PIP, DLA and AA
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PIP claim

chizchiz Member Posts: 59 Courageous
edited August 2018 in PIP, DLA and AA
Hi iv never posted before but do read many posts .. iv just posted my pip forms , iv sent 7 letters from specialist which outline and give diagnosis .. some of these letters go back from  2012 to 2017 as in 2017 i was discharged as no further treatment can be done, i had a letter from social worker last week in support of my claim and that outlines all the help i need and the fact iv been under there services since 2011 .. where they helped me get mobility scooter and wetroom ...  i no longer live that house as we had to downsize because of my health, im currently on dla high rate indef.. from 2012 .. my disabilty is my back iv had 2 surgeries and am unable to sit stand or lie for long periods i scream with pain.. im on lots of medication .. and can honestly say im terrified of the whole process ... i travel lied down or on my knees if we ever manage to get me out.. i shuffle on 2 crutches and my back is bent forward as its to painful for me to stand upright .. the pains in my legs are horrendeous i cant even open them without almost crying..

Replies

  • Ami2301Ami2301 Community champion Posts: 7,172 Disability Gamechanger
    Hi @chiz

    Welcome to the community :)

    I am really sorry for what you're going through, my heart goes out to you.

    Pleass don't hesitate to ask the community anything.

    We are here for you

    Ami :)


    Community Champion
    Disability Gamechanger - 2019
  • Ami2301Ami2301 Community champion Posts: 7,172 Disability Gamechanger
    Hi @chiz

    Welcome to the community :)

    I am really sorry for what you're going through, my heart goes out to you.

    Pleass don't hesitate to ask the community anything.

    We are here for you

    Ami :)
    Community Champion
    Disability Gamechanger - 2019
  • Chloe_ScopeChloe_Scope Scope Posts: 10,662 Disability Gamechanger
    Hi @chiz and a warm welcome to the community! Thank you for taking the time to share this with us all. I am sorry to hear that you are in a lot of pain. I wish you the very best of luck with your PIP claim and please do keep us updated!
    Community Partner
    Scope

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  • chizchiz Member Posts: 59 Courageous
    Hi got a text from DWP saying theyve recieved my forms and i may need to see a hp for f2f , that was 13 days ago , anyone any idea how long i have to wait ? 
    Thankyou everyone 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,662 Disability Gamechanger
    Hi @chiz, glad to hear they have received your forms :) Depending on the backlog this can take between 4- 6 weeks :)
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    Scope

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    Complete our feedback form to help us to improve your community.
  • SmileygotwellSmileygotwell Member Posts: 30 Courageous
    Hi @chiz, your torment sounds horrendous, I do hope you find a measure of relief from wherever but just maybe the fact that you're in touch with many people here who 1. Believe you, 2. Recognise what you talk of, with a few that may well suffer similarly and 3. Might find it easier now to choose direction for assistance. 
    With my best wishes, I hope success comes quick for you.
  • Mumof2dsMumof2ds Member Posts: 148 Pioneering
    Hi there. 
    Firstly I am so sorry to read your story, and constant pain must be horrendous. Let's hope they can arrange a home visit under the circumstances, sure another member may be able to advise you on that one! Seems ridiculous putting you through so much ( as many members) for a face to face assessment, when you constantly struggle! 

    I am relatively new here too. 😊 Awaiting a F2F assessment also. 

    I sent my PIP off ages ago, they then sent me a letter saying I had four days until cut off to send forms back, and they hadn't received it! 

    Luckily I had sent tracked and signed, so advised them as to date and name received their end.

    They then said they would open an Investigation with her manager, and would send me a new PIP pack incase! But to ring them I case before I refilled everything out! 22 days my 1 at application was there somewhere, and the day my new forms arrived, I received a text saying:

     " 
    Thanks for sending us your 'How your disability affects you' form. We may need you to attend a consultation with a health professional before we make our decision. We'll contact you again if we do. Please call us if any of the details you gave us have changed." 

    They received my  application and signed for it on 19/06/18! But dated they started processing  it on 6/8/18! 

    Still nothing.

    I very much hope you get some joy soon, and they sort this out for you, sounds an absolute nightmare. So many horrendous stories from the community. 

    Good luck! P X 
    Politeness costs nothing, but goes a long way in life. 
     Always look out for each other. Be kind. 
     Hugs and smiles mean the world. XX 
  • chizchiz Member Posts: 59 Courageous
    Thankyou everyone for replying its really helpful to have people to talk to , such a shame where all in this flipping pip torment x
    I really hope we all get what we deserve without to much distress
  • chizchiz Member Posts: 59 Courageous
    Hi @Mumof2ds
    Please keep me updated of how you go as we same to be at the same place 😥
  • Mumof2dsMumof2ds Member Posts: 148 Pioneering
    Hi Chiz, 

    Will do. Good luck with everything there too. XX 

    P X 
    Politeness costs nothing, but goes a long way in life. 
     Always look out for each other. Be kind. 
     Hugs and smiles mean the world. XX 
  • chizchiz Member Posts: 59 Courageous
    Hi guys update ..
    Still no letter for f2f appointment its been 3 now x 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    There's no timescales to assessment waiting times, it all depends on backlog in your area. Good luck.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • chizchiz Member Posts: 59 Courageous
    Hi . Received a letter from atos i have an home appointment next monday .. i dont know if its good or bad to have home visit as iv just moved into this house and so far only had my walk in shower fitted , we had to sell our old house to many steps  to get to the door .. so no adaptions in place ... im lucky as my husband and children do alot for me and i have an alarm if i fall that contacts my husband ..
    Why am i so paranoid feel like im justifying my illness all the time 😏
    Thankyou for reading guys

  • chizchiz Member Posts: 59 Courageous
    Its took a little over 3 weeks to get the appointment letter from receiving the dwp text saying theyve received forms x 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,
    Having a home assessment doesn't mean anything other than they agreed to do a home assessment. Try to answer those questions with as much information as possible. Have someone with you if you can, you'll have to answer all the questions but it will help knowing someone is there. Good luck.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • chizchiz Member Posts: 59 Courageous
    Thankyou @poppy123456, i didnt request and read on other posts there hard to get and not just given out .. 
    Guess its me being paranoid , i feel better knowing it dosent mean anything different .
  • chizchiz Member Posts: 59 Courageous
    And more worry .. reading different posts and alot of people saying ATOS are really awful and alot less considerate than capita .. flipping heck ... has anyone had a good ATOS experience? 
    My panic levels have doubled..
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I've never had a bad assessment report and have always been assessed by ATOS. Don't read too much on the internet because you'll mostly only every read that bad stories. People have decision they're happy with and dont have any questions to ask, therefore we don't hear their stories.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • chizchiz Member Posts: 59 Courageous
    Thankyou @poppy123456
    Makes sense x 
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    I've never had a bad assessment report and have always been assessed by ATOS. Don't read too much on the internet because you'll mostly only every read that bad stories. People have decision they're happy with and dont have any questions to ask, therefore we don't hear their stories.
    As I have said before, you were one of the lucky ones.
    There are many claimants that are awarded without the need for a MR or appeal and they accept it only because they believe that if they challenge it they could lose everything. 
    So getting an award first time around could mean nothing if the award or the length of it is not right.
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