All in my head?? Or ..... — Scope | Disability forum
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All in my head?? Or .....

Mamar23cuties Member Posts: 2 Listener
I have suspected from very early on that my grandson may have cerebral palsy, he will be 1 years old next month and as the months have passed i have watched as he develops and my concerns havent eased any infact i am only more so convinced. 
But I am just his Nanny !!!
His mum seems un-worried and i have to be very careful with anything i say regarding my worries as it causes tension within the family along with arguments etc,  wasnt so long back i recieved several nasty and unpleasant msgs from THE OTHER NANNY ? telling me to get a life and stop trying to make out that there is something wrong with her grandson!!!!.... (hmmm!!!.. )
So now i keep quiet and do not air my concerns to anyone .. 
I feel like im going mad!!
I do expect that at some point it will get picked up and acted on but hate that for now i can do nothing to help my beautiful little chap ?
I read time and time again that early intervention is vital but i am un able to get any help for him and given my sons partner really isnt the nicest of girls i fear.. (no i know!!).. she will keep my grandkids away from me (defo the kind of girl she is!!) so i dont push my concerns or speak of it any longer.
My head tells me there is something wrong with my grandbaby, my heart tells me he is being neglected by his crazy ass controlling mother... and my soul aches with sadness and pain right now ?
I pray for nothing more than for me to be wrong and him to be just fine, and its all just in my head..... but ... i am right ??. 
Help, Advice and kind words needed right here please? ? ?


  • LaughingLolly
    LaughingLolly Member Posts: 100 Pioneering
    Peolle take time to come to their own conclusions. Accepting illness is a type of grief. Grief is progressive and has many stages - one of which is denial.  Their attitudes both toward you and any signs they may or may not see in your grandson show a lot about their attitude towards illness and disability anyway. Sit tight and be humble and trust that what needs to happen will.  All kids go to nursery so early on now and those nursery nurses are trained to spot things now and know all the development stages.  Any problems your grandson has will likel likely be spotted in due time. But now you know you will have to support your grandson through some of the ignorance he may have to face. Keep your self strong and mentally well and able to support and do not succumb to family arguments and sides.
    A laugh a day keeps the psychiatrist at bay. 
  • Richard_Scope
    Richard_Scope Posts: 3,106

    Scope community team

    Thanks for your post. Family can be challenging at times, can't they? Have you talked about your concerns with your son? I agree with @LaughingLolly, there may be an element of denial involved and that any issues should be picked up by professionals that come in to contact with your grandson.

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  • SaraC_Scope
    SaraC_Scope Scope Navigate service, CP Network Posts: 36 Courageous
    Hi @Mamar23cuties

    Thank you for your post.  It must be a really challenging time for you at the moment, when all you want is to support your grandson.  I agree with @LaughingLolly and @Richard_Scope with the denial aspect.  Hopefully in the coming months any issues will be picked up and the appropriate support will be provided.

    If there is a diagnosis of disability or impairment and your grandson's parents or carers feel they need support, please visit Scope Navigate.  Navigate provide a six week programme of online and telephone support to parents at the start of their journey with a disabled child. 0808 801 0510

    Kind Regards


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