Info and advice about Developmental Dyspraxia? — Scope | Disability forum
Find out how to let us know if you're concerned about another member's safety.

Info and advice about Developmental Dyspraxia?

Jomiranda
Jomiranda Member Posts: 21 Connected
Just joined hi there, hope to find lots of info & practical advise, with anyone with knowledge on Developmental Dyspraxia(Autistic Spectrum Disorder) Also Recovering phsychosis. Son aged 
28 lives Independantly. I will pop back on site off & on to Chat as i'm Working part time. 

Comments

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,799 Disability Gamechanger
    Hi @Jomiranda, and a warm welcome to the community! It's great to have you here.

    I'm tagging in @parkes83, @susieq58 and @kellyc6 who have discussed similar issues on the community before and will hopefully be able to offer some guidance.
  • Jomiranda
    Jomiranda Member Posts: 21 Connected
    Hello & Thank you Pippa
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,799 Disability Gamechanger
    Hi @Jomiranda, in the meantime, the Dyspraxia Foundation website has some really good support and guidance which may be worth a look at!
  • Cat39
    Cat39 Member Posts: 30 Courageous
    I have dyspraxia, I was diagnosed at a pretty young age and would be happy to chat with you about it,  offer advice or anything really.
    hopefully I can be of some help to you.
  • Jomiranda
    Jomiranda Member Posts: 21 Connected
    Oh thank you v much. I will get back to you later if ok. Moving my Son into a Flat at mo. X
  • Jomiranda
    Jomiranda Member Posts: 21 Connected
    Hi Cat39 my Son has phoned me yesterday upset/crying saying whats the point in waking up everyday, he'd had a falling out with one of his two friends. We picked him up as worried he was So Low. Today he is in much better spirit & sorted out with his friend too. Was wondering if & how to get a Buddy/Support worker? 
    The Jobcentre want him to prepare for Working & Do Job Club for Universal Credit. Say we Need a Doctor's Note Fit for Work or Not & why. Feels like No-one Understands what its like for Him & Me, So Much Stress to ask these things of my Son & No Support either.
  • Cat39
    Cat39 Member Posts: 30 Courageous
    Jomiranda said:
    Hi Cat39 my Son has phoned me yesterday upset/crying saying whats the point in waking up everyday, he'd had a falling out with one of his two friends. We picked him up as worried he was So Low. Today he is in much better spirit & sorted out with his friend too. Was wondering if & how to get a Buddy/Support worker? 
    The Jobcentre want him to prepare for Working & Do Job Club for Universal Credit. Say we Need a Doctor's Note Fit for Work or Not & why. Feels like No-one Understands what its like for Him & Me, So Much Stress to ask these things of my Son & No Support either.
    I can't give you much advice about support workers but can link you to places that can help:
    https://www.mind.org.uk/information-support/legal-rights/health-and-social-care-rights/#.W0xviWjTVTt

    https://www.nhs.uk/conditions/social-care-and-support/

    They may or may not be of use to you and your son, maybe other people here have experience with them who might chime in with there experiences.
    If you don't manage to get him one maybe a pet will help, I've had pets my fully life up until recently and I've always found them to be calming and helpful. Do your research before hand though and see if it's right for your son.

    Maybe a trip to your GP might be a good idea, they can advice with this better than I can and they might be some help.
  • Jomiranda
    Jomiranda Member Posts: 21 Connected
    Yes thank you, booked Gp & going to ask for a Health Social Care Assesment, Cognitive behaviour, hope for a Buddy/Befriend him Supporter.
  • Jomiranda
    Jomiranda Member Posts: 21 Connected
    Has a Dog already.
    Good news we are now able to Bid on bcp home choice, nothing yet in area wanted, but its a start. OT and Therapy & PA once Son has moved in. Hope he can cope with a move, has to be though. Thank you for your comments everyone.
  • Tori_Scope
    Tori_Scope Posts: 6,632

    Scope community team

    Thanks for the update @Jomiranda :) It's great that things are moving forwards!

    How's your son doing? Did he manage to access some therapy or counselling?
    Online Community Coordinator, she/her

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us how we're doing? Complete our feedback form now.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser Posts: 577 Pioneering
    Hi @Jomiranda

    How are you today? Did you find all of the information and advice you were looking for? Glad to hear about your progress  :)
    I am a Scope volunteer. I have knowledge about the following subjects, gained through professional settings such as high level education or employment: autism spectrum disorder, dyslexia, down's syndrome, social, emotional and mental health difficulties, assistive technology and education. Pronouns: She/her.
  • Jomiranda
    Jomiranda Member Posts: 21 Connected
    Hi there aw thats really good, my q my 31/32yr old Son doesn't learn the way others do, he has a picture memory & can learn by watching & doing, repeat. His reading isn't bad, its the Understanding sometimes & explaining verbally to another person. Maths & English needs to get up the grades some how. He loves Marvel, DC & is Self taught good at Music making, playing, singing, compose. Doesn't read music notes & didn't want t. Getting better with Q Base. How & who can teach him Maths & English to a good standard to get into possibly a 2D in Animation Course at Bournemouth University when he is ready.
  • Jomiranda
    Jomiranda Member Posts: 21 Connected
    Therapy form filled out waiting now, has his regular appointment today, if I can get him to start moving lol. 
  • Libby_Scope
    Libby_Scope Posts: 158 Courageous
    Hi @Jomiranda :) 

    Thanks for coming back and updating us all on your son's progress.

    It's lovely to hear that he is so passionate about music, composing and all other creative things! He sounds very talented. It's exciting that you're potentially thinking about university for him as this will be a positive step for his wellbeing and career :) It might be worthwhile looking into private Maths and English tutors in your local area. I used to have Maths tutoring lessons as I struggled at school with numerical learning. This might be a useful website for you to search online for different Maths and English tutors. The website is called MyTutor and the link can be found here. This is an online tutoring service, but I'm sure there are plenty of tutors who are still doing face-face lessons too.

    I hope the therapy appointment today goes well for your son :) 

    Libby

    Online Community Information Coordinator
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Did we do a good job at answering your queries or concerns? If so, complete our feedback form now. 

Brightness

Complete our feedback form and tell us how we can make the community better.