If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Severe epilepsy - dreading PIP review

Sandy4563Sandy4563 Member Posts: 1 Listener
edited May 2018 in PIP, DLA and AA
I suffer with severe epilepsy I have four types and it is drug-resistant I was medically retired in 2011 my husband is also medically retired due to a bad back and a hip operation we are both dreading when it comes up for Pip's again I can never be left alone due to my epilepsy I am not allowed to cook I have to stand there and watch my husband do it for me we care for each other


  • JennysDadJennysDad Member Posts: 2,308 Disability Gamechanger
    Hello @Sandy4563 and a warm welcome to the community. Good to have you with us.
    It is not surprising that you are anxious about PIP - on this and other sites and in the media there is no shortage of horror stories - but it is worth remembering that it is only 'horror stories' that make news. When everything goes well and smoothly it is unlikely to be publicized.
    I am not a benefits advisor as such, but we do have well-qualified and experienced people here and some great resources and advice. You are not alone now.
    Our more knowledgeable and qualified people will be in touch with you as soon as possible, so bear with us and keep in touch.
    Warmest best wishes to you and to your husband,

  • mikehughescqmikehughescq Member Posts: 6,562 Disability Gamechanger
    Do you have warnings of episodes? Are you able to put yourself in a safe place? If not, then lost the many examples you’ll doubtless have of where it’s not gone well. You only have a problem with PIP if there’s a warning.
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,729 Disability Gamechanger
    Welcome to the community @Sandy4563

    Senior online community officer
Sign in or join us to comment.