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SueAxfordSueAxford Member Posts: 3 Listener
I am wondering what the chance is of getting pip is for fibromyalgia??  It's affecting my legs quite badly, and I have a job to walk a long distance.


  • Peasmold_01Peasmold_01 Member Posts: 144 Pioneering
    I have fibromyalgia as part of various other medical conditions, and won my PIP appeal for mobility. The fibromyalgia was taken into consideration, so it may be worth you applying. I would try and get a letter from your GP stating that the condition does affect your ability to walk any distance. Hope this helps.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    PIP isn't awarded based on a diagnosis, it depends how those conditions affect you daily. Evidence would be needed to support a claim and you would most likely need a face 2 face assessment.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    That’s true you should try taking one of the points questionnaires available online and seek advice from welfare rights 
    I am a fibro warrior !💜♏️
  • SueAxfordSueAxford Member Posts: 3 Listener
    Thank you all I Will take your advice. 
  • JoAnne143JoAnne143 Member Posts: 8 Listener
    Also, regarding the fibro remember it mayl affect you in other ways too. Ie sleep, tiredness etc
  • Liam_AlumniLiam_Alumni Scope alumni Posts: 1,113 Pioneering
    Hi @SueAxford,

    Have you checked out Benefits and Work's PIP self-test? It's a handy little tool which should give you an idea of how many points you could score for each question. I hope this helps!
  • SueAxfordSueAxford Member Posts: 3 Listener
    Thanks for the link, I'll look at it. 💋
  • dookmarleydookmarley Member Posts: 6 Listener
    hi we are currently waiting to go to tribunal, I also have fibromyalgia, osteo arthiritis and ibs, I scored 0 points for everything at face to face, been waiting over a year for tribunal. Have lots of consultants letters with diagnosis, medication etc,

    since taking poorly in dec 2017 with no sign of improvement, I now have glasses, hearing aids, a walking stick for indoors and a triangular walking trolley for outdoors, anti depressants and on 600mg of pregabalin a day. plus strong migraine tablets

    But how and what proof can you provide to support how your illness affects your daily living? didn't have a diagnosis at time of face to face (been messed about by hospitals and have a letter from hospital to confirm they mis treated me etc) GP wouldn't give a letter to support that as she said she doesn't see me on a daily basis to know how it effects me? will be glad when this is all over, been going on since dec 2017 and just want it over and done with.
  • cristobalcristobal Member Posts: 968 Disability Gamechanger
    edited June 2019
    @dookmarley - I don't know if there is a guide anywhere to what is considered acceptable as evidence.
    I gave examples of why I was unable to carry out specific tasks, and what I had to do in order to complete them.

    I kept a diary over a week - which was useful because my condition is very variable and it enabled me to evidence how many times per week I could/ couldn't do something.

    I was fortunate to have a report from an Occupational Health consultant.  It was 8 years old but he had examined me and concluded I couldn't continue in my job.

    I didn't send page after page of medical reports. My personal view is they didn't add anything to my application as they were written to support a diagnosis not a benefit application. Also, my GP would just have given a 2nd hand account of what I'd just told her so I thought that I may as well do that myself. 

    This seemed to work for me although I acknowledge that other posters on here say that have sent more of the medical stuff.

    I imagine you could see an OH consultant privately but I imagine it would be expensive. 

    Good luck anyway....

  • dookmarleydookmarley Member Posts: 6 Listener
    Thankyou will see how it goes, should have tribunal date soon 
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