M.E /cfs treatment — Scope | Disability forum
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M.E /cfs treatment

teighan Community member Posts: 15 Connected
Hi,I was diognosed with me,cfs 6 years ago and havnt had any treatment, what treatment is available to me?my docter suggested cbt therapy ?.  I also have fibromyaliga which I get treatment for.thanks for reading xxx


  • markyboy
    markyboy Community member Posts: 367 Pioneering
    Hi i have ME even though i developed it 6 years ago it was only diagnosed last year if you go on the ME charity website there are loads of help there and advise 
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,671 Disability Gamechanger
    Hi @teighan
    There is loads of information on the ME association website that might help?
    Senior online community officer
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    Hi @teighan, lovely to meet you! I have ME/CFS too. Unfortunately it's very difficult to 'treat' as there are no targeted treatment currently available for the condition. However, there's lots of guidance on condition management on this page which may come in helpful, and it may also be worth speaking to your GP about a referral to a specialist ME/CFS service. Hope this helps, and good luck! 
  • peachy1966
    peachy1966 Community member Posts: 7 Listener
    There no cure yet and treatment hit miss . My son had 2 1/2 years bedridden. Light box help keep body clock but there only time and trying do small things which you can and don’t feel guilty . We never put guilt on my son and it helps .he never got down he says he we’ll get better so positive mind help but I know not easy. There is a lot of people looking into illness now so you never know . A good doctor helps . Ask help and get good team around you it really dose help .
  • fizzied
    fizzied Community member Posts: 2 Listener
    I think the available treatment depends on the region. In my area there is a specific ME/CFS service with a combination of physiotherapist and psychologist. They provide pacing advice (group and individual sessions), and counselling to discuss managing the condition in daily life as well as the mental health challenges. 

    I have also found mindfulness, provided through my local talking therapies service, useful. It wasn't specific for ME/CFS but I found it useful.

    Can you ask your doctor whether there is any ME/CFS specific services in your region?
  • Florine
    Florine Community member Posts: 64 Courageous
    With regard to CBT (cognitive behavioural therapy), please note that as per the 2021 NICE guidelines (https://www.nice.org.uk/guidance/ng206) this should no longer be offered as a "treatment" for ME, although it may still be offered as management support.


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