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Daily diary for PIP assessment?

laceypeachlaceypeach Member Posts: 35 Connected
edited January 2019 in PIP, DLA and AA
Pip assessment, 
Hi guys I was wondering if anybody else has wrote a daily diary and brought that with them to their pip assessment? I have mine in 10 days and my anxiety is through the roof! X

Replies

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    Yes, lots of people write a diary for evidence. The only problem you may have is the HCP accepting that extra evidence on the day of the assessment. It has been known for them to refuse, it's happened to me twice. Hopefully they'll accept it. Did you send any other evidence with your form?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • laceypeachlaceypeach Member Posts: 35 Connected
    Hello, yes I sent lots of evidence but I have nerve damage and chronic pain as well as  bipolar type 2 and I find it difficult to speak face to face with strangers and articulate how my days are different so I thought maybe I wouldn't have to speak and I could just hand the hcp my diary!! But may be it is not going to be feasable. I'm actually finding the diary writing quite intrusive and just the thought of sharing my day as frankly as I have in this diary hugely terrifying 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You'll need to talk during your assessment because you'll be asked questions about how your conditions affect you. Writing the diary isn't going to help with the part of the assessment.

    Are you able to take someone with you for support on the day? They won't be able to answer the questions but at least they'll be there to support you.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • laceypeachlaceypeach Member Posts: 35 Connected
    Yes I will bring my sister with me, so do you think I should scrap the diary then as they may not read it anyways?

    Thank you so much for your advice 
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Do not scrap your diary. The HCP may not have time to read it and may also decline to accept it but it will be usefull if you don't get the award you deserve and need to appeal.
    You might also consider sending a copy now but it may not reach them in time although it will be logged for the DM to read
    Be all you can be, make  every day count. Namaste
  • chizchiz Member Posts: 59 Courageous
    Hi @laceypeach
    Please take your diary  , you have nothing to lose  , my assessor took extra paperwork from me and read through it , she even commented she would type  the report  at home so would  add all the info before submitting my claim .
    Goodluck and try not to worry , most assessments arnt has bad as we fear x 
    Ellen x   
  • laceypeachlaceypeach Member Posts: 35 Connected
    Thank you so much all of you for your support. I will continue to keep the diary because it may come in useful. I think it will be able to show more than I will be able to say. I'm struggling with the worry that what if I'm having a good day on the day of my appointment and they assess me on that! 
    *huge sigh*
    Riddiculous I know because I pray for good days when I am able to get about and even out of the house 
  • hansrey64hansrey64 Member Posts: 3 Listener
    I had assessment in Nov 2018 I didn't do a diary at all.
  • laceypeachlaceypeach Member Posts: 35 Connected
    Yes it is not a requirement, it was just something I am doing to help me when I have my assessment as I get very anxious 
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Wishing you all the best with your assessment, @laceypeach. Do keep us updated and we'll advise where we can.
  • laceypeachlaceypeach Member Posts: 35 Connected
  • OakwellrejectOakwellreject Member Posts: 7 Listener
    Hi lacypeach I had my wife with me at my assessment and the assessor allowed her to participate hope that helps don't know if it's the norm 
  • laceypeachlaceypeach Member Posts: 35 Connected
    Oh that's good, thank you that gives me hope that maybe my sister will be able to help speak to the hcp
  • sunnydayssunnydays Member Posts: 29 Connected
    Hi Laceypeach, I had my assessement just before xmas and gave another medical report at assessement and hcp worker was happy to accept it. Also my parents both came to my appt and were able to contribute in the appt. I found the waiting for the appt worse than the appt. So try and relax a little. 
  • laceypeachlaceypeach Member Posts: 35 Connected
    Yes it's the waiting that makes it harder because I tend to always go with the worst case scenario in my head. It's pretty mixed it seems on the HCP I suppose. However I definitely feel better having people to talk to about it. I am quite isolated so being able to write things down and have responses from actual human beings is great! And such kind ones too! X
  • sunnydayssunnydays Member Posts: 29 Connected
    You will fine, i too have bipolar and anxiety. Its the unknown that makes me worse. Let us know how it goes.
  • laceypeachlaceypeach Member Posts: 35 Connected
    I will do, thank you.
    Take care x 
  • YadnadYadnad Posts: 2,856 Member
    chiz said:
    Hi @laceypeach
    Please take your diary  , you have nothing to lose  , my assessor took extra paperwork from me and read through it , she even commented she would type  the report  at home so would  add all the info before submitting my claim .
    Goodluck and try not to worry , most assessments arnt has bad as we fear x 
    Ellen x   
    Assessors aren't allowed to 'take it home to complete' if they have more claimants to see. The report is supposed to be completed before they move onto something else.
  • chizchiz Member Posts: 59 Courageous
    @Yadnad hi the assessor told me she would type it up at home x
    Ellen x 
  • chizchiz Member Posts: 59 Courageous
    @yadnad i have just been reading about assessors working day , each one says after a working day they take up to 120 mins typing each report at home .. 
    Ellen x 
  • YadnadYadnad Posts: 2,856 Member
    chiz said:
    @yadnad i have just been reading about assessors working day , each one says after a working day they take up to 120 mins typing each report at home .. 
    Ellen x 
    Well that is news to me. Maybe their memory is a lot better than mine is. If I had a couple of assessments to 'write up' hours later I would not be able to remember everything that had been said at the assessment. 
    I thought the system was that the assessor completed the report actually during the assessment - if not why do they spend all of the time typing away after you have said something? Completely foxed with the PIP system - maybe Mike Hughes could offer his opinion?
  • OakwellrejectOakwellreject Member Posts: 7 Listener
    Don't quote me but my assessor told me she did the report as she was assessing me .
  • YadnadYadnad Posts: 2,856 Member
    Don't quote me but my assessor told me she did the report as she was assessing me .
    That's what I believe should be happening.
    I read recently that the assessors were criticised for going from one assessment to another and then writing the days work up much later. They were told to finish one off completely before moving to the next one.
  • laceypeachlaceypeach Member Posts: 35 Connected
    Oh dear this is all very interesting as I have no clue about any of this stuff. Maybe they write the majority of the assessment whilst you are there and then if you do end up handing them any extra paperwork if they were to take it and that's the info they then type up at home? 
    It's all super confusing and making my heart beat so fast when I think about it.
    So many f2f have been different and I think that is a good thing because we are all different and may have the same disabilities but experience the symptoms much differently.
    Sorry for long ramble, but I hope you get my meaning 
  • OakwellrejectOakwellreject Member Posts: 7 Listener
    I will just say keep calm the interview is not as daunting as you may think you are not rushed and just take time to think before you answer I had read all the negative reviews and was panicking when I got there which didn't help and I'd forgotten what I needed to say all due to negative reviewers .The lady was very easy to talk to and I didn't feel intimidated .Because of my fears I didn't come across as clearly as I should have I now am in the process of waiting for a review of there judgement not because of them trying to trick me but because I basically cocked it up ....
  • mikehughescqmikehughescq Member Posts: 5,987 Disability Gamechanger
    chiz said:
    @yadnad i have just been reading about assessors working day , each one says after a working day they take up to 120 mins typing each report at home .. 
    Ellen x 
    The assessment is done on software which the assessor is typing into as they speak to you.
  • chizchiz Member Posts: 59 Courageous
    Hi i can only go by what happened at my assessment xx good luck @laceypeach and all the waiting was far worse than my actual assessment x
    Ellen x 
  • laceypeachlaceypeach Member Posts: 35 Connected
    @chiz Thank you so much xx
  • YadnadYadnad Posts: 2,856 Member
    I will just say keep calm the interview is not as daunting as you may think you are not rushed and just take time to think before you answer I had read all the negative reviews and was panicking when I got there which didn't help and I'd forgotten what I needed to say all due to negative reviewers .The lady was very easy to talk to and I didn't feel intimidated .Because of my fears I didn't come across as clearly as I should have I now am in the process of waiting for a review of there judgement not because of them trying to trick me but because I basically cocked it up ....
    That just typifies how assessments could be carried out in all cases.
    There are some good assessors who really want to do a complete and accurate job whilst there are others that appear to not care and are inadequate.

    At the end of the day the quality of the assessor can make all the difference in whether you get the right result first time or have to go through the appeal system.

    In my case I have never had a good assessor in all of my 3 face to face assessments, none that even wanted to listen or understand. Consequently I have had to fight every decision.
  • OakwellrejectOakwellreject Member Posts: 7 Listener
    Mine listend I'm just trying to reassure lacypeach if I had not filled my head (as we can do when we are genuinely ill and stressed) with negativity I would not be in the situation Ive put myself in now having to fight the decision . I've eneded up going from full mobilty and middle care after 10yrs and I'm worse now than 10yr ago  to just low rate care and no mobility payment .
  • YadnadYadnad Posts: 2,856 Member
    Mine listend I'm just trying to reassure lacypeach if I had not filled my head (as we can do when we are genuinely ill and stressed) with negativity I would not be in the situation Ive put myself in now having to fight the decision . I've eneded up going from full mobilty and middle care after 10yrs and I'm worse now than 10yr ago  to just low rate care and no mobility payment .
    Three times in the past 5 years  I have gone from maximum Care and Mobility to 0 points every other year since 2013 after all three assessments only to find that after an MR for the first 2 the original award was reinstated. For the 3rd I gave up but am now asking for an appeal as I am way out of date on the 30 days.
  • laceypeachlaceypeach Member Posts: 35 Connected
    Ohhh gosh, I think the whole process is very draining on all of us mentally. I think theres  still such a huge stigma to claiming benefits that we worry, are we disabled enough to someone who is basically judging us. We know we are disabled enough and we know we would much rather be able bodied and able to have a full time job that fitted our needs rather than claim benefits but it's the having to justify and prove to other people that ignites my anxieties. I am so happy and greatful for all advice given to me positive and negative as you end up churning it all together inside your own head. We all have to have the f2f assessments and we will all have varying stories. I just wish we all didn't have to go through these worries about the assessments. I know it's because we end up worrying ahead about how we will manage financially and stress wise if we don't get it and have to go through an appeal. *sigh* 
    X
  • OakwellrejectOakwellreject Member Posts: 7 Listener
    It's terrible what they put us through .My illness is through years of working in the building trade.which I was always employed in sometimes working away all week doing long hours  and earned a decent living now it feels like I have to beg for anl pittence to exist .No one wants to have disabilities or be ill .
  • laceypeachlaceypeach Member Posts: 35 Connected
    I agree, when I was well I could earn more money than benefits. This is not a choice for some people and I wish the government and others would just understand this.
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