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Suspecting my 4 month old has cerebral palsy

Hi,
I thought I’d come on here as I really need somewhere to vent what’s been happening over the past couple of weeks. I had a traumatic birth with my daughter - she was term and no clear signs of oxygen deprivation but she was born very quickly and unfortunately the midwife wasn’t aware that she was coming. In the past two weeks she’s become very stiff on all 4 limbs, she isn’t taking her bottles very well and is just so unsettled all the time. When she was about 4 weeks old she had what looked like a seizure episode but it was put down to reflux but now I’m convinced it was a seizure. There’s a lot of other little things she does that seem to point towards CP like toe pointing and different tongue movements.
Naturally at the moment I’m terrified, I’ve seen 2 gps, the hv, taken her to a&e as I was desparate for some help but they’ve all said because I’m a paediatric nurse that I’m looking out for things that aren’t there but they referred my daughter to a consultant clinic for a review and I’m just waiting on the date of that. Also what makes it worse is my husband, sister and in laws don’t agree either but I just know. I’m just so scared and I guess I’m on here for some reassurance that everything will be ok in the end. I only have my sister who lives 2 hours away and my parents aren’t alive and I just feel I can’t only rely on my in laws when we finally get the diagnosis. Sorry for the essay - I just needed somewhere to talk!
I thought I’d come on here as I really need somewhere to vent what’s been happening over the past couple of weeks. I had a traumatic birth with my daughter - she was term and no clear signs of oxygen deprivation but she was born very quickly and unfortunately the midwife wasn’t aware that she was coming. In the past two weeks she’s become very stiff on all 4 limbs, she isn’t taking her bottles very well and is just so unsettled all the time. When she was about 4 weeks old she had what looked like a seizure episode but it was put down to reflux but now I’m convinced it was a seizure. There’s a lot of other little things she does that seem to point towards CP like toe pointing and different tongue movements.
Naturally at the moment I’m terrified, I’ve seen 2 gps, the hv, taken her to a&e as I was desparate for some help but they’ve all said because I’m a paediatric nurse that I’m looking out for things that aren’t there but they referred my daughter to a consultant clinic for a review and I’m just waiting on the date of that. Also what makes it worse is my husband, sister and in laws don’t agree either but I just know. I’m just so scared and I guess I’m on here for some reassurance that everything will be ok in the end. I only have my sister who lives 2 hours away and my parents aren’t alive and I just feel I can’t only rely on my in laws when we finally get the diagnosis. Sorry for the essay - I just needed somewhere to talk!
Replies
Specialist Information Officer - Cerebral Palsy
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