Cerebral Palsy
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Another operation

Carrie38Carrie38 Member Posts: 40 Connected
edited April 2018 in Cerebral Palsy
Hi I am 40 years old born with mild cerabal plasy.

I had a normal life as a child just not good at sport etc. I trained to be a nursery nurse i did that for 12 years. Until cerabal plasy and aging effected me in my min 20s. I had major operations on my back , left leg and left foot. I had to learn to walk again when i was 30.  I had to change my career to admin as I had to start using walking aids etc. I went on to have further operations and was also told i was dyslexic and had to fight to keep my admin job. 

I struggled to stay at work after my big operations as my body was struggling with mobility and chronic pain. I was tired all the time and also had a accident at work so November 2015 I was ill health retired at 37 for life. It hit me hard not working so I joined weight watchers lost 5 stone and life was getting better . Because of my health I have missed out on so much not having children , still.live with my mam. Relationships have been hard and have broken down due to my health . I do have a partner for 3 years who is great but for his personal reasons we can' live together at the moment. He was made redundant last year .

This week i went to hospital as my hands and arms are sore from the 11 years of using crutches . I have serve Carpol tunnel in both hands and ulna nerve entrapment in both arms . I need surgery again !!! This has knocked me sideways I know not a big operation but the recovery for me will be huge as my hands are my feet and without them how will I walk . I know they will do one at a time but I need them both to walk . This is also not a permanent solution as will come back again as use crutches . I am devastated and worried sick how vunerable I will be during recovery 3-6 months per hand. Mild cp can be differcult as you get older the impact on your body 

Replies

  • Richard_ScopeRichard_Scope Posts: 2,839

    Scope community team

    Hi @Carrie38
    Thanks for sharing your post. I'm sorry to read that you have to have more surgery. I can completely empathise with mobility changes as we age. I would be pretty lost without both of my hands.
    When you visited the hospital did the staff talk about how you would move around while you are recovering, maybe an appointment with an OT (Occupational Therapist)?
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Carrie38Carrie38 Member Posts: 40 Connected
    They have not gone though this yet I make sure they do . I am scared stiff . 
  • Richard_ScopeRichard_Scope Posts: 2,839

    Scope community team

    It's understandable that you are feeling nervous about the procedure @Carrie38. Anyone would be. What I have done in the past when I have had medical treatments is make a list of all of the questions that I want to ask and take that in to the discussion. It's very easy to forget what you need answers to with everything else going on.
    Keep me posted on how things progress.
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Carrie38Carrie38 Member Posts: 40 Connected
    I have a list of questions thanks 
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