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Hi, my name is ellie_mae!
ellie_mae
Member Posts: 23 Connected
I have been reading the forum and decided to jump in. Hopefully to be a useful contributor.
Replies
Would you mind telling us a bit about yourself?
I was born with a condition called Amniotic Band Syndrome but it was never talked about and I was in my 40's before I identified what it was.
I worked in social care for my local authority for 23 years, having 2 serious injuries in the course of this, leading to a chain of events which have seriously impacted my life and heath.
I'm a bookworm and always have been, I'm pretty clued up on a lot of issues affecting people with both obvious and hidden disabilities as best friend has COPD and my grandson has a chromosomal syndrome and autism.
It is a condition where a baby's limbs become entangled in the fibrous fibres in the uterus. This stops the limbs or digits from forming as intended. I am very lucky as far as this syndrome goes because it only affected my left hand, however it is not a condition you can hide although my mother tried her damndest to, I wore a lot of mittens.
It can be incredibly destructive to a fetus, I am aware of cases where all 4 limbs have been massively affected.
I had all my 3 children in my 20's and spent each pregnancy terrified as to whether my baby would be affected, of course none of them were because it is a toss of the dice condition as I now know but in the 50's no one knew why I was born as I was of course. My mother's retelling of the birth scenario has caused a lot of issues in my life, she rejected me at birth and openly told me so. Not a great start for a kid is it. Times were very different then
Thank you for explaining to me
Thank you for your support
What are you reading at the moment, anything good?