How are we supposed to be?

debbiedo49

How are we supposed to be?
Don't say "yourself" thats plain to see!
How are we supposed to be?
Restricted by our limitations or wild and free?
How are we supposed to be?
Looking over our shoulder, whose watching me?
How are we supposed to be?
Living in fear and anxiety?
How are we supposed to be?
Two fingers up to illness and disability?
How are we supposed to be?
Hiding under the duvet, woe is me?
How are we supposed to be ?
Burden on on the NHS, our friends and family?
How are we supposed to be?
Working hard to contribute to society?
How are we supposed to be?
Constantly educating others how life is for me?
How are we supposed to be?
Sometimes making the best of the worst we can be.
How are we supposed to be?
Putting life on hold for the brown envelope Dwp.
How are we supposed to be?
Whose that person in the mirror looking at me?
How are we supposed to be?
Often alone and feeling lonely.
How are we supposed to be?
Finding stuff to do that's realistic and free.
How are we supposed to be?
Helping ourselves and each other and being friendly?
How are we supposed to be?
Warriors, fighters,, spokespersons or just little old me?


I was going to write a post but then out came a poem lol. I'm still asking the question. How are we supposed to be ?

Firefly123

Fantastic been asking this question myself lately 

mikehughescq

That would work really well to music? May I?

debbiedo49

Go ahead! I was thinking saying it out loud would work better than reading it thanks 

chockies

I love this!

Chockies.

debbiedo49

Thanks

thespiceman

Hello @debbiedo49 I like this . Thank you sharing and caring.

Thank you for saying the words..  In every way.  I think what you said implies to us all.

As a community.

Some one out there must make this into a song be a smash hit.  I agree with @mikehughescq

Take care.

@thespiceman

debbiedo49

He he 
make it a rap Eminem lol

mikehughescq

I’m working on it on an acoustic guitar.

debbiedo49

Ooh cool!

laceypeach

This actually made me emotional because you have encapsulated exactly how I feel. What a brilliant piece. Thanks 

debbiedo49

Thank you, it just came to me in one go. 

mikehughescq

The best art does.

debbiedo49

Thank you
i do creative writing and poetry occasionally. 
#howarewesupposedtobedisabilities

mikehughescq

You might want to do more of it. I find creativity incredibly therapeutic of itself and it took me years to realise I didn’t need someone else’s permission. 

debbiedo49

Yes I enjoy it thanks. What kind of things do you write about?

djbhoy

Thanks for sharing, really enjoyed this. 

It's something people can't help but ask. We can only be what we are. 

freckles

If only the tory goverment spent more time sorting out U.C. and tribunial waiting times instead of cocking up brexit 

mikehughescq

debbiedo49 said:

Yes I enjoy it thanks. What kind of things do you write about?

No limits really. Found walking triggers lines or verses on anything. The faster I captured it the faster I wrote more on it and the more I wrote overall. Thought I was writing rubbish. Well below where I wanted to be but I read lots on persistence and one night something came to me as a complete song in about 36 minutes. Not looked back since then. Four albums worth. The more you do it the more you do it. 

debbiedo49

When I’m walking sometimes I wish I had a decent camera to capture the scenery around me with the changing seasons. That inspires me. 

debbiedo49

There’s a debate on in parliament today about recognising fibromyalgia as a disability. Pity someone couldn’t be there singing or chanting this lol

sheZZa

You’ve put into words exactly how I feel xx

debbiedo49

Thank you Shezza

debbiedo49

debbiedo49

@mikehughescq did you have any luck with the music?  Just curious Mike 

freckles

Hi i,m looking for a bit of advice i have my pip tribunial hearing nxt wed i had my assesement on 3/01/2018 the assesement was from 13.10 to 14.00... 50 minutes but on the back of the assessors report it says.... Consideration/writing up time 01:30 date 06/01/2018 11:45:34 am i missing something here why would an assessor be writing my report up at 1:30 on a sunday morning and does the assessor have the right to take my personal information home with them to write up my report surely this car,nt be right any advice welcome

debbiedo49

You shouldn't a question in pip section. Good luck

Zaracat4

Debbiedo49
loved your poem. 😀 
You put into words how I feel too. Bless you. X

debbiedo49

Thanks 

debbiedo49

I really need to get back to writing again. 

Ails

I really enjoyed reading this @debbiedo49.  It's great and so true!  Thanks for sharing. 

debbiedo49

Thanks @Ails

Ails

You are welcome @debbiedo49.