14 year old son just diagnosed
SarahClark
Community member Posts: 1 Listener
Hi, not even sure where to start, but my 14 year old son received a diagnosis of cerebral palsy just before Christmas. Always knew there was something wrong, have not been told anything else, seeing paediatric neurologist this week hoping for information on what happens next.
neither my son or I quite know what to think about all this.
feeling in a sort of limbo.
any advice would be greatly received
sarah
neither my son or I quite know what to think about all this.
feeling in a sort of limbo.
any advice would be greatly received
sarah
Comments
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Hi @sarahclark
Welcome to our community.
I have CP too and I can understand that this can be a challenging time for all concerned.
You may find our Cerebral Palsy discussions of interest to you. Our Cerebral Palsy Information Officer will also be able to advise you and answer any questions that you have.
Please let us know if we can assist you with anything further.
All the best
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Hi @SarahClark
Great to meet you.
Receiving a diagnosis can lead to mixed emotions for you all. One the one hand it is a relief to have your thoughts and feelings confirmed and on the other not knowing what to do next is scary. Diagnosis is a difficult and lonely time. You are not alone with this. You might want to post in our Parents and Carers discussion. We have lots of parents that have experienced what you are going through.
I will include some links to our Diagnosis and Cerebral Palsy and Young People information. Also, my colleagues in our Navigate Team can offer you additional support and advice.
I would love to talk with you further and try to answer the questions you have
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Hi @SarahClark
Welcome to the online community.
My name is Beverley and I am a parent advisor for the Scope Navigate service. Navigate provides a six week programme of online and telephone support to parents who have a child going through diagnosis, or who have a child who has recently been diagnosed with a disability. The aim is to provide parents with emotional and practical support that will help them build resilience as they start their journey as a parent of a child with a disability or impairment.
I hope that we can help you if you feel that this may be the right service for you.
Below is a link to the online referral form:
http://scope.org.uk/navigate
Our phones are also live from 9am - 8pm Monday to Friday and 9am - 12pm on a Saturday.
BeverleyBeverley Davies
Parent Advisor
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