My daughter has CP and forgets to go to the toilet. Anyone else in the same situation?

bizzymam
bizzymam Online Community Member Posts: 5 Listener
edited October 2018 in Cerebral Palsy Network
my 7 old daughter has mild cerebral palsy and she keeps soiling herself or forgets to go to the toilet and leaves it to last second, anyone else in the same situation? thank you

Comments

  • Liam_Alumni
    Liam_Alumni Scope alumni Posts: 1,087 Empowering
    Hi @bizzymam,

    Welcome to Scope's online community! It's great to have you here.

    I've moved this post into our dedicated Cerebral palsy category, where other members of our community will be able to share their experiences and offer advice and support.

    If you have any other questions and if we can help in any way, then please do get in touch! :)
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @bizzymam Welcome to the community! :)
  • bizzymam
    bizzymam Online Community Member Posts: 5 Listener
    Hi everyone, how’s everyone here xx
  • Liam_Alumni
    Liam_Alumni Scope alumni Posts: 1,087 Empowering
    Hi @Bizzymam,

    I'm very well, thank you! How are you? :)
  • Jean_OT
    Jean_OT Online Community Member Posts: 511 Empowering
    Hi @bizzymam

    Welcome to the community!

    With regards to your daughters toileting, I've spoken to a number of parents of cp kids that have similar issues. Often due to the nerve messages related to toileting being sluggish or disrupted, sometimes complicated further by constipation issues. 

    Often things improve with time and the child maturing enough that the take more responsibility for taking themself off to the loo regularly, even if they don't have a sensation of needing to go. Some times prompts from adults or even an alarm on a watch can be helpful. Sometimes a change in diet to more regular (and therefore more predictable) bowel movements, can be helpful. 

    If you haven't already done so it might be worth having a word with the GP to see if a referral to a specialist is necessary.

    Also the charity ERIC can advise on the management of childhood incontinence: https://www.eric.org.uk/

    Best Wishes

    Jean  
  • bizzymam
    bizzymam Online Community Member Posts: 5 Listener
    That’s a big help thank you jean xx
  • ladymystikal
    ladymystikal Online Community Member Posts: 1 Listener
    My daughter is 10  and she still has problems with day time wetting, which unfortunately used to happen at  school. She has had bladder scans and there is nothing anatomically wrong with her. She has had movicol prescribed in the past for constipation. But now it's just managing her by reminding her with alarms etc.

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Welcome to the community, @ladymystikal!
  • Richard_Scope
    Richard_Scope Posts: 3,699 Cerebral Palsy Network
    Hi @bizzymam and @ladymystikal
    Good to meet you both. I have had experience of myself when I was a lot younger. There was nothing physically wrong with my bladder and I underwent 'training' with the help of a physiotherapist.
    I agree that the first port of call should be your G.P. to rule things out. Please try not to worry. This is an issue that can be overcome

    .

  • bizzymam
    bizzymam Online Community Member Posts: 5 Listener
    Thank you Richard,her school going to put me in touch with the school nurse and have a chat xx
  • bizzymam
    bizzymam Online Community Member Posts: 5 Listener
    edited October 2018
    We have to tell lily do you need the toilet and I sometimes I know the signs when she needs to go but she wets her self by time she gets to the toilet xx
  • Richard_Scope
    Richard_Scope Posts: 3,699 Cerebral Palsy Network
    I used to leave too late as well @bizzymam
    It is something that can be taught. It takes a little time. :)

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