PIP, DLA and AA
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DLA to PIP

KG100KG100 Member Posts: 178 Pioneering
I'm still on DLA and was wondering if anyone knows when we'll be changing over to PIP.
It seems to be a never ending wait, I've been on DLA for several years now. 

Replies

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    You're not the only person still waiting to be invited to apply, it could be anytime. The good news is that you'll continue to receive your DLA in the meantime.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • KG100KG100 Member Posts: 178 Pioneering
    Thanks for replying poppy, I think I was first told in 2015 that I'd be invited to apply for PIP soon !!
    But as you said, it's good to still be getting the DLA for now. 


  • wilkowilko Member Posts: 2,294 Disability Gamechanger
    Enjoy your DLA benefits because when you are invited to claim PIP make sure you can give examples of how your conditions impact on your life in reference to the PIP descriptors. 
  • KG100KG100 Member Posts: 178 Pioneering
    Yes, certainly not looking forward to having to claim for PIP but I suppose it's going to have to happen sooner or later. I'll make sure someone helps me to fill it in when the time comes. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You'll also need to make sure that you send evidence to support your claim, they rarely contact anyone for this.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • KG100KG100 Member Posts: 178 Pioneering
    Luckily I did this for my last claim for ESA and wasn't called for a medical or face to face interview.
    It pays to keep all your hospital letters and notes.
  • YadnadYadnad Posts: 2,856 Member
    KG100 said:
    Luckily I did this for my last claim for ESA and wasn't called for a medical or face to face interview.
    It pays to keep all your hospital letters and notes.
    Unfortunately they would not by themselves be enough for PIP. The DWP are not interested in what your illness is, how long you have had it etc.

    For PIP they are only interested in the proof of what the impact has on your life that fits exactly one of the descriptors and that you gain a minimum of 8 points to get the standard award.

  • maya605maya605 Member Posts: 16 Listener
    Hi I’m really anxious. I had my f2f pip on Tuesday and today I received a txt saying DWP had received assessment. 48 hours seems very fast. Also my f2f only took 20 mins which feels quick. I’m so anxious about it all 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    maya605 said:
    Hi I’m really anxious. I had my f2f pip on Tuesday and today I received a txt saying DWP had received assessment. 48 hours seems very fast. Also my f2f only took 20 mins which feels quick. I’m so anxious about it all 
    This doesn't mean anything at all. Sometimes reports are returned to DWP the same day as the assessment took place. I've also had assessments that were very short. My shortest was 10 minutes, my longest more than 1 hour. Means nothing at all. My claims have all been successful.

    Ring DWP and ask for a copy of the report to be sent to you, if you live in the UK. This will give you some idea what the decision will be as they mostly go with the report.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • maya605maya605 Member Posts: 16 Listener
    Thank You Poppy, I’m new to pip. In my info leaflet it says I can’t request a copy until a decision has been made. Good to know that other people have had quick f2f assessments. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    That's not true, if you live in the UK you can receive a copy before the decision is made. I've received copies of all my assessments before a decision's been made and so has many other people.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • YadnadYadnad Posts: 2,856 Member
    maya605 said:
    Thank You Poppy, I’m new to pip. In my info leaflet it says I can’t request a copy until a decision has been made. Good to know that other people have had quick f2f assessments. 
    That's quite correct. The decision in sending out a copy early is entirely down to the DWP. They can refuse (as per the leaflet) but some will ignore that instruction and send it out regardless.
    It's their choice not your entitlement.

  • maya605maya605 Member Posts: 16 Listener
    I received a copy of my f2f assessment today. Reading it and checking points scored. I have scored 8 pts. Also the assessor wrote that it would be appropriate to review the claim in 18 months. Does this sound positive? Obviously got to wait for DWP decision. Feel extremely anxious. 
  • chizchiz Member Posts: 59 Courageous
    Hi @KG100 iv just read there delaying alot of dla to pip assessments until 2020 and 2021 as theyve had to take extra staff to do the reviews already been done , its just come up on my news 
    Ellen x
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    maya605 said:
    I received a copy of my f2f assessment today. Reading it and checking points scored. I have scored 8 pts. Also the assessor wrote that it would be appropriate to review the claim in 18 months. Does this sound positive? Obviously got to wait for DWP decision. Feel extremely anxious. 
    There's 2 parts to PIP, daily living and mobility but you don't add the 2 of these together. If you've added them correctly then that would suggest standard award because you need at least 8 points for this. They mostly go with the report, it's rare to go against it but it can happen. You'll still need to wait for the decision.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • KG100KG100 Member Posts: 178 Pioneering
    Thanks for the info chiz, I really do wonder if I'll still be around when they finally get to me !!

  • YadnadYadnad Posts: 2,856 Member
    chiz said:
    Hi @KG100 iv just read there delaying alot of dla to pip assessments until 2020 and 2021 as theyve had to take extra staff to do the reviews already been done , its just come up on my news 
    Ellen x
    If that is the case then it is totally unfair on those that had to go through the transition in 2013 who weren't 65 only to end up with no award. At least if I had to go through it in 2021 I will be 73 and would have had my DLA High Care & Mobility for the intervening 9 years!!
  • sugarmag375sugarmag375 Member Posts: 2 Connected
    What happens if you get to be on pensionable age before you're 'invited to apply' for PIP, does your DLA just stop and also do you have to pay car tax or does your exemption still last?
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    edited January 2019
    What happens if you get to be on pensionable age before you're 'invited to apply' for PIP, does your DLA just stop and also do you have to pay car tax or does your exemption still last?
    Your DLA continues and you'll eventually be invited to apply for PIP. There's still a lot of people waiting to be invited. Nothing changes with your road tax either.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • maya605maya605 Member Posts: 16 Listener
    hi all, 
    after my f2f my doctor has put me on 15mg mirtazapine to take alongside my 200mg sertraline. The HP wrote in my assessment about the sertraline but obviously the 15mg was prescribed after f2f. Should I ring DWP to inform them of the added meds or wait for the decision? Any advice? 
  • sugarmag375sugarmag375 Member Posts: 2 Connected
    Thanks poppy123456, I saw on the Gov website that you could only apply for pip if you were under 65 and I find it all very confusing! It's good to know I can just wait to hear (still)
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Thanks poppy123456, I saw on the Gov website that you could only apply for pip if you were under 65 and I find it all very confusing! It's good to know I can just wait to hear (still)
    This is correct. However, if you were under 65 on 8th April 2013 you'll be invited to apply for PIP.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    maya605 said:
    hi all, 
    after my f2f my doctor has put me on 15mg mirtazapine to take alongside my 200mg sertraline. The HP wrote in my assessment about the sertraline but obviously the 15mg was prescribed after f2f. Should I ring DWP to inform them of the added meds or wait for the decision? Any advice? 
    No, there's no need to ring them regarding this. You need to be careful when reporting things like this because it's classed as a change of circumstances and you could be sent another PIP2 form.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • YadnadYadnad Posts: 2,856 Member
    Thanks poppy123456, I saw on the Gov website that you could only apply for pip if you were under 65 and I find it all very confusing! It's good to know I can just wait to hear (still)
    You are one of the lucky ones. I was receiving DLA form 1995 (High Mobility & Care) and have had 3 PIP face to face assessments so far since 2013 and fully expect to have them every 2 years for the rest of my life. I have had to fight 3 no points decisions so far. I will be 71 in a few months so that is something to look forward to I suppose.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Not long ago i remember someone on here said "if you don't ask for an ongoing award you'll constantly get shorter ones"
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • YadnadYadnad Posts: 2,856 Member
    Not long ago i remember someone on here said "if you don't ask for an ongoing award you'll constantly get shorter ones"
    I agree, it was Mike Hughes.
    Somewhere in the back of my memory it is policy that the DWP will decide on all available evidence the length of the award.
    Mike is saying that the length and level of the award are one and as such can be appealed against. 

    I always thought that the appellant was duty bound to prove his or her case. In other words the onus is on the claimant in this situation to 'prove' their case as regards the award and the length. The DWP have decided on a time frame and if you do not agree it is reasonable then you have to show why you think that.
  • chizchiz Member Posts: 59 Courageous
    My assessor recommended a 2 year award , DM gave me 10years  , all based on written evidence i submitted x 
    So many different cases out there.
    Ellen x
  • KG100KG100 Member Posts: 178 Pioneering
    That's good news Chiz.
    My DLA award is indefinate, and I'm on 14 different prescription medications now which is more then I was on when I applied for my original DLA. All my meds will be life long, but seem to be increasing each year.
    Also diagnosed with several lifelong illnesses, but I'm still worried about the PIP changeover when it comes !!


  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    KG100 said:
    That's good news Chiz.
    My DLA award is indefinate, and I'm on 14 different prescription medications now which is more then I was on when I applied for my original DLA. All my meds will be life long, but seem to be increasing each year.
    Also diagnosed with several lifelong illnesses, but I'm still worried about the PIP changeover when it comes !!


    Hi,

    Please remember that PIP is different to DLA. PIP is about how your conditions affect your ability to carry out daily activity based on the PIP descriptors. Taking medication and a having a diagnosis, won't help a PIP claim.

    When you are eventually asked to apply and you receive the form you need to concentrate on how your conditions affect you. Adding as much information as possible for each descriptor that applies to you. There's very limited space on the form so use extra paper if needed. Add 2-3 examples of that happened the last time you attempted that activity for each descriptor that applies to you.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • KG100KG100 Member Posts: 178 Pioneering
    Thank's poppy, 
    I'm slowly going through the PIP posts on here, I'm going to make a list of everything so I'm as ready as can be when the change over comes.
    I think I read somewhere that we can download a PIP form so we can have a practise go at filling it in, could be wrong though. 
  • YadnadYadnad Posts: 2,856 Member
    KG100 said:
    Thank's poppy, 
    I'm slowly going through the PIP posts on here, I'm going to make a list of everything so I'm as ready as can be when the change over comes.
    I think I read somewhere that we can download a PIP form so we can have a practise go at filling it in, could be wrong though. 
    https://www.kdc.org.uk/wp-content/uploads/file/Claim Form - How your disability affects you.pdf
  • KG100KG100 Member Posts: 178 Pioneering
    Thanks for that Yadnad, I'll go through it all.
  • Phoebe12Phoebe12 Member Posts: 1 Listener
    I was on high mobility and I think medium care on d.l.a. For 9 years.  When they changed to PIP my assessor fired questions at me and didn’t wait for answers.  I was so poorly through this my brain froze and I couldn’t answer any more (one of the conditions I have is m.e.). I got the lower care but I only got 4 points on disability mobility cos she said although she observed me walking very slowly (cheeky I didn’t know I was being watched) I was on too many pain killers to not be able to walk.  I had been trying to tell her all through the session and in my form my main problem was the fatigue and being to exhausted to walk.  I am very wary about my next assessment because my condition affects my brain and my brain shuts down (and so does my body) when I am exhausted.  I don’t want a repeat of the last time.  I wish I could take a professional person in with me who can stop them from firing questions at me before I’ve finished answering the last one.  


  • sue66sue66 Member Posts: 124 Pioneering
    Phoebe12 said:
    I was on high mobility and I think medium care on d.l.a. For 9 years.  When they changed to PIP my assessor fired questions at me and didn’t wait for answers.  I was so poorly through this my brain froze and I couldn’t answer any more (one of the conditions I have is m.e.). I got the lower care but I only got 4 points on disability mobility cos she said although she observed me walking very slowly (cheeky I didn’t know I was being watched) I was on too many pain killers to not be able to walk.  I had been trying to tell her all through the session and in my form my main problem was the fatigue and being to exhausted to walk.  I am very wary about my next assessment because my condition affects my brain and my brain shuts down (and so does my body) when I am exhausted.  I don’t want a repeat of the last time.  I wish I could take a professional person in with me who can stop them from firing questions at me before I’ve finished answering the last one.  

    Phoebe I to have M.E. and I sympathise with you, like you I cant walk far, I still say cameras should be in every interview and it should be reviewed to witness situations like yours. Its nothing less than verbal bullying! 

  • YadnadYadnad Posts: 2,856 Member
    Phoebe12 said:
    .  I wish I could take a professional person in with me who can stop them from firing questions at me before I’ve finished answering the last one.  

    That will never be allowed. It is your assessment and only you can give the answers and explanations. Many assessors like yours are not going to sit there whilst a claimant witters on with their answers. I have had 4 assessments just like yours where the assessor only wants a yes/no answer.

    Of course it is done to put pressure on the claimant. Some assessors are good at their job, some not so. They have up to an hour to establish if your claim is genuine in all respects and then have to find justification if they think it is not.

  • chizchiz Member Posts: 59 Courageous
    KG100 said:
    That's good news Chiz.
    My DLA award is indefinate, and I'm on 14 different prescription medications now which is more then I was on when I applied for my original DLA. All my meds will be life long, but seem to be increasing each year.
    Also diagnosed with several lifelong illnesses, but I'm still worried about the PIP changeover when it comes !!

    Hi .. i too as was high dla indefinate ,  unfortunatley
    Diagnosis or meds mean nothing to pip , i sent letters from people who help me in my daily routine , ie .. bathroom needs and the help i need cooking and they asked about walking distance, pip mobility is hard as it is really  1 question  that needs to score 12 points , my assessment was nowhere near as bad a i feared .
    Goodluck x

  • tweetypie3tweetypie3 Member Posts: 1 Listener
    I have been on DLA for about 10 plus years after first claiming DLA for the first time all them years ago got turned down twice then it went to court  with the help of CAB and was awarded by a judge for life I have congenital hip dysplasia and curvature of the spine   and osteoporosis I am  having to change over to pip forms to fill in evidence for them. face to face just unnessesary stress for people who have a dissbilty
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