2 Listener
    Ive had this quite a few years now, wont do surgery unless  can go to Loo etc so have to live on daily meds 3 times daily plus the Patches etc. Not ideal but i try to make the best off it every day.
  • SandygalSandygal Member Posts: 2 Listener
    I have chronic pain ie bulging disc ,degenerating discs ,degenerating in neck ,arthritis in spine & knees & Fibromyalgia they can't operate as I could end up in a wheelchair so live on a cocktail of tablets & patches Ive been referred to the pain clinic 15 months ago & with a bit of luck I  should get seen in 2 months .
  • tesco47tesco47 Member Posts: 16 Courageous
    Hi all, I’ve had low back pain for over 20 years now, but the last few weeks it’s turned to chronic pain whenever I stand,walk, pins needles numbness in legs, I’m off sick from work, now contemplating life without work, depressive thoughts going through my mind. 
    So well done cerebral palsy you win . 
  • WaylayWaylay Member Posts: 949 Pioneering
    @tesco47 I hope you've seen your GP?
  • tesco47tesco47 Member Posts: 16 Courageous
    @Waylay Yeah waiting on mri scan results and referred to spine specialist. 
  • tesco47tesco47 Member Posts: 16 Courageous
    But I’m sure I’ve got onset of post impairment syndrome 
  • kirsty76kirsty76 Member Posts: 1 Listener
    I have been suffering with chronic back pain for over 2 years now had mri showed a bulge in c4 c5 I can’t hold my arms up for long my legs sometimes feel like they won’t co ordinate I’m taking zapain for it but don’t really help I’m having to take time off work with then I’m getting stressed and depressed I take matazapinr on a night time I feel like it’s a loading battle.
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Welcome to the community, @kirsty76! So sorry to hear about your pain- at the very least, I hope you find comfort in being able to talk with others who understand and can relate.
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