I have fibromyalgia and CRPS — Scope | Disability forum
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I have fibromyalgia and CRPS

debzje
debzje Community member Posts: 1 Listener
I have fibromyalgia and CRPS but at the moment I’ve got a cough that I’ve had since November and it’s knocking me about at the moment as I’ve had countless antibiotics but it doesn’t seem to help. Had a chest X-ray got a lung function test.. I just want to stop hurting and get my energy back.. works not understanding this .. 

Comments

  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,780 Pioneering
    Hi @debzje

    Thank you for sharing this with us. I am sorry to hear about this, that's a while to have a cough. How are you doing today?
    I hope you get some answers soon regarding what might be wrong.  You may find our Reasonable adjustment at work page useful and feel free to join our dealing with chronic pain discussions

    Please keep us updated and let us know if you have any questions.
  • steve51
    steve51 Community member Posts: 7,153 Disability Gamechanger
    Hi @debzje

    Good Afternoon & Welcome ???

    It’s great to meet you today ???

    I am one off the Community Champion’s on the site.

    Yes I have also got “CRPS”

    I have had this since 2005.

    Please let me know if there’s anything that I can help you with.

    @steve51
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    Hi @debzje, how are you doing? 
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,671 Disability Gamechanger
    Have you ever seen a pain clinic? 

    Pain clinics
    People with chronic pain may be able to attend a specialist Pain Clinic for assessment and possible pain management, together with advice on living a fuller life in spite of pain.
    Pain Clinics vary in the treatments offered and not all hospitals may have a specific pain clinic. Sometimes a Consultant with an interest in pain will prescribe drugs or give injections to try to control pain. Other clinics have teams of doctors, psychologists, nurses, physiotherapists, occupational therapists and others.
     
    Pain Management Programmes
    A Pain Management Programme (PMP) is a psychologically-based rehabilitative treatment for people with chronic pain which remains unresolved by other treatments currently available . It is delivered in a group setting by an interdisciplinary team of experienced health care professionals working closely with patients.
    Some Pain Centres may run Pain Management Programmes that aim to teach a group of patients with similar problems about pain, how best to cope with it and how to live a more active life, others may offer acupuncture and other complementary therapies.
    For the majority of people, attending a Pain Management Programme reduces the disability and distress caused by chronic pain by teaching physical, psychological and practical techniques to improve quality of life. It differs from other treatments provided in Pain Clinics in that pain relief is not the primary goal, although improvements in pain following participation in a Pain Management Programme have been demonstrated.
    Referral to a Pain Management Programme is usually via your local pain clinic.
    The British Pain Society has produced a publication on Pain Management Programmes, which can be found HERE.


    This information comes from the British Pain Society.

    Scope
    Senior online community officer

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