14 year old son just diagnosed — Scope | Disability forum
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14 year old son just diagnosed

SarahClark
SarahClark Member Posts: 1 Listener
edited April 2021 in Cerebral palsy
Hi, not even sure where to start, but my 14 year old son received a diagnosis of cerebral palsy just before Christmas. Always knew there was something wrong, have not been told anything else, seeing paediatric neurologist this week hoping for information on what happens next.
neither my son or I quite know what to think about all this.
feeling in a sort of limbo.
any advice would be greatly received 
sarah

Comments

  • Adam_Alumni
    Adam_Alumni Scope alumni Posts: 164 Pioneering

    Hi @sarahclark

    Welcome to our community.

    I have CP too and  I can understand that this can be a challenging time for all concerned.

    You may find our  Cerebral Palsy discussions of interest to you. Our Cerebral Palsy Information Officer will also be able to advise you and answer any questions that you have.

    Please let us know if we can assist you with anything further.

    All the best

  • Richard_Scope
    Richard_Scope Posts: 3,176 Scope online community team
    Hi @SarahClark
    Great to meet you.
    Receiving a diagnosis can lead to mixed emotions for you all. One the one hand it is a relief to have your thoughts and feelings confirmed and on the other not knowing what to do next is scary. Diagnosis is a difficult and lonely time. You are not alone with this.  You might want to post in our Parents and Carers discussion. We have lots of parents that have experienced what you are going through.
    I will include some links to our Diagnosis and Cerebral Palsy and Young People information. Also, my colleagues in our Navigate Team can offer you additional support and advice.

    I would love to talk with you further and try to answer the questions you have :)
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • Beverley_Scope
    Beverley_Scope Scope Navigate service Posts: 84 Pioneering
    Hi @SarahClark

    Welcome to the online community.  

    My name is Beverley and I am a parent advisor for the Scope Navigate service.  Navigate provides a six week programme of online and telephone support to parents who have a child going through diagnosis, or who have a child who has recently been diagnosed with a disability.  The aim is to provide parents with emotional and practical support that will help them build resilience as they start their journey as a parent of a child with a disability or impairment. 

    I hope that we can help you if you feel that this may be the right service for you.

    Below is a link to the online referral form:

    http://scope.org.uk/navigate

    Our phones are also live from 9am - 8pm Monday to Friday and 9am - 12pm on a Saturday.

    Beverley
    Beverley Davies
    Parent Advisor
    Navigate

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