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PIP and kyphoscoliosis
I have had DLA mob for many many years. Low care. This was a great help when working as i had transport to get me to and from work. Retired at 54 on ill health. Never got around to applying for better care rate as afraid to rock the boat! I am trying to get myself prepared for when i get the invite to apply for PIP. I originally had a spondylolothesis, fused at 14 yrs then scoliosis due to Marfans, quite severe curvature, well over 100 degrees which was fused at age 16. I have other probs, amputated toes and pinned big toes but over the past 10 yrs i have developed quite severe kyphoscoliosis. I find it extremely difficult and painful to try and stand straight. Also osteoarthritis. I have noticed lately that my balance is not so good, i think this is due to the sideways curve and my being bent forward, seems as if they are fighting one another!! Plan to see my GP to see if there is any physio available to help try strengthen neck and back muscles. Anyone one else on here with kyphoscoliosi and going through the DLA/PIP changeover?? Obviously my walking is affected by my stature and spinal pain and unsteadiness. Rising from sitting to standing is quite a difficult time for me and those first few steps, same getting out of bed in the morning!! Any advice would be grateful. Thanks.