Disabled people
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JulestheBatJulestheBat Member Posts: 16 Connected
Im so sad and fed up. My partner had ago at me tonight, hes not been massivley supportive the last few weeks. And Im tired.
My family dont really help and Im stuck. My mobilitys getting worse, I never leave the house. I cant manage stairs 
Im not coping and I dont know what the hell to do. Any advice? X
" If in doubt, Freak em out" - Sharon Needles 


  • RipplesRipples Member Posts: 189 Pioneering
    Sometimes situations strain relationships, it can be hard for someone else to see the other side of the coin. Sometimes the easiest but also the hardest thing for some is to sit down and talk as a family. This is where you are and this is how you feel. I have known people that do not ask for help and wait for others to offer help but it is a two way thing because no one knows if you struggling or need aid if you do not let them know.  If you have any support workers i would chat to them or your GP if you are able.
  • MisscleoMisscleo Member Posts: 646 Pioneering
    I think most of time family DO know how we are suffering pain.
    Just by knowing you have fibro etc they csn look up the pain info on the net.
    So WHY do they behave nasty towards us ? cos our pain inflicks on them.
    They cant keep dumping things on us which they should do themselves.
    My mother has volunteered me to do stuff for all our family over the years. Mom took the credit for everything 
    When i started to say NO to having kids dumped on me when id been at work 10 hours mom lost her credit.
    Shes been moaning about it ever since.
    If your in pain and family are dtill dumping stuff on you DONT DO IT.
    iv found its a constant argument.
    They say but you used to do all this stuff." They arnt worth all the pain.
    Id rather have my few good friends than family who wore me into the ground

  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    I'm sorry to hear this @JulestheBat, it sounds like you're having a tough time of it at the moment. How are you feeling today?
  • JulestheBatJulestheBat Member Posts: 16 Connected
    @Pippa_Scope Im feeling really low and a bit fragile. Ive got the hospital on friday about an operation Im having on my back. Ive been just managing for ages and its been a shock all of this going on. Its no type of life and Im so fed up 
    " If in doubt, Freak em out" - Sharon Needles 
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Oh I'm sorry to hear that @JulestheBat, will be thinking of you on Friday. At the very least, I hope you know you're welcome to come and talk to us all here on the community and we'll support and advise where we can.
  • JulestheBatJulestheBat Member Posts: 16 Connected
    @Pippa_Scope thank you 💜 that means alot 
    " If in doubt, Freak em out" - Sharon Needles 
  • crackercracker Member Posts: 324 Pioneering

    I am so sorry you must go into hospital. How long must you stay - and will the operation help better your condition?

    I will think of you FRiday.
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