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Help filling in PIP forms - husband has mixed dementia

stevec Member Posts: 1 Listener
edited May 2018 in PIP, DLA, and AA
Im Steve's wife mandie and Steve just been diagnosed with mixed dementia stage 3-4 and he just had new PIP  forms to fill in they now put me down as his appointee so I can do all the claiming now he also has diabetes type 2 he insulin dependented and also on metformin his kidneys leak protine and he has mobility problems and had 2 TIA  I really don't know what he can claim and get help with as I am finding it hard already can anyone help me please steve  is only 57 he be 58 in sept 


  • JennysDad
    JennysDad Member Posts: 2,299 Disability Gamechanger
    Hello Mandie @stevec and a warm welcome to the community. I am very glad you have found us, and very sorry to hear about your and Steve's difficulties.
    However, we are no strangers to such things here.
    Whilst I'm not a benefits advisor and can't answer you directly, we do have well qualified and experienced people who will be in touch with you as soon as they can be. I'm going to refer your message to them and we will see what happens.
    For now, please 'keep your chin up', know that you are safe among friends here, and that we will do everything we possibly can to help you.
    Warmest best wishes
  • mikehughescq
    mikehughescq Posts: 8,847 Connected
    No expert help is needing for the form filling. There's no magic form of words to use and, contrary to some advice you'll read, you absolutely must not describe only what he's like on his worst day. Describe the variations in all their glory. The unpredictability is exactly what makes the case for needing help from another person. 

    Best single place to start would be

    and the key concept to concentrate on is that of "reliably". If you can't do it reliably, safely, repeatedly or in a reasonable time then you can't do it. If you want precise definitions of words then look at

    Don't focus on medical evidence. The diagnosis and the symptoms are probably not in dispute. PIP is not about your impairments. No-one cares if he has 10 conditions or 1. It's about the consequences and whether they score points.

    Concentrate on anecdote. Which points does he score and why? If you think he scores points on an activity then think of the example stories which illustrate that and they're what you write in the "tell us more" boxes. Don't leave any of those empty. 

    PS: Also, ring PIP and ask for a 2 week extension. It will be granted automatically and take a bit of the stress out of it time wise. 
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,676 Disability Gamechanger
    Welcome to the community @stevec

    Id recommend the CAB help with filling your pip form webpage, it breaks it down question by question.

    Good luck and let us know if you have any questions as so many of our members have been through this process.

    Senior online community officer
  • Yadnad
    Yadnad Posts: 2,856 Connected
    Concise and accurate advice - something that I wish I would have had 5 years ago.


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