PIP, DLA and AA
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Help needed! Changing from DLA to PIP

sahara01sahara01 Member Posts: 31 Connected
edited July 2018 in PIP, DLA and AA
I recently received my letter to change from .DLA to PIP
I've been trying to do research on the qhesi but am xonfucon about a couple of questions
I have 26 chronic medical conditions including a degenerative slipped disc im In severe pain constantly it never goes 
I dont know how many metres to put down on my form as I'm in pain when I'm not walking but push myself to walk 
Do I put less than 20m due to being in pain constantly or 20 to 50m
All this is really stressing me out.bad enough I have another op on the 16tv

Replies

  • affii1993affii1993 Member Posts: 97 Courageous
  • GoForItGoForIt Member Posts: 44 Connected
    Put less then 20meters. Then explain in box.please make sure you take someone with you to your assessment,better still record it. Best wishes
  • wilkowilko Member Posts: 2,284 Disability Gamechanger
    Request a taxi to and from the acessment Center you pay upfront then claim back afterwards. Don't rush or feel intimidated moving from waiting area to interview room. When asked to do certain leg arm movements do not try to comply with the requests if it wiil, does cause you pain or discomfort or worsens your condition. Take someone with you and most definitely put lees than 20 meters on your applecation form, and add you are in pain all the time. Keep posting and update us on your PIP acessment.
  • sahara01sahara01 Member Posts: 31 Connected
    Thanks guys for the replies
    I'm scared to death of losing my mobility vehicle especially as I can't use public transport (can't do stairs) and which I've had since the mid 90s
    As mentioned im In constant pain but "push through pain to walk" sometimes more than 50m.vht only because Im pushing myself and trying to igbore the pain!!
    At least with DLA it used to say "how far can you walk without being in pain" or words to that affect which of course was not at all!!



  • sahara01sahara01 Member Posts: 31 Connected
    Oh and meant to say I will be requesting a home visit and getting a letter from .my GP in support of this 
    Really stressed out to the max 
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    The criterion is how far can you walk before you need to stop and rest for a few minutes because of pain, stiffness or fatigue.  This needs to apply 50% of the time, i.e. at least 4 days a week.  Don't overthink it.
  • sahara01sahara01 Member Posts: 31 Connected
    I'm in severe pain from head to foot all the time
  • sahara01sahara01 Member Posts: 31 Connected
    But push myself to walk but bcoz of the pain, not to an acceptable standard
    Struggle to use a stick as it puts more pressures/Pain on my body
  • lifeonwheelslifeonwheels Member Posts: 4 Listener
    Poor you, Sahara! But it's really not worth being stressed out 'to the max'. My f2f was a long time ago but advice given to me from what I remember - yep, have a companion with you for a variety of reasons - they can understand the questions better than you may be able to if you're stressed and therefore not able to focus, they can 'fill in the gaps' including if you disappear to use the loo (don't suffer!!), also, it's reassuring to have someone 'on your side'.
    Afterwards, ask for a copy of the report to be sent - it will probably arrive before the decision and so you will know more what to expect and whether or not to appeal.
    Please don't have sleepness nights. I feel that decisions are fairer now then they used to be! I hope I'm right.
    Good luck x
  • YadnadYadnad Posts: 2,856 Member
    I feel that decisions are fairer now then they used to be! I hope I'm right.
    Good luck x
    Is that actually the case?? The assessment reports and the decisions that I have had in the past 5 years were totally wrong, So wrong that I went from 0 points to enhanced Mobility & Care twice following an MR. The third decision this year was also 0 points but this time they refused to change it at the MR stage.   
  • sahara01sahara01 Member Posts: 31 Connected
    Thanks lifeonwheels
    I'm requesting a home visit and getting a letter of support from my doctor 
    After my op on 16th it will take me several weeks to recover so won't be able to go anywhere 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Yadnad said:

    Is that actually the case?? The assessment reports and the decisions that I have had in the past 5 years were totally wrong, So wrong that I went from 0 points to enhanced Mobility & Care twice following an MR. The third decision this year was also 0 points but this time they refused to change it at the MR stage.   
    Almost every thread i read i see negative comments from you, with your life story. People do claim PIP successfully and there's no need to take such a negative approach, especially for those that are scared to death already.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • lillybellelillybelle Member Posts: 458 Pioneering
    I claimed pip successfully.
    so don’t worry too much.
    just remember it’s is not the actual medical diagnosis that they score you on. It’s how your daily life is affected by it.
    good luck
  • sahara01sahara01 Member Posts: 31 Connected
  • littleruthie123littleruthie123 Member Posts: 490 Pioneering
    Hi Sahara god its nerve wracking isent it .just had my home assessment. My son was here he thought it went well .hard explains fluctuations in conditions .I do go out once a week with door too door transport .and was honest about it ..in general I find home visits better but had too argue the toss about it ..felt like I could of said more but fatigue was setting in .will let u no .I pray she's an honest asseser. I'd say try  not too worry but we all do lol .
  • littleruthie123littleruthie123 Member Posts: 490 Pioneering
    P.s who do I ring for report please?.I can't remember? 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    P.s who do I ring for report please?.I can't remember? 
    PIP but wait until middle of next week because it can take this long to receive both reports back and they won't send you a copy until the receive both. Good luck.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • littleruthie123littleruthie123 Member Posts: 490 Pioneering
    Thanks poppy 
  • [Deleted User][Deleted User] Posts: 142 Listener
    Yadnad said:

    Is that actually the case?? The assessment reports and the decisions that I have had in the past 5 years were totally wrong, So wrong that I went from 0 points to enhanced Mobility & Care twice following an MR. The third decision this year was also 0 points but this time they refused to change it at the MR stage.   
    Almost every thread i read i see negative comments from you, with your life story. People do claim PIP successfully and there's no need to take such a negative approach, especially for those that are scared to death already.
    I agree, I read people’s stories and it scares me so much. 
  • GoForItGoForIt Member Posts: 44 Connected
    If you want a copy of your medical assessment, you need to ask dept of work and pensions dealing with your pip claim 
  • YadnadYadnad Posts: 2,856 Member
    Yadnad said:

    Is that actually the case?? The assessment reports and the decisions that I have had in the past 5 years were totally wrong, So wrong that I went from 0 points to enhanced Mobility & Care twice following an MR. The third decision this year was also 0 points but this time they refused to change it at the MR stage.   
    Almost every thread i read i see negative comments from you, with your life story. People do claim PIP successfully and there's no need to take such a negative approach, especially for those that are scared to death already.
    When replying to a comment that PIP decisions are seemingly now more fairer than they used to be I have found that not to be the case based on factual evidence. Now if you call that a negative approach then yes I am guilty me lady!
    I'm not disputing that the majority of PIP claimants do in fact get an easy ride and are awarded what they believe to be the correct decision - the stats do in fact prove that.
    There are others that find difficulty at every turn and have to fight tooth and nail for what they get.
    The answer does seem to be that those who are happy with their decision manage to get professional welfare advice and support. Those that can't access any seem, like I have been, given the run around by the DWP. 
    Maybe you had professional advice and help or maybe you understand a lot more of how the PIP system works with your daughter's claim. I didn't and have never had that sort of advice or help - hence why I feel so negative sometimes.

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Yadnad said:


    The answer does seem to be that those who are happy with their decision manage to get professional welfare advice and support. Those that can't access any seem, like I have been, given the run around by the DWP. 
    Maybe you had professional advice and help or maybe you understand a lot more of how the PIP system works with your daughter's claim. I didn't and have never had that sort of advice or help - hence why I feel so negative sometimes.

    I did get help to fill out the forms yes from a local disability advice centre. However, the person that did the forms had the worst knowledge of PIP i've ever seen. The forms were filled in with the most limited info ever. He came to my home and i was sat right next to him. I gave him all of my daughters info yet hardly anything was put down. I thought i would have received the form back to post it myself and would add more info before doing so. Nope, the person told me it was their procedure to take it with them, photo copy it and send it their self. I panicked because i knew how badly the form was filled out. He took the evidence i had with him.

    I thought because it was filled out so badly it would have gone against her but the evidence i sent was really good. I highlighted all the areas in the evidence that pointed to the descriptors because i thought it would make it stand out more. What i sent was from her college, CAMHS and the learning disability team. During her assessment i was able to answer all of the questions because i'm her appointee, the HCP was very nice. My daughter was dressed nicely, as always, with her hair perfect, it didn't go against her as a lot of people think.

    They also contacted 2 people, 1 from college and another from learning disability team just to confirm a few things, i was told. Yes, that's rare.

    I really do believe that if the form had been filled out with more info then she could have had a paper based assessment. Getting help from professional people as you stated doesn't always give the claimant a better chance of success, im certain that if it wasn't for the evidence i sent she would have been refused.

    I'll be filling out the review forms myself and making sure that i put down everything that she needs help with and including all the extra medical evidence i have received in the last 6 months.

    Being so negative really doesn't help people who are already scared to death. I realise you're angry but you keep repeating your story on so many threads, is there really any need to keep doing that?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • sahara01sahara01 Member Posts: 31 Connected
    I agree with Poppy negative comments don't help in the slightest I'm already worried sick as I can't use public transport 
    As previously mentioned I have over 26 chronic medical conditions but still worried
    I tried to get professional help for when my form arrives which should be any day now but will have to fill it in myself (decided in the end to do that anyway) as all their appointments are in the mornings and I struggle mornings which is why all my hospital appointments are always in the afternoons 
    Got an echo tomorrow in preparation for my operation on 16th 
    All very stressful
  • sahara01sahara01 Member Posts: 31 Connected
    Now on top of everything else I've been informed this morning by the diabetic eye clinic I may have a possible cataract in left eye
    Waiting to see a specialist
  • YadnadYadnad Posts: 2,856 Member



     He took the evidence i had with him...….I thought because it was filled out so badly it would have gone against her but the evidence i sent was really good. I highlighted all the areas in the evidence that pointed to the descriptors because i thought it would make it stand out more.....im certain that if it wasn't for the evidence i sent she would have been refused.
    In your daughter's case, it came down to your knowledge of how PIP is awarded. You knew what evidence to send in and how to link it to the descriptors.
     You accept that the claim for your daughter actually hinged on how you presented the right evidence.


    Many like me, are completely flummoxed with how PIP works and what is the 'right' evidence. On top of that how do people accumulate this right evidence? Bearing in mind that there were restrictions up until this year set down by the DWP that all evidence should not be more than two years old, that any evidence previously sent in with an earlier PIP claim should not be resent with the review claim and that you (the claimant) when putting the evidence together should not go looking for it if it isn't readily to hand which includes asking the GP etc as there may be a cost involved.


    Personally I didn't have any evidence with the first PIP claim. At MR I asked my GP to put together a report as to my abilities, conditions etc to be taken from the various consultant's reports. This gave me Enhanced Care & Mobility at MR. For the second claim I still had no evidence as I had sent the GP report in previously for the first claim. I received no points. I told the DWP to look at the GP letter on their file which clearly was less than 2 years old and was still relevant. This they did and I went from 0 points to Enhanced Care & Mobility following the second MR
    As for the third review I once again had no evidence and because the GP report was now over 24 months old I pointed out that they could not accept it according to their rules. Obviously the third MR then failed.


    Having the knowledge that you have with regards to PIP actually gave you that edge over those that know nothing. 
     
  • littleruthie123littleruthie123 Member Posts: 490 Pioneering
    I understand what u mean yadead it can be such a complex the whole process. P.I. p .is went it alone on my second review and it showed in my points .I've learnt too try explain flutations more clearly .and have better knowledge of relevant evidence .
  • YadnadYadnad Posts: 2,856 Member
    I understand what u mean yadead it can be such a complex the whole process. P.I. p .is went it alone on my second review and it showed in my points .I've learnt too try explain flutations more clearly .and have better knowledge of relevant evidence .
    I gave up after 5 years of fighting the DWP for every PIP claim/review.
  • littleruthie123littleruthie123 Member Posts: 490 Pioneering
    Sahara your anxiety sound similar too mine .part of complex anxiety conditions. It certainly dosent help with all the worry .just wanted too say welfare rights can come out too you or help you through a phone call with anything your unsure off on your form .so please don't loose hope x
  • sahara01sahara01 Member Posts: 31 Connected
    I will be sending a letter from my GP and also stating that Im more than halph for them to contact my GP and all other hospitals I continuously attend but what other evidence do I need?
    Getting sick of this before my form even arrives 😪
  • sahara01sahara01 Member Posts: 31 Connected
    Happy not halph typo
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