Waiting for appeal date
I have refractory epilepsy . I have been waiting for my appeal date since February 2018. I can’t tell you how much that man who assessed me had annoyed me . Apparently I was slumped in a chair . I was in fact trying to get comfortable as I had been recovering from 3rd degree burns on both legs due to spilling a kettle of boiling water over myself during a seizure. Basically my husband is my carer. Now they have said I don’t need to be watched 24/7 even though this has happened. So they stopped my living allowance, which also means my husband has had his carers allowance stopped. He had to give his job up to care for me . I have grand mal/ tonic clonic and absent seizures which I have no control over .