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UC - feel I'm living on a knife edge!

Hello all,
I have been reading everyone's posts and comments regarding UC.
I have to say I feel I am living on a knife edge with all the angst the change to UC has brought upon my Son and myself!
My adult Son (23) has Autism he suffers from extreme anxiety and panic disorder,he was told last Friday he has to move from JSA to UC but will lose the disability premium,I am outraged and sickened by this,as we are in full UC area,he has been given no choice but to move to UC it has caused a weekend of absolute mayhem and more worry for an already very anxious person,I had explained in advance what may have to happen,he stands to lose over £200 a month which like many others has left us feeling distraught and worried how on earth we are to meet with living costs,I support as much as I can but I am on a very low income and lone family,I don't know where to turn, nobody seems to care a jot!
He has PIPs so relieved for him that this won't be affected however,the drop in money is outrageous and will severely affect his quality of life!
He had ESA once but after reassmemt was told he must move to JSA which caused it's own issues with regards to work related groups which caused huge anxiety and panic and now this...it's never ending and a no win situation! Cannot sleep for the worry this is causing!!
Is anyone else experiencing the same with UC??
Sorry for the long post!
From a very worried Mother and Son x
I have been reading everyone's posts and comments regarding UC.
I have to say I feel I am living on a knife edge with all the angst the change to UC has brought upon my Son and myself!
My adult Son (23) has Autism he suffers from extreme anxiety and panic disorder,he was told last Friday he has to move from JSA to UC but will lose the disability premium,I am outraged and sickened by this,as we are in full UC area,he has been given no choice but to move to UC it has caused a weekend of absolute mayhem and more worry for an already very anxious person,I had explained in advance what may have to happen,he stands to lose over £200 a month which like many others has left us feeling distraught and worried how on earth we are to meet with living costs,I support as much as I can but I am on a very low income and lone family,I don't know where to turn, nobody seems to care a jot!
He has PIPs so relieved for him that this won't be affected however,the drop in money is outrageous and will severely affect his quality of life!
He had ESA once but after reassmemt was told he must move to JSA which caused it's own issues with regards to work related groups which caused huge anxiety and panic and now this...it's never ending and a no win situation! Cannot sleep for the worry this is causing!!
Is anyone else experiencing the same with UC??
Sorry for the long post!
From a very worried Mother and Son x
Replies
Sorry to hear that you and your son are going through a very stressful time. I have no experience with UC but many members of the community do. I'm sure they will be more than happy to get in contact with you to offer advice, support and share experiences.
If there is anything else we can do to help then please do not hesitate to let us know!
Disability Gamechanger - 2019
Many thanks for replying to my post!
Thank you, any advice from anyone going through the dreadful changeover to UC will be greatly appreciated.
Yes because we are in a UC area and my Son has to move over from JSA to UC their is no option,with this he loses the disability premium he was awarded on JSA..I am seeking all the advice I can atm! Thank you for your reply!
Hi,
Thank you for your reply!
Yes we realise he would have to look for work and despite the issues my Son has he would love nothing more than to be employed and earning his own money but at a manageable level.
His GP has signed him as unfit for work due to his levels of extreme anxiety and other issues along with his Autism
He went from ESA to JSA after an assessment deeming him ok to look for work,I was in the middle of his PIP claim at the time and therefore didn't take the ESA matter any further as we were under considerable stress with the PIP application.
I had been told point blank there would be no SDP, however the lady we saw at our Job Centre had no idea about UC we were told we have to make an application a month from now for U when his JSA stops but he will lose out with the SDP.
I am hoping this makes sense,I am writing this pretty stressed.
I appreciate your advice!
It's because he is on JSA that he now has to move to UC and the roll out for it is well underway in my area!
I am trying to keep a level head with all this but finding myself stressed and confused,I am hoping at some point my Son will have his SDP premium backdated when and if they make the anouncannoun!
I was told he cannot reapply for ESA now!
Feeling I have let my Son down by not chasing it up at that time,as he probably would not be in the situation he is now!
Yes aware of all this,luckily though he will not have any deductions to his UC as he has JSA right up until the end of October,then will be making a claim for UC in November,5 week wait is crazy for everyone!!
I feel sorry for everyone going through this with disabilities,it was a hard enough rigmarole making sense and applying for PIPs then the stress of having to be assessed!!
Dreadful,the government have no clue how this is affecting people!
Thank you again for your advice!
I think I maybe understanding it a little better now! Though sick to my stomach the amount my Son and other's in a similar situation stand to lose financially!!
Its a sad situation we are all facing now with this notorious Governments agenda.
Sad time.
I created one of the campaign election video for Labour, and Jeremy Corbyn,
This is a new version of Emeli Sande, Hope "You Are Not Alone
You can see the video here.
https://m.youtube.com/watch?v=P5o8hRHh9IY
Yes very true!
In an ideal world we'd love to be working and earning a wage good enough to live on,but in the real world this isn't the case for many people!
It's all a mess!
I feel so incensed with anger at the level of stress we are all being put under,I have decided to take some action and speak to my local MP.
I spoke with my Local Labour MP's caseworker and on a waiting list to see my MP as with most things nothing happens overnight,I am optimistic I won't have too long a wait,once I do manage to speak with him,I will post an update .