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How many people with fibromyaliga have got accepted for pip?

mariamatthews90mariamatthews90 Member Posts: 3 Listener

How many people with fibromyaliga have got accepted for pip? 2 votes

to scared to apply
0%
yes after appealing
0%
yes first time
50%
livonia 1 vote
got declined
50%
Jurph 1 vote
Maria matthews 

Replies

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    PIP isn't about a diagnosis, it totally depends on how your conditions affect you daily and you certainly can't compare 2 people. We're all affected differently by these conditions and what might affect one person, might affect another person totally differently. Lots of people claim PIP successfully because of how they're affected daily from fibromyalgia. Evidence will be needed to support a claim.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    Hi,

    PIP isn't about a diagnosis, it totally depends on how your conditions affect you daily and you certainly can't compare 2 people. We're all affected differently by these conditions and what might affect one person, might affect another person totally differently. Lots of people claim PIP successfully because of how they're affected daily from fibromyalgia. Evidence will be needed to support a claim.
    spot on Poppy. It does not matter what your condition is, it's the impact it has on your life when matched to the descriptors.

    You could have someone with a serious illness or disability say heart failure, or Parkinsons or even Emphysema but if the impact on their lives does not feature with the descriptors they will not get an award. Yet someone with Depression who can match the impact with the PIP descriptors  will get an award.
  • mikehughescqmikehughescq Member Posts: 5,310 Disability Gamechanger
    Hard to disagree with @poppy123456 or @Yadnad. I wonder if polls like this really hide an anxiety about struggling with a condition a lot of people don’t understand and which divides the medical profession and then being anxious about a benefits rejection on top of that?
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hard to disagree with @poppy123456 or @Yadnad. I wonder if polls like this really hide an anxiety about struggling with a condition a lot of people don’t understand and which divides the medical profession and then being anxious about a benefits rejection on top of that?
    Thanks! I have to admit, at first i didn't like you BUT the more i read your comments, the more i'm liking. You really do talk perfect sense and another thing i have to admit.... i've learnt an awful lot from you in the past few weeks. Thanks for all the advice you give to everyone here.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • mikehughescqmikehughescq Member Posts: 5,310 Disability Gamechanger
    @poppy123456 I think we know each other from social media. Thank you for your honesty. That’s hugely appreciated. I also take great pleasure in meeting someone willing to say they’ve changed their mind on something. I’m very evidence oriented and empirical but equally I’ve always been open to being completely wrong and changing my mind. It’s a surprisingly rare thing.

    The more common stance is for people to dismiss facts with “but that’s just your opinion” as though there are literally no objective facts and only opinion. 

    All of that is a roundabout way of saying “thanks”. I’m very poor in taking compliments but I’ll try my best so “thank you” :)
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    @mikehughescq you're welcome! I have no problems admitting when i'm wrong about something or someone.

    As i'm currently in the middle of filling out my own ESA50 renewal and in about 5 weeks my daughters PIP renewal form will be dropping through the letter box, as i'm her appointee it's down to me to sort that out.  You're advice has been invaluable! :) Thanks, once again!
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    I got pip at tribunal. Although I have fibro at the time it was undiagnosed chronic pain. At tribunal I told them it was fibro and how it affected me day to day. They didn’t seem that interested to be honest. I got the points for mobility around my mental health mainly and I’m not sure if fibro influenced it. I was disappointed to not get points for daily living as fibro really affects me in this way. As I got a short award I accepted this decision and would hope to provide more evidence next time around. They asked a lot of questions about other help I may be getting to help me with fibro from other agencies and any aids I may have which I do not get. I felt this went against me.
    I couldn’t vote as this option wasn’t available perhaps don’t know? 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • PinPin Member Posts: 132 Courageous
    Good luck with your application. Whilst I understand that PIP focuses on the effects of your condition, not the condition itself, I totally understand why people look to speak to others with a similar diagnosis. It’s not something I’m affected by, but I do wonder what the outcomes tend to be like for people who are affected by invisible illnesses like CFS, chronic pain with no associated disease/diagnosis and Fibromyalgia.
    I live with chronic pain and have recently been awarded pip so don’t be disheartened. 
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    edited August 2018
    Pin said:
    Good luck with your application. Whilst I understand that PIP focuses on the effects of your condition, not the condition itself, I totally understand why people look to speak to others with a similar diagnosis. It’s not something I’m affected by, but I do wonder what the outcomes tend to be like for people who are affected by invisible illnesses like CFS, chronic pain with no associated disease/diagnosis and Fibromyalgia.
    I live with chronic pain and have recently been awarded pip so don’t be disheartened. 
    The outcomes for individuals who suffer from the same disease range from no award right through the scale up to Enhanced Care & Mobility.

    I too live with chronic pain and am under the care of the pain clinic. Yet it serves no purpose unless you can prove that a descriptor fits the impact that the pain causes. I could not find any descriptor that fitted
    I was offered 0 points!
  • mikehughescqmikehughescq Member Posts: 5,310 Disability Gamechanger
    That sounds entirely credible. Fibro splits the medical profession as the evidence around it is debatable at best. Most medical professionals on appeal panels would fall into the “not a thing of itself” category. 
  • PinPin Member Posts: 132 Courageous
    I know yadnad, I’ve read your story many times.


  • mariamatthews90mariamatthews90 Member Posts: 3 Listener
    HEy all thanx for your reply’s and informations so helpful havnt been able to log on since I posted this but managed to sort it and will read through all! Totally understand what ppl are saying from the bits I have read and appreciate the comments :) xx
    Maria matthews 
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