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New PVL dignosis

annbannannbann Member Posts: 1 Listener
My Grandaughter was born at 30 weeks and yesterday at 35 weeks was diagnosed with PVL. The family is of course devastated, especially my daughter and her husband. They are in the early grieving stage, the future is unknown and frightening . I am doing my best to support them but I would appreciate any advice and encouragement you can offer. I have been telling them that  they won't always feel this bad, that she will be the light of their life and will bring them so much joy. 


  • Richard_ScopeRichard_Scope Posts: 2,733

    Scope community team

    Hi @annbann
    Thanks for your post and welcome to our community.
    Receiving a diagnosis can cause a range of emotions. From relief to being listened to and getting a diagnosis, to as you rightly say, a form of grieving. I'm going to include some information that I think will help.

    PVL Information
    New diagnosis so many questions

    We are always here to talk and offer support so please keep in touch.
    Specialist Information Officer - Cerebral Palsy

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