Is there anyone else on this group who has achalasia and oesophageal dismotility

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Comments

  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    It does sound like a lot to deal with @Denzel01. It isn't like a woe at all, you're just stating what you will be experiencing and how you are feeling.

    Would anything, in particular, make all of this feel more manageable for you? We will all continue to listen to you and support you the best we can  :)
  • Denzel01
    Denzel01 Online Community Member Posts: 10 Listener
    @L volunteer, 
    I don't know what would make things seem easier at the moment, my whole life has been a battle with Spina bifida & now other things are failing, but I just soldier on & see what the specialists have to say. 
    I'm sure I'll be OK once I know what they intend to do & I will take it from there. 
    I'm a bit worried about the Achalasia & oesophagus not working anymore, sleep deprivation is a biggie, wake up vomiting bile.
    The cardiologist is slightly concerning, there's heart disease on both sides on the family, I always have extremely high blood pressure & pulse rate, but the chest pain is getting worse!
    Oh! Got the urologist as well in March! 
    Flipping heck, I am failing apart 
    But, it is what it is & I will deal with each thing as it comes my way. 
    Oh! What will definitely make a massive difference to my life is a new wheelchair ♿️, the one I have currently is most uncomfortable, going to have to purchase a new one that reclines very soon (I can no longer go out, as current wheelchair is very uncomfortable!)
    Wowzer, I have really poured everything out to you today!
    Thank you very, very much for listening to me  ❣️ x
  • Denzel01
    Denzel01 Online Community Member Posts: 10 Listener
    Thank you very much @Gillian88, that is most appreciated 🙏 😊 xx

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