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Crohns Disease
becky43
Member Posts: 3 Listener
I recently got diagnosed with Crohn’s disease with the added extras of a fistula. Just hoping to get some advice from other people on how they best cope with the disease and manage to work.
Replies
Welcome to the community! I think there are a few members who suffer with Crohns and I'm sure they would be more than happy to get in touch to offer support
Disability Gamechanger - 2019
I have ulcerative colitis so understand where you are coming from.
Have you contacted Crohns and COlitis UK? They have some great resources,
I work for Scope and it is important to speak to your work honestly about how your illness affects you and what reasonable adjustments you may need at work.
Are you on medication or a treatment plan?
Senior online community officer
I’m a self employed hairdresser with my own salon, thankfully no staff but it’s been really hard this last 18 months as I lost my dad very suddenly who also suffered from Crohn’s, he had a sudden heart attack from undiagnosed ischemic heart disease. I actually found him, as he wasn’t answering his phone so I popped out of work to check on him, left a client waiting in Salon but he had gone.
We also worked together so as you can imagine it was awful.
I just about coming to terms with losing Dad when I became poorly then I was diagnosed. I’m currently getting the infliximab infusion but I’m not sure if that’s made me better or worse as the joint pain and restriction of movement I’m getting is really bad.
I decided I’d try to apply for PIP as I’ve had to cut my working hours dramatically and struggling financially.
I have a wonderful husband who is very supportive but he works away during the week, my only son is in Uni. So it’s just me and my 14 year old Westie here most of the time who last week was diagnosed with colitis, honestly you couldn’t make it up! My best friend reckons he’s like ET mirroring my illness. Xxx
I really do hope you find comfort in being a part of our community and among others who understand, and if we can be of any assistance, please do let us know. I hope today's as kind as possible to you!