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We need some support
I gave up working about 3yrs ago to look after my daughter and granddaughter ,sadly my daughter passed away last October and my granddaughter , after her death we found out that our daughter had a rare connective tissue disorder as do I and my granddaughter , my other 2 adult children are awaiting results , Its a daily struggle to keep everyone well and gradually you cant help but let things like house work and personal care slip just to do the important stuff , I realise I am now the one that needs the help to be able to give the help if that makes sense , my granddaughter is a big part of our lives and we help her dad to manage her care so that would be cruel on her after loosing her mum to change this I am trying to find out if we are entitled to any help for her or myself we have loeys dietz and need a lot of daily support to cook clean and dress and that support comes from my husband who is trying to work but nearing retirement and has health issues himself from trying to care and provide for us all , any advice would be appreceated