Hi, my name is arleen! — Scope | Disability forum
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Hi, my name is arleen!

Comments

  • gnmeads
    gnmeads Member Posts: 187 Pioneering
    Hi welcome to the Scope community can we help you in any way?
  • arleen
    arleen Member Posts: 7 Listener
    I am like looking for others in similar situation.  It’s lonely here!
  • littleruthie123
    littleruthie123 Member Posts: 495 Pioneering
    Hi Arlene. Nice too meet you .).it can be a lonely place in a disabled persons world. I so get that .it does help I feel chatting too others in similar situations ..and we all share common problems and challenges. Hope you can get too no others. I'm ruth from Nottingham. Anything I could help you with or just a chat .).your not alone x
  • arleen
    arleen Member Posts: 7 Listener
    Well, that’s so nice of you! My whole world changed when I fell down the stairs and suffered a spinal cord injury. I was always active and now I’m in a power chair. My husband is my main caregiver although we do get outside help for two hours in the morning and evening.
  • littleruthie123
    littleruthie123 Member Posts: 495 Pioneering
    Ah it's very hard too cope with disability ,especially when we were fit and healthy beforehand .i struggle with being having too have a completely different lifestyle.i used too be very hit and healthy .always working at the gym and socialising .in 2014 I had the breast cancer diagnosis ,such a shock as not really in the family and I was a healthy 41 year old .i had three years of some intense treatment .i thought after it all I would be back too my old life .but no have disabilities related too the cymo .i am in remission though .so I understand how hard it is too adapt  and miss the old us 
  • arleen
    arleen Member Posts: 7 Listener
    Congrats! Remission, that’s the word you want to hear?
    im confused as to why you sought out a disability group.  What are the disabilities associated with all that treatment? If you don’t mind my asking. My mother had a double mastectomy.  It’s a rough road, I know.  But it wasn’t a disability, just cosmetic.
  • littleruthie123
    littleruthie123 Member Posts: 495 Pioneering
    I've never sought my cancer too be a disability. My cancer was very aggressive and had too too spread so had three years hard treatment and ops .thus left me with perinal nurapathy  really bad in both arms and legs .osteoarthritis .and fybromalagia and fatigue. !
  • arleen
    arleen Member Posts: 7 Listener
    Wow, now I understand.  What an ordeal. I’m so glad you’re on the other side of it now.
  • littleruthie123
    littleruthie123 Member Posts: 495 Pioneering
    Thank you ..also the mental health side of it all has been very hard ..been waiting have for counciling for 18 months .how is our mum Eileen 
  • littleruthie123
    littleruthie123 Member Posts: 495 Pioneering
    Your mum .have still got cymo brain also lol!!

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