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my condtion
kimdyer18
Member Posts: 52 Connected
Hi,
i have just been diagonsed with spastic pararlegia. i have my pip assessment tomorrow and was wondering what other people had been through with this and what type of pip they had recieved. Also my husband looks after me full time, takes me shopping, helps with dressing and getting in out of bath also does all cooking and cleaning as im finding this increasingly more difficult. Would he be able to claim a carers allowence for the all work he puts in. i feel so helpless at the moment
i have just been diagonsed with spastic pararlegia. i have my pip assessment tomorrow and was wondering what other people had been through with this and what type of pip they had recieved. Also my husband looks after me full time, takes me shopping, helps with dressing and getting in out of bath also does all cooking and cleaning as im finding this increasingly more difficult. Would he be able to claim a carers allowence for the all work he puts in. i feel so helpless at the moment
Replies
sorry to hear life is so difficult just now, I hope your assessment goes well tomorrow. It depends on how your condition affects you what you will receive, make sure you tell the assessor everything you’ve said above.
carers allowance is given if you receive PIP (not sure what level, someone else will know) but it is income related so If your husband works he may not be eligible.
Try not to worry about the assessment, everyone has differeent experiences.
for me, I live with pain and hearing loss after cancer. The original malignancy is now gone but has left a bit of a mess. Unfortunately there’s no going back and it’s a case of making a new normal.
have you found a foundation or charity supporting people with your condition? Some people find that really helpful and others hate it - just find what is best for you.
I’ve had a quick google and found this: http://www.hspgroup.org/ not sure if it’s the correct condition but might be of interest.
it must be quite a shock but also perhaps a relief to finally have some answers?
TK
Wherever you have said that you need help to do something they will word their questions carefully to get you to contradict what you said.
The assessor will ask you lots of leading questions in the run up to the important one that they want to trip you up on. These questions require a simple yes answer and then they slip in the question that they want you to answer yes to. They already know the answers you are going to say yes to because you put it all in the questionnaire.
My partner put in questionnaire that she needed help managing her finances and that I made a spreadsheet to keep track of everything for her.
This is one her assessor used
You said you do your shopping online? Yes
every two weeks, is that right? Yes
How do you pay your rent? by direct debit? Yes
And your other bills? All by direct debit? Yes
and YOU keep track of all your finances using a spreadsheet?
Because she was now in the habit of saying yes and it sounded right because her finances are managed using a spreadsheet she answered - Yes.
This is the answer the assessor then used to say she reported at the assessment that she keeps track of her finances using a spreadsheet and advised
can manage complex budgeting decisions unaided. 0 Points.
Look out for this tactic at your assessment. Make sure you explain everything that you need help with. Once they have the answer they want they will want to move on quickly to the next question.
They are there to find any reason to deny you points, don’t be fooled by the nice smile and assurances that they don’t make the decision and are just there to assess your conditions.
For most of my time with them they simply got a blank stare which meant they had to put the answer in which wasn't what I said! It was that or be prepared for me to lose it with them - as was probably noticed by my body language.
Fun and games organised by a condescending and deceitful individual who clearly had no idea how to run a successful assessment.