If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Hi, my name is 6point5!
6point5
Community member Posts: 6 Listener
Hi everyone, I'm 38 and a single mum to 5 kids, I have a long term disability and I'm starting to struggle emotionally, I do have these moments, but all I can see isome things getting worse not better
Comments
-
Hi @6point5 welcome to the community!
Sorry to hear that you are struggling. Would you mind telling us what disabilities you have? We want to help you as much as we can!Disability Gamechanger - 2019 -
ok, i have ehlers danlos syndrome, Postural orthostatic tachycardia syndrome , osteoporosis, asthma, Peripheral artery disease, autoimmune disease.
Thats it, i think, untill next time i go to the hospital and they decide to add something else to my list x -
You're not alone as many members of the community suffer with the same conditions as yourself and I'm sure they will be more than happy to get in contact with you to offer support.
Forgive me but I have not heard of Postural Orthostatic Tachycardia Syndrome before, would you mind explaining what this is?
It is incredibly difficult to come to terms with disabilities, in time you will be able to accept them by finding ways of coping them. It's just finding those ways but we can help you!Disability Gamechanger - 2019 -
Hello and welcome to the community . You will find help and advice and companionship here
-
Postural Orthostatic Tachycardia Syndrome, is basically where your heart rate will beat so fast and this maybe because i have stood up or sat down ect, it causes me to blackout, i feel weak and dizzy, its so hard to explain but that is the easiest way for me to get it across.
I can not do anything which will make my heart race, so no funfairs/theme parks ect. Even watching telly, i can feel my heart racing. x -
Yes I know what you mean 6points5 and it is not nice , I have got hypertrophic cardiomyopathy
-
God that sounds horrible! Does medication help?Disability Gamechanger - 2019
-
Can not give me any think to help , just a waiting game for me now lol
-
Just waiting to see pip end of month with all the other things worng with me , but how are you doing any way with is it just one heart beat what Gos nuts
-
Ami2301 said:God that sounds horrible! Does medication help?
-
topshoes said:Just waiting to see pip end of month with all the other things worng with me , but how are you doing any way with is it just one heart beat what Gos nuts
-
Scope
Senior online community officer -
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 482 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 231 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 806 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 846 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 885 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.