Undiagnosed and rare conditions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Lymphodema

Does anyone else here suffer and live with this painfull swelling in legs and feet ?

Replies

  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @kward4666, I'm sorry you haven't found anybody else with this yet. Would you like to tell us some more about your own experiences?
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @kward4666 i have this. currently its in the top of both my legs the rest went down having my feet up 24/7 while in hospital. but the tops wont go down. 

    i was diagnosed last year and put on a list to seen but the wait is a good year. 

    hope ur legs/feet r not too bad. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • nikkifnikkif Member Posts: 47 Courageous
    I suffer with it as well as may Turner syndrome in my left leg. The pain is excruciating some days I can barely walk and my leg swells so much I feel like the skin might burst. Some days it gets so bad I have to drag myself to the toilet using the wall as support. 
  • GarzaGarza Member Posts: 117 Pioneering
    i am paraplegic so dont get the pain, but i get severe swelling, I have been advised to rest with the legs prone as much as possible and moisturise the  a few times a day, also have things like compression or bandaging been mentioned to assist, not sure if paracetamol or similar would help with the pain at all 

  • kward4666kward4666 Member Posts: 10 Listener
    After arguing for 3 years i managed to get the lymphadema nurses to come to me and do the dopler scan and i got my new farrow wraps. At last it was only when i threatened to report them they decided to come.out. after telling me for 3 years they dident do home visits.
  • Tori_ScopeTori_Scope Posts: 4,033

    Scope community team

    Blimey @kward4666! Well done for persisting. How long have you had the FarrowWraps for? Have they helped? 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • CarlysCarlys Member Posts: 1 Listener
    kward4666 said:
    Does anyone else here suffer and live with this painfull swelling in legs and feet ?
    hi yes i have it look up LIPOEDEMA its not lymhodema alot of women have this hope this helps
  • lisathomas50lisathomas50 Member Posts: 3,840 Disability Gamechanger
    @kward4666 how long gsvecyou had the farrow wrapped on during my time as a carer in the community  a few people had the same condition the wraps do  reduce the size of the legs  and does help 

    Hope you have some results soon 
Sign in or join us to comment.