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Scared of losing PIP and not being told

fibrofogfibrofog Member Posts: 3 Listener
edited December 2018 in PIP, DLA and AA
I asked for PIP to consider me for mobility payment as health has deteriorated over past two years.  The usual six month wait for assessment.  I had a letter from local council saying PIP have said you now gone to standard rate care component when I was getting advanced.  This meanes I am going to loose around £300 as I get extra ESA the severe disability premium.  I cannot believe that I have not been informed by PIP themselves but if my condition has worsened to the point where I need help due to mobility issues why have I not been told.  I am so stressed and have been crying.  I have worked up until two years ago, full time but was given a settlement package which states medical grounds and Ill health.   If I loose this money I am going to have bailiffs at my door as am already in arrears with every bill.  Help?? Thanks. 

Replies

  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @fibrofog

    Good Morning it’s great to meet you today!!!!!
     I am very very sorry 😐 to read your post/problems.

    We have got lots of info and advice on our site on “pip”

    I am very very happy 😃 to go through things with you if that is  ok 👍 👍 
  • AnkyieSponAnkyieSpon Member Posts: 138 Pioneering
    Hi @fibrofog I'm new to all this PIP stuff but I'm sure you'll get the advice you need on this great forum.

    I'm having my first assessment tomorrow and to be honest feeling a bit nervous as I am hearing so many negative experiences. 
    Tina 
    (Ankyie Spon)
    I'm a Pain Warrior
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @fibrofog Pleased to meet you welcome.

    Sorry what has happened.  I do understand as do the community.  You need have come to the right place for information and support, advice.

    May I suggest is to speak to your local CAB office. They will advise you on benefits. Any thing else that they could help with.  Such as your finances and rent issues

    I know benefits are complex and confusing . Can help.

    We are a friendly community. Care and share.  Please ask if we can help with anything some one from our community or team will know.

    Please take care

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @AnkyieSpon

    Good Evening & Welcome it’s great to meet you!!!!

    Is there anything that I can help/support you with ahead of tomorrow?????????
  • AnkyieSponAnkyieSpon Member Posts: 138 Pioneering
    Hi @steve51 thank you...... I'll be OK. ... I'll just say it as it is 
    Tina 
    (Ankyie Spon)
    I'm a Pain Warrior
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @AnkyieSpon

    Yes you will be fine!!!!

    Please please let me know how you get on afterwards if you don’t mind??????
  • AnkyieSponAnkyieSpon Member Posts: 138 Pioneering
    Thanks @steve51 I will do
    Tina 
    (Ankyie Spon)
    I'm a Pain Warrior
  • CockneyRebelCockneyRebel Member Posts: 5,258 Disability Gamechanger
    Hi @fibrofog and welcome

    It is often the case that other departments are notified electronically whereas we have to wait for a letter.
    You should ring DWP and ask for a copy of the assessment report and start to prepare for an MR
    Be all you can be, make  every day count. Namaste
  • AnkyieSponAnkyieSpon Member Posts: 138 Pioneering
    Hi @steve51 had assessment today, got nervous but I answered all the questions honestly was in lots of pain. Now just have to wait. 
    Tina 
    (Ankyie Spon)
    I'm a Pain Warrior
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @AnkyieSpon

    Well done ✅ that’s great news  😀 

    You sound like you answered everything okay 👌 

    Did they say how long it will take to come through???

    Please please let me know when you get the new’s????

    Yes “Stress” plays “Havoc” with “Pain” 

    That’s why I don’t do “Stress” anymore!!!!!
  • AnkyieSponAnkyieSpon Member Posts: 138 Pioneering
    @steve51 unfortunately stress flared up ibs.... but I was ok once I got there. They said 4-6 weeks I have to wait. 
    Tina 
    (Ankyie Spon)
    I'm a Pain Warrior
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @AnkyieSpon

    “Sorry” but it’s easier sad than done.

    I have got the “T-Shirt” for that one as well.

    Please please don’t  get “Worryed or Get Stessed”

    “Whilst you are patiently waiting” 

    Yes I have got the “T-Shirt” for that one as well.

       “Not a Good Idea”

    This is when you will “Need a Shoulder to cry 😢 😢 on”

    “That’s where I will come in”


  • mikehughescqmikehughescq Member Posts: 5,420 Disability Gamechanger
    fibrofog said:
    I asked for PIP to consider me for mobility payment as health has deteriorated over past two years.  The usual six month wait for assessment.  I had a letter from local council saying PIP have said you now gone to standard rate care component when I was getting advanced.  This meanes I am going to loose around £300 as I get extra ESA the severe disability premium.  I cannot believe that I have not been informed by PIP themselves but if my condition has worsened to the point where I need help due to mobility issues why have I not been told.  I am so stressed and have been crying.  I have worked up until two years ago, full time but was given a settlement package which states medical grounds and Ill health.   If I loose this money I am going to have bailiffs at my door as am already in arrears with every bill.  Help?? Thanks. 
    PIP are obliged to deliver a decision in writing so your next step is to rung them up and ask for a copy. You then have one month in which to do an MR.

    You will not have bailiffs at your door until such time debts have gone through court and you will be fully informed of that. In the meantime provided none if your debts habe court dates you’ve plenty of time to get decent debt advice.
  • fibrofogfibrofog Member Posts: 3 Listener
    Lost my care component and would not give me enough points for mobility so due to loosing money from them that I have relied on for some years.  I will now loose my £50 per week ESA disabled premium so around £300 down I can’t cope now.  Devastated and upset. I willl appeal I did it last time and went to court and was awarded my claim back.  It’s enough coping with my illness trying to pay bills I can’t work the ESA nurse couldn’t believe how bad I was for my age but yet again a pshyio did my assessment what the hell do they know about ADHD and mental health etc.  Here we go again 😦
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    fibrofog said:
    Lost my care component and would not give me enough points for mobility so due to loosing money from them that I have relied on for some years.  I will now loose my £50 per week ESA disabled premium so around £300 down I can’t cope now.  Devastated and upset. I willl appeal I did it last time and went to court and was awarded my claim back.  It’s enough coping with my illness trying to pay bills I can’t work the ESA nurse couldn’t believe how bad I was for my age but yet again a pshyio did my assessment what the hell do they know about ADHD and mental health etc.  Here we go again 😦
    The assessors in my case also knew nothing about mental health giving me 0 points.
    In fact they wrote 14 one line reasons why I don't have any mental health issues.

    I gave up after that.
  • fibrofogfibrofog Member Posts: 3 Listener
    Mine said I was very tearful at beginning nit managed to calm down and answered questions without difficulty.  Only because the assessor kept saying do you want to go home shall we stop??? No way was I going through all that again.  Also I made eye contact whoppee they took that off me before. Oh well court he we come in probably a years time.  Thanks for the replies guys. 
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