› Welcomes and introductions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Hi, my name is jane1973!

jane1973jane1973 Member Posts: 175 Pioneering
in Welcomes and introductions
Hello everyone
Hugz to everyone xx
· Share on FacebookShare on Twitter

Replies

  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    Hi @jane1973
    Welcome to the community, do you want to tell us a bit about yourself?
    Scope
    Senior online community officer
    · Share on FacebookShare on Twitter
  • jane1973jane1973 Member Posts: 175 Pioneering
    Hi sam my name is jane i am 44 and have two daughters and one grandaughter oh and a dog that thinks shes a lap dog but shes a very vocal staffie lol i live alone with the dog and my youngest daughter comes home at weekends from uni in london, i have “lupus like disease” antiphospholipid syndrome, reynauds ( cant spell it ) dry eyes and mouth and was diagnosed with fibro two years ago ive tried every treatment thrown at me including a lidocaine infusion but remain the same oh i nearly forgot the depression and anxiety i think thats it but probly not lol after working through everything else i lost my job when i got so ill with fibro and now they have taken the pip away from me i can no longer pay everything on the esa its so sad and im sad    Thanx for listening xx
    Hugz to everyone xx
    · Share on FacebookShare on Twitter
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    Hi @jane1973
    I have a dog who thinks my lap belongs to him!! 

    Have you considered appealing the PIP decision? When did it get stopped?
    Scope
    Senior online community officer
    · Share on FacebookShare on Twitter
  • jane1973jane1973 Member Posts: 175 Pioneering
    Ive had it for a couple of years since being dismissed from my job and the diagnosis of fibromyalgia  my review was in april and because nothing has changed and if anything it has got slightly worse i recieved the upsetting news on monday just gone and was stunned at such a change i was only awarded 4 points for not being able to walk over 200 metres and everything else was discarded also the letter said i shouldnt be able to drive a car and i was not malnourished ive never recieved anything like it
    Hugz to everyone xx
    · Share on FacebookShare on Twitter
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    That must be a huge shock to you :(

    You can appeal the decision and we have some great videos about how to do that. take a look and do ask any questions as we have so many members who have been through this.




    Scope
    Senior online community officer
    · Share on FacebookShare on Twitter
  • jane1973jane1973 Member Posts: 175 Pioneering
    Thanks soooo much this really is going to help me when my mum and i start the paperwork tomorrow  xx
    Hugz to everyone xx
    · Share on FacebookShare on Twitter
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    If you use the search function at the top of the page, there are so many threads of people talking about their appeals.

    Good luck!!
    Scope
    Senior online community officer
    · Share on FacebookShare on Twitter
  • jane1973jane1973 Member Posts: 175 Pioneering
    Very handy to know thanx again x
    Hugz to everyone xx
    · Share on FacebookShare on Twitter
Sign in or join us to comment.