If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Hi, my name is Steph42!

Steph42
Member Posts: 1 Listener
Having fibromyalgia is hard. More so now that those who have always claimed to understand, have taken to questioning me after the randomness of flares and triggers has upset their plans a few times.
I don't mind ignorance , but if people say they "know" what I'm all about, and talk about how much they understand and care, it hurts when you realise they really really don't! I can't pick and choose when I'll have a flare. I can't guarantee I'll be well enough to attend something I've been planning for ages. And I certainly can't help it if I have used up all of next week's spoons in order to keep a promise or attend something I've looked forward to, and then need to rest for 2 weeks to catch up...or even end up flat on my back after.
Fibro sucks. But this is my life. It's who I am now. I make the best of every opportunity I possibly can, but I have priorities and have to choose my battles wisely due to the repercussions and aftermath.
Why are people so damn frustrating????
Gggrrr....
Ok rant over lol
Hi I'm Steph and I have 5 kids an amazing partner, and I recently managed to get qualified as a nail technician. I'm a strong independent fibro warrior with a big heart a busy brain and a body that can't always keep up.
Blessed Be xxx
I don't mind ignorance , but if people say they "know" what I'm all about, and talk about how much they understand and care, it hurts when you realise they really really don't! I can't pick and choose when I'll have a flare. I can't guarantee I'll be well enough to attend something I've been planning for ages. And I certainly can't help it if I have used up all of next week's spoons in order to keep a promise or attend something I've looked forward to, and then need to rest for 2 weeks to catch up...or even end up flat on my back after.
Fibro sucks. But this is my life. It's who I am now. I make the best of every opportunity I possibly can, but I have priorities and have to choose my battles wisely due to the repercussions and aftermath.
Why are people so damn frustrating????
Gggrrr....
Ok rant over lol
Hi I'm Steph and I have 5 kids an amazing partner, and I recently managed to get qualified as a nail technician. I'm a strong independent fibro warrior with a big heart a busy brain and a body that can't always keep up.
Blessed Be xxx
Comments
-
Hi @Steph42
Welcome to our community!
Congratulations on your qualification! You should be proud of yourself
I don't have fibro however battling different health issues over the past 2 and a half years I've learnt that some people just do not understand and it is incredibly frustrating!
I'm sure there are fibro Warriors here in the community who would be more than happy to share experiences and have a rant! You're not alone
AmiDisability Gamechanger - 2019
Brightness
Categories
- 55.3K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 160 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 840 Work and employment
- 600 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 302 Dating, sex, and relationships
- 269 Exercise and accessible facilities
- 22.3K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.8K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 705 Chronic pain and pain management
- 718 Rare, invisible, and undiagnosed conditions
- 774 Autism and neurodiversity
- 952 Mental health and wellbeing
- 314 Sensory impairments
Complete our feedback form and tell us how we can make the community better.