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Won P.I.P. appeal then lost award again

LDWLDW Member Posts: 3 Listener
edited May 2018 in PIP, DLA and AA
i changed from dla to pip 2yrs ago I had a right old time of it, they denied my claim and took my car from me, they told terrible lies about my home consultation, I appealed and was successful and was awarded higher rates on both components, so now to my surprise here we go again ivied filled in a review form to see if my circumstances have changed, and I've got to have another home consult, I just hope they're not still using Capita as they were terrible. All of this stresses me out which is no good for my health but I don't think they care. Is anyone else having this problem again ?

Replies

  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @LDW Pleased to meet you. Yes it is happening all the time not only me but loads of us in the community .

    Been like this for years and years just because you have won does not mean [email protected] review you. What gets me is the audacity on a Friday . Usual call. We have looked at your award to decide whether you qualify.  Words to that effect.

    Same old record and same and goes on constantly in my mind. Now fifty plus the battle is ongoing. Been from 1995 or earlier fighting for justice and welfare.

    My suggestion is to find advocate or welfare support. Look on web have some one with you. Recommend this to every body. Need to fight decisions and really hit the mark. Governments rules and regulations can be broken and change if we all stand together and fight. Struggle and strive become weak.

    There are firms and companies out there will take you onboard to sort the situation out.  You are like me and others want help and support but getting railroaded by the system.

    Best wishes and good luck.

    Take care

    @thespiceman
    Community Champion
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  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    LDW said:
    i changed from dla to pip 2yrs ago I had a right old time of it, they denied my claim and took my car from me, they told terrible lies about my home consultation, I appealed and was successful and was awarded higher rates on both components, so now to my surprise here we go again ivied filled in a review form to see if my circumstances have changed, and I've got to have another home consult, I just hope they're not still using Capita as they were terrible. All of this stresses me out which is no good for my health but I don't think they care. Is anyone else having this problem again ?

    So you are on the roundabout as well!

    It gets boring after a while going from nothing to enhanced then back to nothing and back up to enhanced I've had three rides so far in the past 5 years.

  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    That’s a typical story right across the board. 
    A friend of mine went to Tribunal two years ago and was awarded Enhanced rate of both (pip) for 5 years. 
    They’re reviewing her now and just removed her award. 
    Again she’s appealing. 
    Seems they’ll do anything to deny people their awards. 
    I’ve been through it myself 3 times since 2014. This last time (last month) it was finally made an ongoing award. Minimum 10 years.
    I think they’ve finally accepted that brain and spinal cord damage doesn’t get much better after a certain point! 
    All I can say is keep fighting and if you go to Appeal provide ALL the evidence you’ve submitted over time. 
    The clerk of courts told me to send in EVERYTHING relevant to my disagreed descriptors. Including evidence from 4 years ago. 
    You can never give too much to a Tribunal!

    Hope that helps a little? Good luck!
  • LDWLDW Member Posts: 3 Listener
    Thank you for the information on your experience which is appalling,  I find it' such a sad thing that disabled ppl have extra worry over the decision from a failing DWP who doesn't know it' s  ass from it elbow at the moment
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    LDW, exactly!
    personally I got my MP involved and that made all the difference. Twice I had to do that actually when they decided to ignore the evidence I’d provided.
    Its one big mess and they’re treating us really badly.
    Even my own GP said he had to fight tooth and nail for his own mothers case! Appeal and all, and he’s a GP! :( 
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    edited May 2018
    This last time (last month) it was finally made an ongoing award. Minimum 10 years........I think they’ve finally accepted that brain and spinal cord damage doesn’t get much better after a certain point!  
    The clerk of courts told me to send in EVERYTHING relevant to my disagreed descriptors. Including evidence from 4 years ago. 
    You can never give too much to a Tribunal!
    I too have lower spinal damage as well as an acquired brain injury (frontal lobe damage) The first a sports injury and the second as a result of trauma.
    Despite all of the evidence sent in the DWP are of the opinion that the brain injury doesn't affect my abilities. As for the spinal injury and despite the hospital confirming the distance that can be walked (max 10 metres) by reference to their own walking machine, the DWP agree that I can actually walk up to 200 metres with no difficulty.
    I gave up after the DLA/PIP transfer in 2013 of describing anything to do with mental health as it was clear that they don't believe a word of what I write.
    For the 2nd & 3rd reviews (2015 & 2017) I concentrated on what they could see.
    Three decisions given - no award. The first two after MR were changed to Enhanced Care & Mobility. The third was still no award after an MR. 
    At that point and fed up with reassessment every 24 months I closed my file and gave up the fight. There was no way at 70 was I going to put up with the 2 year reviews for the rest of my life. 

    The DWP tell you not to send in anything that has been sent in the past and that nothing which is older than 24 months is required.
    Seems that the Tribunal have a different opinion - not too sure who to believe is right.
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @Yadnad That’s such a shame!
    They’re counting on people not fighting! They hope people will give up.
    I didn’t give up and it has now paid off.
    I know many people who’ve also given up. Most of them with ABIs also. A lot are now housebound.
    Its not right! 
    I hate the whole system!
    68% of appeals are overturned at Appeal stage. Many MRs don’t change the award you get. You need to go further.

    If you’re happy accepting that they’re saying you’re lying then that’s your choice.
    Personally I wasn’t about to put up with that.
    In a way I’m lucky. I’ve been fighting for my son’s DLA since he was a toddler. I’m used to it all.
    It’s worse now with PIP though. They live to tell you that you can do things you can’t :( 

    DWP don’t want anything more than 2 years in terms of evidence but a Tribunal Court isn’t the DWP.
    As I said, the clerk of the court asked me for everything I could give them in order to back up the descriptors I disagreed with. 
    It worked!

    You can always call and ask them yourself if you don’t believe me.
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    @Yadnad That’s such a shame!
    They’re counting on people not fighting! They hope people will give up.
    I didn’t give up and it has now paid off.
    I know many people who’ve also given up. Most of them with ABIs also. A lot are now housebound.
    Its not right! 
    I hate the whole system!
    68% of appeals are overturned at Appeal stage. Many MRs don’t change the award you get. You need to go further.

    If you’re happy accepting that they’re saying you’re lying then that’s your choice.
    Personally I wasn’t about to put up with that.
    In a way I’m lucky. I’ve been fighting for my son’s DLA since he was a toddler. I’m used to it all.
    It’s worse now with PIP though. They live to tell you that you can do things you can’t :( 

    DWP don’t want anything more than 2 years in terms of evidence but a Tribunal Court isn’t the DWP.
    As I said, the clerk of the court asked me for everything I could give them in order to back up the descriptors I disagreed with. 
    It worked!

    You can always call and ask them yourself if you don’t believe me.

    No, I believe you, it's just contradictory to what the DWP say - it just makes me wonder if they are all singing from the same hymn sheet.

    I fully accept and understand that going to appeal will more likely than not result in the re-award the Enhanced Care & Mobility.

    I have had 3 face to face assessments since 2013 and now at the tender age of 70, the whole thing has got me down. 
    I do not accept that I am lying, but with the system as it has worked for me I cannot face having to complete these forms, have a face to face assessment and go for a MR to get what I am entitled to every other year until I die.
    Now with the expectation of having to go to a Tribunal every other year on top is making me ill.
    Obviously I have asked friends of my age who also for one reason or another claimed DLA and all have been moved onto PIP. None has had so many assessments, so many rejections and so many revisions - they agree with me that if it were them in my shoes, they too would call it a day. 

  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @Yadnad I do understand that. I’ve spent the last four years under serious stress and anxiety because of this process.

    I’d love to see it change!
    I feel for you. 
    Is there any possibility of you getting an advocate to help you? 
    I was going to ask a Facebook group for help. They’re called FightBack for Justice.
    they do all the work for you and even attend a Tribunal if needed with you.
    they do have fees but it makes things much easier for people.

    I just hate to see injustices done :( 
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    edited May 2018
    @Yadnad I do understand that. I’ve spent the last four years under serious stress and anxiety because of this process.

    I’d love to see it change!
    I feel for you. 
    Is there any possibility of you getting an advocate to help you? 
    I was going to ask a Facebook group for help. They’re called FightBack for Justice.
    they do all the work for you and even attend a Tribunal if needed with you.
    they do have fees but it makes things much easier for people.

    I just hate to see injustices done :( 

    Thanks for the suggestions and if I could be assured that this constant battle would end sometime soon and even if they gave me a 10 year award then I would re-consider.
    Yes with that help I will probably win, but what about 2019, 2021, 2023, 2025 etc do I want to have to go through this all over again? No I don't.

    As it is now I feel drained before I even start. Do the DWP want to see me in my grave 10/15 years before my time?
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @Yadnad it does seem that way sometimes doesn’t it :( 
    Such a sorry state of affairs in this country today.
    I was actually very near giving up myself this last time. 
    I only carried on as my friends kept telling me not to give in. 
    I know how you feel. Most disabled people these days do too!
    They treat us all badly I think. Almost every single person I’ve come across from the disabled community has had similar experiences. 
    It can feel so overwhelming for regular people to go through (like I did before my own illness struck).
    My Neurologist and GP have both written to the DWP on my behalf to ask why they expect people with brain injuries to gather evidence themselves. They both know we’re not capable, often, to do these sorts of things! 
  • kami24kami24 Member Posts: 345 Pioneering
    They just want to cut the amount being paid out they probably have targets because they gave me 10 points last year ( bpd and ocd) but this year only 2 points after review even though no changes
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @kami24 how frustrating for you! 
    Nothing these days surprises me :( 
  • lisabrazil80lisabrazil80 Member Posts: 85 Connected
    my mr letter come tho today got turned down again I do up set I got to go though to court with pip now I hot a prolapse which is dtoping me pooing I piss my self with out noing I git mental health problems I just can not take much more I got rent arrears it killing me all the stress pls shed some light on thus for me
  • kazbarkazkazbarkaz Member Posts: 4 Listener
    I am struggling to make sense I was awarded pip for my 17yr old last may -he started having really bad seizures in July they come on without warning and has been diagnosed with mylonic tonic type seizures he’s had 12 since ,however I’ve notified pip about the change and they’ve stopped it ,,,, it’s now at the mandatory stage I don’t no what to do ,,,, can anyone give me advice please xx
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @lisabrazil80 and @kazbarkaz It sounds like you’d both benefit from some type of advocacy service. Here’s a few suggestions;
    - Citizens Advice Bureau, they help with DLA and PIP problems.
    - www.benefitsandwork.co.uk , this site is a huge help and explains all aspects of DLA, PIP and ESA. Right from application to Tribunal Appeals.
    - FightBack for Justice (Facebook), again, this organisation are made up of previous DWP employees and lawyers. They can do most of the work for you and will even represent you at the Appeal and Tribunal stage, in person! (a charge applies as they aren’t government funded).

    Just a few suggestions. Hope you can both get the help you so desperately need!

  • kazbarkazkazbarkaz Member Posts: 4 Listener
    Do I contact fight back for justice through Facebook please ...I feel like just giving up I knew from 4 my son had problems but was always told he's lazy ..took til he was 13 before having a diagnosis thank you for replying xx
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @kazbarkaz yes. Just search for them and you can then give them a call or email x
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
  • sue66sue66 Member Posts: 124 Pioneering
    OMG this is all so terrible to read. Talk about emotional and mental cruelty. Im lost for words to be honest.  Best of luck to all of you that choose to continue to fight and i can understand those who give up as well .It seems the time factor between re assessments is getting shorter for many. 
    And the fact one can lose it all on following assessments when clearly they have got no better or even worse since last time they were  assessed im asking a big how and why? 
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    sue66 said:
     
    And the fact one can lose it all on following assessments when clearly they have got no better or even worse since last time they were  assessed im asking a big how and why? 
    I too wondered about that. I came to the conclusion that the assessor has no idea what the decision was last time and treats every face to face as a completely new claim. 
    However I am surprised that the DWP, who do know your PIP history, allows this to happen. Surely they would look at the recent report that says that you have some issues but none of them fit any of the descriptors  and compare it with what happened last time around. Any concerns should then be put back to the assessor to comment on.
  • kazbarkazkazbarkaz Member Posts: 4 Listener
    Thank I all for you're support.. my so has asherges n epilesy amongst other issues he deserves help x
  • kami24kami24 Member Posts: 345 Pioneering
    So they have turned down my reconsideration so please can i ask what do you send for an appeal as i have been on p.i.p 2 years and haven't appealed before. I have bpd. What do I post to the HMCTs?
  • WaylayWaylay Member Posts: 915 Pioneering
    My assessor used my last assessmemt report as evidence. It was set aside by the Tribunal, so this is ridiculous! ****. Elbow .
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    kami24 said:
    So they have turned down my reconsideration so please can i ask what do you send for an appeal as i have been on p.i.p 2 years and haven't appealed before. I have bpd. What do I post to the HMCTs?
    You'll need to fill in the SSCS1 form. You'll also need a copy of the MR decision letter, without this the Tribunal will refuse your appeal. You have 28 days to send this, any evidence you want to send can be done at a later date. As long as it's sent within 10 days of your hearing date, it's fine. Waiting times for Tribunals are huge so expect several months waiting...at least. Good luck.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @kami24 The clerk of court told me to send in ALL the information and evidence that I had relating to what I disagreed with. From the start of my illness (which was 4 years prior to my appeal). I did that and the decision was changed even before it got to the Tribunal stage. 
    The DWP had to reassess their views of me.

    At the end of the day a Tribunal is a Court of law. If you have evidence, that will hold up in court. The DWP would have to provide evidence that you can do the things you’re saying you can’t. 
    Thats why most appeals go in favour of the claimant. 
    The DWP don’t assess us correctly!
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    Waylay said:
    My assessor used my last assessmemt report as evidence. It was set aside by the Tribunal, so this is ridiculous! ****. Elbow .

    I had that too. With the re-assessment forms I enclosed the previous decision letter from the DWP. the report summary from ATOS and the revision award from the DWP (the complete history of the assessment 2 years previous).
    They ignored the revision and quoted the original decision when I failed.
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @Yadnad, what a blimming cheek! Just typical :( 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Question - I won my tribunal and will probably get a review form in a few months time. Should I send a copy of the tribunal report with the PIP review form, when I get it?
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @susan48 it certainly wouldn’t do any harm! My friend is at that stage now and she didn’t include her tribunal report. They’ve removed her award now so she’s having to appeal again! :( 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @susan48 it certainly wouldn’t do any harm! My friend is at that stage now and she didn’t include her tribunal report. They’ve removed her award now so she’s having to appeal again! :( 
    Thanks @SunshineLou, it’s ridiculous we have to go through all this. Next time in not appealing, I can’t go through that again. Good luck yo your friend though 
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    edited June 2018
    @susan48 thanks honey. She didn’t want to do it again either but none of her family or friends will let her loose what’s she’s entitled to!
    If it helps..  you can get an advocate to help you. There’s a group called FightBack for Justice. They have a website and are on Facebook. 
    They help with all aspects. They even do all the paperwork and take you, in person, to the actual tribunal hearing if needed.
    They do charge for the help but altogether it’s only a months worth of PIP in value.

    I know a few people who they’ve helped and speak very highly of them. They’re made up of previous DWP employees and solicitors so they know all too well what to do at every stage.
    It takes some of the stress away.

    Its such a sad state of affairs that disabled people today, in this ‘fair’ country, have to fight tooth and nail to prove themselves to be disabled. :( 

    I know how you feel though. If my friends hadn’t persuaded me to appeal I’d have given up myself! x 
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    Sorry to repeat myself guys. Brain injury :( memory is so bad I don’t remember answering other comments above. 
    Oops!
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    susan48 said:
    Question - I won my tribunal and will probably get a review form in a few months time. Should I send a copy of the tribunal report with the PIP review form, when I get it?

    As I have said above, my case never went as far as a Tribunal - the DWP changed it at MR. So to explain to the assessor and the decision maker what the previous history was I sent them copies of everything. They ignored the MR decision and concentrated only on the first failure decision!
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    susan48 said:
    @susan48 it certainly wouldn’t do any harm! My friend is at that stage now and she didn’t include her tribunal report. They’ve removed her award now so she’s having to appeal again! :( 
    Thanks @SunshineLou, it’s ridiculous we have to go through all this. Next time in not appealing, I can’t go through that again. Good luck yo your friend though 

    You are the same as me - I gave up as it was really getting me down. Although just under £200 a week worse off but the relief is well worth it.
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    edited June 2018
    @Yadnad I think you mean per month, not per week. The max award per month is about £550.

  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    @Yadnad I think you mean per month, not per week. The max award per month is about £550.


    No, £141.10 PIP + Guaranteed Pension Credit (because of the loss of the disability premium and the Carers Allowance) - £54.00

    Total per week lost £195.10

    As well as the 100% Council Tax relief which was based on receiving Pension Credit.

  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    edited June 2018
    @Yadnad, sorry, I assumed you were talking about PIP. Not all other related loses. My misunderstanding. Good that you can afford to loose all that and still be ok though!
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    edited June 2018
    It was all a question of the worst of two evils.
    Appealing would be OK on it's own, I have already submitted the evidence that supports enhanced for both mobility and care - in fact it is the same evidence that was sent to the DWP for the first and second MR where they accepted it and changed the award to ERC & ERM.

    It's the thought backed up by what has already happened to me in the past 5 years (three PIP re-assessments - only get 3 year awards, reviewed after 2) of having to have this fight with the DWP every 24 months for the rest of my life. At 70, my health won't improve but the DWP think otherwise. I just can't face that and the stress that comes every time leading up to the face to face assessment.

    It isn't good losing that money, in fact it could come in very handy but as I have said peace in my mind is just not worth it.  
  • jtaylorjtaylor Member Posts: 2 Listener
    Hiya does anybody no what they are like with epilepsy I had my first assessment today I think it went ok my key worker with me also how long til I hear bk and wens it back dated from 
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @Yadnad you’ve got to do what’s best for you. We’re all in the same boat though (well...I was until a few weeks ago). I know how you feel. I wish I could do something to help you though. I hate injustices!

    @jtaylor they should get back to you within about 6 weeks. They do have a backlog at the moment though so it could be a little while longer (mine was actually 4 weeks though).
    They backdate the award to the day you claimed. Not sure how they deal with epilepsy. 
    If you don’t get the award you think you should, do ask for the report that they did at your face to face. That way you can see what they said. Often they don’t include important information and have even been found (in court) to have lied about claimants!
    Good luck! x
  • WaylayWaylay Member Posts: 915 Pioneering
    *rants* ARGH!!!!
  • disabledkenny1disabledkenny1 Member Posts: 45 Connected
    I had my DLA stopped in 1997 took to 2001 to get it back with help from a solicitor, they awarded me a new motablety car & a manual / electric wheelchair with a lift onto the roof & 3 days later took it away because I tried becoming self employed but had a major stroke then fractured my middle & lower vertebra bed ridden for 3 years needing care & paying for it when only getting £45 a week got in loads of debt. 
    From my experiences & my friends I advice you to contact CAB & they will allocate you a disabled advocate to help & support you through the appeal process, I agree with everyone that it happening all over the country. I was awarded PIP straight away 6 months ago.
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    edited June 2018
    I had my DLA stopped in 1997 took to 2001 to get it back with help from a solicitor, they awarded me a new motablety car & a manual / electric wheelchair with a lift onto the roof & 3 days later took it away because I tried becoming self employed but had a major stroke then fractured my middle & lower vertebra bed ridden for 3 years needing care & paying for it when only getting £45 a week got in loads of debt. 
    From my experiences & my friends I advice you to contact CAB & they will allocate you a disabled advocate to help & support you through the appeal process, I agree with everyone that it happening all over the country. I was awarded PIP straight away 6 months ago.
    I lost my DLA in 2004 due to being in hospital for over four months  during which time they had issued a review application which I never received and obviously never returned. It took me until 2011 before I was fit (mentally) to deal with it.

    When I advised them where I had been- half the time in HDU and what had happened they just replied saying that I should have appointed someone to deal with my affairs for me - ummm and how did they suppose I could have done that - no answer from the DWP! 
    Seems that being in hospital in a life and death struggle is no excuse when it comes to the DWP.
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @Yadnad sad but true. They love to knock you while you’re down!
    When I was first in hospital I was in a coma for 3 weeks, HDU for another 2 and with a brain injury amongst others I couldn’t think for myself. They still stopped my benefits (I was a full time carer then for my son), they also threatened us with eviction as my Housing benefit had been stopped etc etc... My family, who had to take on my children for me couldn’t talk to them as they didn’t have my permission. It was all a huge mess!
    I had to get a charity in to see me and sort through it all. That was while I was still an inpatient and desperately trying to get my newly damaged brain around the fact that I’d never be the same again!
    All I’ve just said is actually just glazing over the facts too. If I went into more detail I’d be typing a book!
    Sickening how we can be treated! :( 
  • [Deleted User][Deleted User] Posts: 0 Listener
    LDW said:
    i changed from dla to pip 2yrs ago I had a right old time of it, they denied my claim and took my car from me, they told terrible lies about my home consultation, I appealed and was successful and was awarded higher rates on both components, so now to my surprise here we go again ivied filled in a review form to see if my circumstances have changed, and I've got to have another home consult, I just hope they're not still using Capita as they were terrible. All of this stresses me out which is no good for my health but I don't think they care. Is anyone else having this problem again ?

  • [Deleted User][Deleted User] Posts: 0 Listener
    Well done for winning your appeal I know all about the lies they tell when I was on incapacity benefit they stopped it 12 times went to the tribunal won 11 in a row on the 12th time I made 1 mistake took me off been on jobseekers ever since now they have stopped my DLA applied for pip 0 points as usual more lies now they have stopped my disability premium for no reason going to fight the 2 of them sent them letters they know I won't stop until I win 
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
  • WaylayWaylay Member Posts: 915 Pioneering
    @jim1074 You only get the premiums if you're getting PIP.
  • disabledkenny1disabledkenny1 Member Posts: 45 Connected
    SunshineLou sorry to here of your troubles, they have no consideration for people in very bad health expecially when in a coma in hospital, I hope you are on the mend now, contact CAB & they will allocate you a disabled advisor as I got one a few years ago when having problems with finacial payment for the carers with social services, I feel its this government they only intrested in those that can affod things not for the poor or bad in health & unable to work it makes me annoyed, I am on facebook if you ever want to chat as Kenny Fletcher
  • disabledkenny1disabledkenny1 Member Posts: 45 Connected
    Hi jim1074 this is happening a lot with people a group that can help you out on facebook https://www.facebook.com/groups/1661571727483856/ I am a member also if you contact CAB asap to get a disabled advicate arranged to support you through the process, always think of what you are like on your very worst day & say you are like that daily, hope this helps you Jim, Kenny.
  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @disabledkenny1 Thanks for that, really good of you. All of my problems have finally been sorted out though. It did all take a while and I had plenty of help. 
    I was lucky enough to have a friend that worked as an outreach worker for people helping them with this kind of thing so he sorted most of my problems and told me where to get specific help. 
    I had the help of a charity and more recently advice from the benefits and work website and also FightBack for Justice.

    I also have extremely supportive professionals involved in my care. My GP, Neurologist and Social Worker have all been very keen to help as much as possible.
    Great advice and thanks again x
  • disabledkenny1disabledkenny1 Member Posts: 45 Connected
    Thats good Lou you lucky my GP & consultants are rubbish here in Oldham I feel the NHS is going down hill as having problems getting appointments with pain clinic physio therapist waited 4 months between appointments & trying to get the GP to refer me to a rheumatoligist, a pressie for you a hobby of mine adding text to tags, if you want any let me what type like male female or creddy (bear)


  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    Hi jim1074  always think of what you are like on your very worst day & say you are like that daily, hope this helps you Jim, Kenny.
    No never!!! Saying that your worst day is every day is simply fraud unless it is true.
    Give the good, bad and ugly times instead

  • SunshineLouSunshineLou Member Posts: 93 Pioneering
    @Yadnad that is what people used to be told to do.
    I know because I’ve been dealing with disabled assessments one way or another for the last 12 years.
    When I was first applying for DLA for my son when he was 3 years old, his own social worker told me to do that, as did his outreach worker.
    PIP was brought in to stop all that I think and the criteria for qualifying is now soooo much tighter. Basically PIP is a money saving exercise from the government. 
    Just a massive shame that because they’re assessing people wrongly it’s actually saved tax payers nothing. Or barely anything.
    You have to now say how you are on most of your days. A minimum of 4 per week qualifies as most days.

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