Hi, my name is jane1973!

jane1973

Hello everyone

Sam_Alumni

Hi @jane1973
Welcome to the community, do you want to tell us a bit about yourself?

jane1973

Hi sam my name is jane i am 44 and have two daughters and one grandaughter oh and a dog that thinks shes a lap dog but shes a very vocal staffie lol i live alone with the dog and my youngest daughter comes home at weekends from uni in london, i have “lupus like disease” antiphospholipid syndrome, reynauds ( cant spell it ) dry eyes and mouth and was diagnosed with fibro two years ago ive tried every treatment thrown at me including a lidocaine infusion but remain the same oh i nearly forgot the depression and anxiety i think thats it but probly not lol after working through everything else i lost my job when i got so ill with fibro and now they have taken the pip away from me i can no longer pay everything on the esa its so sad and im sad    Thanx for listening xx

Sam_Alumni

Hi @jane1973
I have a dog who thinks my lap belongs to him!! 

Have you considered appealing the PIP decision? When did it get stopped?

jane1973

Ive had it for a couple of years since being dismissed from my job and the diagnosis of fibromyalgia  my review was in april and because nothing has changed and if anything it has got slightly worse i recieved the upsetting news on monday just gone and was stunned at such a change i was only awarded 4 points for not being able to walk over 200 metres and everything else was discarded also the letter said i shouldnt be able to drive a car and i was not malnourished ive never recieved anything like it

Sam_Alumni

That must be a huge shock to you

You can appeal the decision and we have some great videos about how to do that. take a look and do ask any questions as we have so many members who have been through this.

https://www.youtube.com/watch?v=4sOsiEFo-Ck

jane1973

Thanks soooo much this really is going to help me when my mum and i start the paperwork tomorrow  xx

Sam_Alumni

If you use the search function at the top of the page, there are so many threads of people talking about their appeals.

Good luck!!

jane1973

Very handy to know thanx again x