New PVL dignosis — Scope | Disability forum
Find out how to let us know if you're concerned about another member's safety.
Read our community guidelines and our community house rules.

New PVL dignosis

annbann
annbann Member Posts: 1 Listener
in Start here and say hello!
My Grandaughter was born at 30 weeks and yesterday at 35 weeks was diagnosed with PVL. The family is of course devastated, especially my daughter and her husband. They are in the early grieving stage, the future is unknown and frightening . I am doing my best to support them but I would appreciate any advice and encouragement you can offer. I have been telling them that  they won't always feel this bad, that she will be the light of their life and will bring them so much joy. 
· Share on FacebookShare on Twitter

Comments

  • Richard_Scope
    Richard_Scope Posts: 3,106

    Scope community team
    Hi @annbann
    Thanks for your post and welcome to our community.
    Receiving a diagnosis can cause a range of emotions. From relief to being listened to and getting a diagnosis, to as you rightly say, a form of grieving. I'm going to include some information that I think will help.

    PVL Information
    New diagnosis so many questions


    We are always here to talk and offer support so please keep in touch.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
    · Share on FacebookShare on Twitter

Brightness

Categories

Complete our feedback form and tell us how we can make the community better.