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Anyone else had ADEM? (Acute Disseminated Encephalomyelitis)

I suffered from ADEM (Acute Disseminated Encephalomyelitis) in 2014. It’s a very rare Neuroimmune disease. Extremely similar to MS but a severe one time attack.
I have Brain and Spinal cord lesions with extensive Myelin damage.
Wondering if there are any other members who were affected by the same condition.
ADEM is most prevalent in children. Approx 4 in a million. As an adult sufferer, I’ve been told, I’m about 1 in 4 million.
Its also grouped with other conditions such as TM (Transverse Myelitis), NMO (Neuro Myelitis Optica) etc....
I have Brain and Spinal cord lesions with extensive Myelin damage.
Wondering if there are any other members who were affected by the same condition.
ADEM is most prevalent in children. Approx 4 in a million. As an adult sufferer, I’ve been told, I’m about 1 in 4 million.
Its also grouped with other conditions such as TM (Transverse Myelitis), NMO (Neuro Myelitis Optica) etc....
Replies
There are lots of users on the Community with rare conditions and some may even have simialr experiences to you. I'm going to have a nose through some conversations now to see if I can find any posts/discussions about ADEM
Have a lovely day
Not too fussed by that though. It’s just nice to have a place where people understand about disabilities!
Thanks very much for your replies
Enjoy getting to know the community and let me know if I can ever be of any help x
Really good of you. Im
already a member of that group but there’s so few people on there.
I was a member of a Facebook group but had to leave. Unfortunately people with brain injuries can be quite hard to deal with sometimes.
People often had a go at me for comments I made. It’s like they took them personally and didn’t actually understand my points.
Such a shame but oh well.... x
Scope
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Matt