PIP, DLA and AA
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Should I?

dragon1998dragon1998 Member Posts: 4 Listener
I receive standard rate PIP and my conditions are worsening, I have the full back up of my Lymphedema Nurse, when should I get in touch with PIP please x

Replies

  • wilkowilko Member Posts: 2,284 Disability Gamechanger
    Hello, how long ago was your current PIP award made? On your award notification letter it clearly states that if your condition changes ( better or worse) you have to notify the DWP about the changes. So if,have your disability, health conditions got worst that you may need more help with your daily care or mobility than phone the DWP to inform them of your changes in your condition. Like me you will have to fill in another 40 page PIP application form and attend another F2F acessment, in my case my mobility had got worst during the last 12 months so I went from low to enhanced mobility, I was already useing  my own scooter and I am still able to drive my own car . Just make sure you have and can prove your worsening conditions.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,
    You need to look at the PIP descriptors before reporting any changes. A worsening of condition does not mean you're entitled to more PIP.
    You must also have had that condition for at least 3 months. You should get expert advice before reporting a worsening of condition.

    No one here can tell you if there's any risk to your current award because no one knows how your conditions affect you.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Mikey44Mikey44 Member Posts: 74 Courageous
    In my Tribunal the judge said in Her opinion if you have PIP and are happy with it Don’t report any changes as it will only start the WHOLE PROCESS again Assessments Tribunals etc most changes will not make your PIP worth a lot more??!! And she said in a lot PIP cases the difference (if any) is not worth the effort and time you have to invest in this process again. 
  • YadnadYadnad Posts: 2,856 Member
    Mikey44 said:
    In my Tribunal the judge said in Her opinion if you have PIP and are happy with it Don’t report any changes as it will only start the WHOLE PROCESS again Assessments Tribunals etc most changes will not make your PIP worth a lot more??!! And she said in a lot PIP cases the difference (if any) is not worth the effort and time you have to invest in this process again. 
    Seriously??

    I presume that the Tribunal were only talking about changes where the difficulties had increased? Otherwise they could be cited as promoting benefit fraud if changes happened where things became a little easier and you didn't report them which if you had could have meant a reduction of the PIP award.

    To be honest they have no right or jurisdiction to offer that type of advice.

  • Mikey44Mikey44 Member Posts: 74 Courageous
    I received Enhanced on both but am still having further treatments,but she said I’m on the highest level and no matter what happens to me I can’t be awarded anymore money or any other level I’m on the upper limit 
  • Gwendoline1Gwendoline1 Member Posts: 226 Pioneering
    Hiya dragon1998,
    My health as also deteriorated, I was also on standard for care and mobility.
    Im not knowledgeable on giving you advice on the hows, whats and wheres of the dwp regarding claiming.
    What I’d like to explain is the emotional roller coasters you are on when you finally post the letter to the dwp.
    Here we go! 
    I sent my form off to the dwp in February.
    I then had my assessment in June. From the time I posted the form to them,until I had a date, I didn’t stop worrying.
    Had I done the right thing. Should I have been grateful for what I already had. Would they believe me. What if I’m unable to explain how it effects me. All these questions were going through my head over and over again. This worrying took me to some very dark places in my head.
    I had my assessment in June, very nice hcp assessed me. I felt lucky I had a physiotherapist, this I felt helped because a part of what’s wrong with me.
    I worried and worried and worried and again should I have been grateful bla, bla, bla. 
    After what I felt was eternity I had the dm decision, enhanced for care and mobility. Relief.
    Im not trying to put you off, far from it. I say everytime,go for it if you feel you healths deteriorated.
    I just want you to know how stressful it is. I know you’ve already been through it before, you will keep questioning yourself,so please be prepared and surround yourself with your loved ones. It will be a rocky ride.
    Again, I’m not trying to put you off, I’m just being realistic. 
    Good luck! 
    There are some  very knowledgeable, clever people on here. They are always willing to help.😀😀😀
  • YadnadYadnad Posts: 2,856 Member
    Mikey44 said:
    I received Enhanced on both but am still having further treatments,but she said I’m on the highest level and no matter what happens to me I can’t be awarded anymore money or any other level I’m on the upper limit 
    I see. What length is your award for? I was on the same as you and when I had my re-assessments every time the DWP reduced it down 0 points!
  • mikehughescqmikehughescq Member Posts: 5,958 Disability Gamechanger
    Do not inform the DWP of anything at this stage. You need to decide which additional points would be applicable and if they would make any difference to your award. In order to do that you will need face to face advice rather than online tools or advice from a forum. Only if your deterioration has been there for at least three months and would score you sufficient points to move to enhanced rate is there anything to report.
  • Mikey44Mikey44 Member Posts: 74 Courageous
    My new Award is now until 2023 as of now??!!
  • YadnadYadnad Posts: 2,856 Member
    Mikey44 said:
    My new Award is now until 2023 as of now??!!


    Wow 4 years to go before it is reviewed - not bad.

  • Mikey44Mikey44 Member Posts: 74 Courageous
    I’m Partially sighted and paralysed down my left side so it’s never gonna change so the Doctor said it really should have been 10years in their opinion but they may look at the dates later,I’m still waiting for Money Paperwork etc since it’s now been 8 weeks since the Tribunal victory
  • Mikey44Mikey44 Member Posts: 74 Courageous
    The annoying thing is on Tuesday I have to go for a Universal Credit Medical as they don’t accept DWP Tribunal decisions 😭😭😭
  • mikehughescqmikehughescq Member Posts: 5,958 Disability Gamechanger
    Have UC refused to accept your ESA WCA? If so then they are wrong and DWP have conceded they are wrong.
  • Mikey44Mikey44 Member Posts: 74 Courageous
    They have told me they are completely separate to PIP and even though I got all the points necessary for PIP but they say if I don’t attend the Medical I stand to lose both Benefits (what the hell) so which is it Seperate or the same???!!!
  • mikehughescqmikehughescq Member Posts: 5,958 Disability Gamechanger
    What they mean is that your ESA and associated premium are lost if PIP stopped.

    if you had a pre-existing WCA and then moved to UC you should not have been invited to have another WCA. The existing one should have been accepted.
  • Mikey44Mikey44 Member Posts: 74 Courageous
    I’m On ESA and now they are changing me to UC and say if I don’t attend the Medical I will lose ESA and UC with a chance PIP is also at jeopardy 
  • mikehughescqmikehughescq Member Posts: 5,958 Disability Gamechanger
    If I’ve understood you correctly then that is wholly incorrect.
  • Mikey44Mikey44 Member Posts: 74 Courageous
    Ive spoken to my Welfare Rights agent and she is going to join me for the Medical to watch what they are actually looking for as my MR has been sent to them in advance so she wants to make sure they have read it before the test so as not to cause extra hardship and pain,I suffer depression and Anxiety which this test is causing more pressure 
Sign in or join us to comment.