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Fibromyalgia and sensory seeking- anybody else?

butterflyalike1

Hello everyone I am new to the forum and recently discovered a name for my illness with fibromyalgia. Hope to speak with some of you!

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butterflyalike1

One thing I have noticed with my fibromyalgia is that when I am physically not doing great, and having a flare, sometimes my brain wants to work up as much as it can. Take in more information, noise. Does anybody else have this? How do you counteract these?

butterflyalike1

butterflyalike1 said:

One thing I have noticed with my fibromyalgia is that when I am physically not doing great, and having a flare, sometimes my brain wants to work up as much as it can. Take in more information, noise. Does anybody else have this? How do you counteract these?

I would describe it as sensory seeking, related to Aspergers. It is when I know I’m on my way to burn out. I just don’t know when and how to stop it.

Pippa_Alumni

Hi @butterflyalike1, and welcome!

Thanks for sharing this, that's a really interesting way of describing your fibromyalgia symptoms. We have lots of community members with fibromyalgia, so hopefully you'll be able to connect with others soon.

AlisonNetty

I've had Fibro since 2013. I find just trying to get through a day is hard work. I woke up with pain everywhere but as the day goes on it becomes an awful ache that won't go away no matter how many painkillers I take. I get too tired with it.

sarah50

Hi I was finally diagnosed a few years ago it's a long process. I have fibro and ME/ CFS. I sympathise with you just getting the diagnosis was a herculean journey. I have sensitivity/aversion to light and noise and from others I have spoken to this is quite a common symptom. I was asked what my symptoms were by a friend and had to stop after seven or eight as her eyes were glazing over. I don't get all the symptoms all the time but I have some of them most of the time if that makes sense. But pain and fatigue are constant. How do you feel you are treated by GPs?