PIP, DLA and AA
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Switched from DLA to PIP

dpearle1966dpearle1966 Member Posts: 2 Listener
edited January 2019 in PIP, DLA and AA
I got the decision today and it's what I'd expected they reduced my claim to standard from high on both. The way the questions are most will lose as it's to benefit them not us, if it were to help us they'd of transferred us right over but no they want to take all they can.
The way it's worded you can't really fight it because they've moved the goalposts, it's very cruel how someone sat there to word things so you lose. 
Also if you fight it you can lose what you've already won and no one can afford to lose any thing I know is not be able to live so I'll have to suck it up.

Replies

  • Ami2301Ami2301 Community champion Posts: 7,175 Disability Gamechanger
    Hi @dpearle1966 welcome to the community! 

    Sorry to hear what has happened. Will you be appealing this decision?
    Community Champion
    Disability Gamechanger - 2019
  • dpearle1966dpearle1966 Member Posts: 2 Listener
    Thanks for the reply.
    Reading how it's put I don't see how I can, they changed the criteria so those who got high rate mobility on DLA fall just short under new rules. 
    They've been very sneeky how they've done this. 
    I'll think a bit though but at the moment I can't see how I can win 
  • Pippa_ScopePippa_Scope Member Posts: 5,856 Disability Gamechanger
    Welcome to the community @dpearle1966, and I'm so sorry to hear of your outcome. I'm sure many of our community members will be able to empathise, and I hope you're faring as well as possible.

    If you do decide to appeal, please do keep us updated and we'll advise where we can. 
  • samantha21samantha21 Member Posts: 64 Connected
    H everyone,
    I am just commenting on dpearle1966, it is hard to get the decisions that take away our money so sorry to hear that.
    I have also been taken from DLA and over to PIP and have found out that no enhanced mobility has been given, I found this out from the Mobility by post yesterday.
    I spent most of the day at hospital yesterday after falling badly on Sunday so the bit of mobility I had at f2f which was not excellent is now even worse.
    I have just been on phone to DWP as award letter has not even arrived to me. I was told it was dated and sent on 24th January so have been told another is coming out to me. I asked for them to make sure it is dated for being sent out on 30th January as the rule is you only have 28 days if asking for an MR.
    I like dpearle 1966 may decide to put in for MR  anyone  who can advise it would be appreciated.
     I know Pippa-Scope is most knowledgeable and has some good website links to direct people to perhaps she can help me.
    Thank-you.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    H everyone,
    I am just commenting on dpearle1966, it is hard to get the decisions that take away our money so sorry to hear that.
    I have also been taken from DLA and over to PIP and have found out that no enhanced mobility has been given, I found this out from the Mobility by post yesterday.
    I spent most of the day at hospital yesterday after falling badly on Sunday so the bit of mobility I had at f2f which was not excellent is now even worse.
    I have just been on phone to DWP as award letter has not even arrived to me. I was told it was dated and sent on 24th January so have been told another is coming out to me. I asked for them to make sure it is dated for being sent out on 30th January as the rule is you only have 28 days if asking for an MR.
    I like dpearle 1966 may decide to put in for MR  anyone  who can advise it would be appreciated.
     I know Pippa-Scope is most knowledgeable and has some good website links to direct people to perhaps she can help me.
    Thank-you.
    Hi,

    You need to put your request in writing stating what you disagree with, where you think you should score those points and your reasons why. Adding 2-3 examples of what happened the last time you attempted that activity.

    They will only take into consideration your condition at the time of the decision, any worsening condition since then won't be considered.

    I'd advise you to get some face to face advice from your local advice agency. Good luck.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • samantha21samantha21 Member Posts: 64 Connected
    Hi Poppy123456,

    I understand what you are saying so if I put it in writing what I disagree with, where I think I should have scored those points and my reasons why then they will look at it. If I give three reasons in regard of mobility/walking  and the third reason explains that I fell over while trying to take a few steps will that be viewed as can I walk the distance safely (that will be the distance I put on my pip form)
    to an acceptable standard, and in a reasonable time period. All conditions were already on pip application even told them about falls so it is not a new condition.

    C.A.B. are booked for weeks in advance and I have not time to wait, I am already having to wait for the decision letter like I say they will send out the letter dated 24th January which will add confusion as they want back within 28 days of that date.

    I was thinking of going back to the M.P. as a caseworker faxed all original pip form /evidence to  DWP after they lost all my paperwork and now more nightmares they say  they sent out the decision letter I have not seen it, yet I get all sorts of rubbish mail I do not want. Slight problem also because I am only hobbling about shakily on the injured leg and am not going anywhere at the moment as I am trying to ease myself into being a little bit mobile.

    Any further thoughts on this much appreciated.
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    I got the decision today and it's what I'd expected they reduced my claim to standard from high on both. The way the questions are most will lose as it's to benefit them not us, if it were to help us they'd of transferred us right over but no they want to take all they can.
    The way it's worded you can't really fight it because they've moved the goalposts, it's very cruel how someone sat there to word things so you lose. 
    Also if you fight it you can lose what you've already won and no one can afford to lose any thing I know is not be able to live so I'll have to suck it up.
    The purpose behind PIP was to save money - a lot of money. Far to many people were claiming DLA for silly things.
    As for walking, it was deemed that if you really had this extreme problem then you would not be able to walk just a couple of metres never mind 20 or even 50. They have tried to gear it that those at the top end of the disability scale are awarded the most.
  • samantha21samantha21 Member Posts: 64 Connected
    I am just commenting on Yadnads  post about switching from DLA to PIP.

    The pip descriptors ask about moving around and the walking which is 20 metres and 20 to 50 metres and upwards.  I fully appreciate that there will be claimants at the top end of the scale and will not dispute any genuine claimants.
    As far as the DLA comment about people claiming for silly things I would totally say you are making an outrageous comment  !!! and having gone through the DLA process I can assure you it was very stringently tested and  all even back then had descriptors and rules, and people certainly did not get it for no good reason.


    I have been asking for much advice on here for the PIP they are putting me on and I thought I had come to the correct site to find supportive like minded people
    however I have at times had some helpful people but in general the level of support and people making outrageous and stupid remarks is insulting to disable people on here I am coming to the decision not to use this site anymore as it is not helping me and although we are here to learn and be tolerant  some of the remarks are just inexcusable.
    Good-bye Scope have a great day.
  • wilkowilko Member Posts: 2,206 Disability Gamechanger
    When the government started PIP it was to save money 20% but it has been proven that the hoped changes to save money has in fact increased the spending by more than 20% that was hope to be saved by introducing PIP.
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    I am just commenting on Yadnads  post about switching from DLA to PIP.

    As far as the DLA comment about people claiming for silly things I would totally say you are making an outrageous comment  !!! and having gone through the DLA process I can assure you it was very stringently tested and  all even back then had descriptors and rules, and people certainly did not get it for no good reason.
    The comment about silly things was in fact referring to what the government said about DLA when they brought out PIP. To put it into context, the government's point of view was that, at the end, DLA awards were being made not by reference to the original intent of DLA, but by the many court cases that opened up the benefit way and beyond what it was intended for - some awards were for 'trivial and silly things'.

    The other argument that the government put up to convince us that DLA had had it's day and there was a need for change (to reduce the number of DLA claims & awards) was that some claims were settled without any independent assessment and often without any supporting evidence. They relied just on the claim form itself. Then they went further and suggested that many DLA claimants received an award and continued to receive it for up to 21 years without anybody checking if it was still appropriate. Giving the responsibility to the claimant to tell the DWP that they no longer needed/wanted the award or part of it. They did not trust claimants to be that honest.

    To be honest I have to agree in part with those comments in that I started with DLA in 1995 and ceased in 2004 and restarted again in 2011 until 2013. In all of that time I did not have any assessment, nor did I send any evidence in other than a short letter from my GP and a copy of my prescription list. For that I was awarded and re-awarded High Mobility & High Care.

    Come my PIP assessment in 2013, I was awarded the grand total of 0 points!!
  • samantha21samantha21 Member Posts: 64 Connected
    I  seem slightly to have gone back on my word here because in an earlier reply to Yadnad I said due to comments and what I see as unhelpful remarks I am not going to post on here again.

    So just to let Yadnad know in the past I have been employed full time and never had the mindset to take government benefit unless I was entitled. I only found out about DLA from a welfare support officer who told me to claim it. I actually got turned down first time of asking. I later applied again.

       I do not read vast amounts about what the government say and do but obviously they do have to make sure people do not get money if they are not entitled. I filled out the DLA  form had to get supporting medical evidence  and was assessed by the Atos that they used back in 2010. I was successful and received highest rate Mobility. I have been receiving that award up until now, and will be getting ready to ask for.MR. since PIP decision.

    I  do wonder why you had the benefit gap from 2004 until  2011 when you obviously re-applied and were re-instated to High Mobility and High care perhaps you have a condition that fluctuates. Did your condition greatly improve then you became ill again.?


    To be awarded 0 points from the PIP assessment seems rather drastic and anyway could you not reapply again and give it another try.?

    Do not take everything in the media about what the government do and do not say about benefits, when it comes down to it make the application on your own terms and just go for it what have you got to lose and maybe you could have something to gain you are the only one that knows your condition so put your point across and do not let negative thoughts  set in.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    It's very difficult at times to read text speak and can sometimes come across as being very rude, when it's not. If there's comments/replies that you don't like then simply put that person on ignore, this way you won't be able to see any more of their replies.

    To do this, click the name of the member and that will take you to their profile. At the top of the screen there's a little man, click this and simply put the person on ignore. Trust me, it works wonders.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger

    I  do wonder why you had the benefit gap from 2004 until  2011 when you obviously re-applied and were re-instated to High Mobility and High care perhaps you have a condition that fluctuates. Did your condition greatly improve then you became ill again.?

    To be awarded 0 points from the PIP assessment seems rather drastic and anyway could you not reapply again and give it another try.?

    Just to quickly answer your question.
    In Feb 2004 I was admitted into hospital as an emergency and spent the next 3 months both in HDU, on a general ward, back into HDU and back on a ward. For a couple of weeks it was touch and go whether I would survive the night. My wife was called twice in the middle of the night to get to hospital as it was believed that I would not survive until morning.

    Whilst in hospital my DLA award came to an end and the DWP sent out a renewal pack. Obviously my wife was clueless as to what to do with it and given my condition it was put to one side. 

    I was discharged in May 2004. my weight had gone down from 13.5st to 8.0st on discharge. In all of that time I had eaten nothing (fed by tube into the central line in my neck) couldn't stand up, or make sense of my surroundings. It took until 2011 before I was able to pick up the DLA claim (amongst another stopped claim) I submitted the form and was re awarded what I previously had. Then I moved over to the next benefit and did the same.

    Because I was in hospital and totally unable to deal with my affairs, the DWP stopped my DLA in March 2004 for not sending back the renewal form.

    Oh I forget, during that time of recovery I was sectioned as I was a danger to myself as well as others.

    I had to fight three decisions otherwise being 70 I would not be allowed to make another claim.

    It's been 12 months so far with no benefit payments. You could say this is the last throw of the dice to receive a disability based benefit.
  • STANDUPOAPSTANDUPOAP Member, Member - under moderation Posts: 62 Connected
    I got the decision today and it's what I'd expected they reduced my claim to standard from high on both. The way the questions are most will lose as it's to benefit them not us, if it were to help us they'd of transferred us right over but no they want to take all they can.
    The way it's worded you can't really fight it because they've moved the goalposts, it's very cruel how someone sat there to word things so you lose. 
    Also if you fight it you can lose what you've already won and no one can afford to lose any thing I know is not be able to live so I'll have to suck it up. Yea I'm new here, hi everyone, my wife was asked to go for a PIP assessment after 10 years of being on higher disability benefit, The lady at the assessment centre was not from this country her English was straining to understand but treated her ok, asked many questions asked her to walk up the aisle. When they sent back  their report she  NO POINTS card. 10 YEARS DISSABLED her leg never got any better, bless her, now she not disabled? Can that be possible? sent in appeal and mandatory request with SSCS1 form, as you do, as we all did. SCOPE tells you where you can get The SSCS1 form.  OLD age Pensioners can download it off the internet, (yea sure they all know how to do this) That saves the DWP a few bob and SCOPE says nothing about those that have no computer nor does DWP. But not a problem for SCOPE says you can get SSCS1 form from Local Library, CITAZAN ADVICE BUREAU, CARE COMMUNTTI, YEA phone up 34 libraries none had the forms 22 CABs STILL NO FORMs tried CARE Community they never had the form either, IN the end I waited half an hour in Citizen advice b and they downloaded the document you ALL MUST HAVE. but and there's always a but nobody at the CAB was available for 5 weeks to help me fill it in? So not going to give in yet, gets me self up to this Care Community place and Bingo they got an elderly lady who knows all about how to help fill in this VITAL SSCS1 form. Sorted so go and get 4 copies of this form. Send one to DWP one to hcc Courts sent by registered mail all with in time. 28 days. Then about 6 weeks later we get a letter from the Courts saying we have to go to Court but it might be some time as they are behind. Then we get a letter from DWP 100 page letter giving all the details, all letters doctors reports assessment centres results. Even from people my wife never met, twice. ANYHOW IF YOU HAVENT FALLEN ASLEEP YET AND YOUR GETTING BORED MAKE A CUP OF TEA GOT SOMTHING TO TELL YOU MIGHT JUST MIGHT GET YOU ALL YOUR PIP BACK MIGHT HAVE GOOD CAUSE FOR WHAT HAPPENED NEXT 

    I'M reading the 100 page report and I cant find the SSCS1 form in our defence, I sent a copy to DWP and a copy to the Courts, Yet both never realized or noticed that it was missing. Now as SCOPE and The courts tell YOU YES YOU that there's no need to bring anything to the courts because the DWP WILL SEND ALL TO YOU. so the Courts trust the DWP to do this? WHAT say that again. the Courts state on the sscs1 form the DWP will do something so you don't have to? are they working together?  So I get onto our MP  no other than ALOK SHARMA DWP MAIN MAN, asks him about best way forward about this? and asked him not to do anything without my say so. BANG, BANG what does he do, He sends the Courts a letter asking why this SSCS1 form is not in the 100 page DWP defence script. What? He went behind my back and asked if this form should have been summitted in this DWP report. Got a letter from the Courts yes it should have been included. And then they went and informed the DWP. So if they left out this very important SSCS1 form of ours what did the DWP leave out of your PIP claim? The Court will be found unfit due to this Error of Law. Stating DWP will send all correspondence  about your PIP claim. So yes what will be the next move by DWP by COURTS now after this error. Should imagine they would have to pay all those that lost there PIP Claims as this Statement from the Courts on DWP behalf doesn't hold up. Haven't as yet got anything from DWP. But I expect there's people on this site that work for DWP who will come up with something to wriggle their way out of this one, wait and see. 

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