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Help for my wife

I had a stroke 2 years ago and my wife has fibromyalgia, chronic fatigue, the last few weeks has been unbearable for her - we attended the doctors the other day and basically she broke down and would not speak to anyone the doctor told me to contact the crisis team as he could not help her? however she would not speak to them either and both the team and the doctor said she is an vulnerable person, we are struggling a lot at the moment with our home - she collapsed in the bath the other day - our bathroom is small and I struggled getting her out - where do I turn
Replies
I am terribly sorry to hear what has been happening. Sounds awful and worrying for you. I really am unsure how to advise but I can assure you that members of the community will be able to help you and steer you in the right direction. Can I ask has your wife acted this way before?
Disability Gamechanger - 2019
Thanks for sharing this with us, and I'm so sorry to hear about your struggles. It must be really difficult on you as well as your wife.
Has your doctor mentioned referring your wife to a more specialist service for her conditions? For example, there are NHS CFS/ME specialist clinics around the country that may be able to provide more targeted support for her day to day life, which could make a big difference.
It may also be beneficial to look into home adaptations and benefits as mentioned above. I'm also tagging in @Jean_Scope in case she can offer any advice on this side of things.
Please do let us know how you're doing and keep us updated, and we'll advise where we can. I hope today is as kind as possible to you both.
Thanks to @Pippa_Scope for inviting me to join this conversation.
I'm getting the impression from your posts that your wife has new unexplained symptoms that haven't been investigated. Specifically confusion and a bloated abdomen.
We are not able to give medical advice on the community but these are symptoms that a medical professional needs to be aware of. Ideally your wife needs to be talking to a doctor about these physical symptoms but if that isn't possible you could take advice from NHS 111 https://www.nhs.uk/using-the-nhs/nhs-services/urgent-and-emergency-care/nhs-111/
With regards to aid and adaptations at home you will need to arrange for a local authority Occupational Therapist (OT) to assess your home to see what is needed. As mentioned above you can ask the GP to refer you, but you can also contact them direct yourself. Call your local authority and ask for "Adult Social Care" If you can't find the number, staff at the Scope Helpline 0808 800 3333 [email protected] will probably be able to assist you with locating it.
Best Wishes
Jean
Jean Merrilees BSc MRCOT
You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist