Lymphodema

kward4666

Does anyone else here suffer and live with this painfull swelling in legs and feet ?

Pippa_Alumni

Hi @kward4666, I'm sorry you haven't found anybody else with this yet. Would you like to tell us some more about your own experiences?

RainbowJo

@kward4666 i have this. currently its in the top of both my legs the rest went down having my feet up 24/7 while in hospital. but the tops wont go down. 

i was diagnosed last year and put on a list to seen but the wait is a good year. 

hope ur legs/feet r not too bad. 

nikkif

I suffer with it as well as may Turner syndrome in my left leg. The pain is excruciating some days I can barely walk and my leg swells so much I feel like the skin might burst. Some days it gets so bad I have to drag myself to the toilet using the wall as support. 

Garza

i am paraplegic so dont get the pain, but i get severe swelling, I have been advised to rest with the legs prone as much as possible and moisturise the  a few times a day, also have things like compression or bandaging been mentioned to assist, not sure if paracetamol or similar would help with the pain at all 

kward4666

After arguing for 3 years i managed to get the lymphadema nurses to come to me and do the dopler scan and i got my new farrow wraps. At last it was only when i threatened to report them they decided to come.out. after telling me for 3 years they dident do home visits.

Tori_Scope

Blimey @kward4666! Well done for persisting. How long have you had the FarrowWraps for? Have they helped? 

Carlys

kward4666 said:

Does anyone else here suffer and live with this painfull swelling in legs and feet ?

hi yes i have it look up LIPOEDEMA its not lymhodema alot of women have this hope this helps

Lisatho11987777

@kward4666 how long gsvecyou had the farrow wrapped on during my time as a carer in the community  a few people had the same condition the wraps do  reduce the size of the legs  and does help 

Hope you have some results soon