PIP, DLA and AA
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PIP Motobility

jrobin08jrobin08 Member Posts: 7 Listener
Hi everyone. I was hoping for some advice just to make sure I am making the right decision. I have Bi polar and Crohns Disease, and have been awarded enhanced Mobility and Standard daily living. I can't drive nor do I have a license but I use so much of people's time them driving me to the shop and appointments as for the life of me can not cope been out alone or public transport, and also need to have easy access to a toilet. I have ordered a Motobility Car and has my friend down as the driver. I feel like this is the only fair thing to do as the car is much better on fuel than his, and I will feel less guilty since I am paying for the car. However, the response I have got from others has been really bad. I have been told I am lazy and people with real disabilities should only have them. Also I have been told now I will lose the award as the DWP will say I can leave the house. I am so stressed that I just want to cancel the car. Anyone have an experience of having one with a "hidden" disability? Thanks

Replies

  • jrobin08jrobin08 Member Posts: 7 Listener
    Also to people who do say I am lazy, I had worked for a number of years until I was sectioned. Plus work were giving me bother about the toilet breaks. I was hopefully wanting to pass my test eventually and return to work as now I wouldn't have to deal with public transport. Does anyone have an idea on the impact of this on an award?
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    I'm sorry to hear that people have been judgemental towards you. Unfortunately, you'll always get these sort of people where ever you go. Personally i wouldn't worry what everyone else thinks and just carry on with the car you've ordered. It's none of anyone else's business what you have or do.

    As for losing your mobility award if you get the car this isn't true and will depend on your reasons why you're claiming Enhanced mobility.

    For the mobility car do be aware that your friend will only be able to use it for your purpose but this doesn't mean you have to be in the car for every journey they make.

    My advice, enjoy the car and good luck!!
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • jrobin08jrobin08 Member Posts: 7 Listener
    Hi thanks for your advice. The reasons stated on the award was unable to leave without another person and the safety of myself and others. It would be unlikely I would drive alone anyway.
  • wilkowilko Member Posts: 2,353 Disability Gamechanger
    Since you don’t drive and as long as your friend does not use the car for his personal use and be seen and reported for doing so then having a mobility car will allow you to be driven for shopping, appointments and days out. Good luck and enjoy your new found freedom.
  • hvc19octhvc19oct Member Posts: 2 Listener
    I am having a nightmare with PIP had pelvic radiotherapy and a bad combo of chemo drugs and no I can only walk a few metres before pain kicks in and then within 10m left foot is a numb block of wood and left sole a,so numb. Have tennis elbow from using crutches, had to take out a loan to get an automatic car as could no longer use a clutch. Employ people for 10 hours a week so I can shop - after several meltdowns and nighttime situations. I have. I’ll salt malabsorption so constant toilet visits and in a big hurry as no notice for this. Aparantly I would be fine getting in and out of a bath on own with a rail - my Physio nearly choked when I told him this. I use wheel chairs I. A number of situations and While I. An go out if I know Ican park outside due to foot drop and a numb foot and chronic pain I am a liability. Apparently I am fine and only get lower rates! Husband works away so due to danger do not cook and have cereal for dinner every night and get a bought sandwich for lunch - I am getting worse by the month. They basically say I am a liar.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @hvc19oct   Pleased to meet you welcome.

    Sorry to hear what you are going through. Thank you for sharing and joining.

    I am one of the team of community champions who help and advise new members who join the forum.

    Reading your personal circumstances. Especially having to employ people to help you shop.

    Please can I suggest have a look at on line shopping .  All you need is a credit or debit card from any bank or building society.

    Many of the major supermarkets do home delivery service some even late at night.

    I use TESCO come right into the home and into the kitchen.  Unpack every thing.  Lot easier.  Also very useful. On the Patient Access website so delivery of prescription to home.  Apply to Doctors surgeries.

    From Doctors to Chemist nominated to my home.

    Use Amazon for anything else clothes household and the rest.

    Banking do on line.

    Not able to cook.  I understand that. Look on line for companies that specialise in frozen meals to your home. Deliver and put into a freezer for you.

    These are microwave meals.  Pay for so much a week buy on line for options lots available.

    I have mental health issues and a disability .  Use a lot of things on line.

    Have no car now lost that due to PIP assessment made a choice to not have to go through appeal.  Too much anxiety and stress plus a financial incentive worth thinking about.

    Use taxis. Many taxi firms want your business, have and do take members of our community. Many are aware of the problems with PIP. Loss of cars, book on line or use texts to book .

    Have a look many are a lot cheaper that you think. If looking at costs versus what you might outlay for a car.

    Something to consider, also many do door to door.

    Just to reassure you.

    Please ask if we can help and advise with anything .  Always here to listen.

    Pleasure to meet you.

    Take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • hvc19octhvc19oct Member Posts: 2 Listener
    Thank you Spiceman - I just am struggling to admit defeat and loss of independence -  am such a liability when I go out on my own and as my physio says am an accident waiting to happen. I am hoping that after MC was turned down as they just did not believe me my formal complaint that is going in this week will speed the process up - just picked up a letter GP has written and it is damning. Getting physio report is a nightmare due to rules - anyway by end of week should have a copy of my notes which will show Yep - I am not making this up!!!. Not everyone lies about their condition to get PIP but it seems the policy is we are all a bunch of liars so the answer is no. I am going to need car hand controls soon as right leg is going the same way as left leg - would help if I had a neurologist who had at least some interest - I need an answer as to what and why.
  • samantha21samantha21 Member Posts: 64 Connected
    Hi to all,
    Sorry to jump into the discussion, but I have read a few of the posts and perhaps someone may know an answer to my question. In particular hi @thespiceman as you seem to know a lot being a community champion.
    I have received my mandatory consideration and it has not changed the original decision. I did not score on mobility needs and now it could be the time to tell motability that the car can go back. I am asking if I still go onto appeal will I still be paid the part of the PIP award they have given me or does that stop until after the appeal?
    The anxiety and stress has already dragged me down into depression and not sure if I can hold out for an appeal.

    Motability told me I can keep the car even up to the appeal as long as I keep them in the loop what is happening although I have heard that appeals are taking about one year so all this waiting is such a stress trigger and I am trying to weigh up the pros and cons of it. If I still get paid the award they have given me I may consider appealing but if that stops then I am financially unable to keep going. Any advice is appreciated. thank-you.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    You will keep being paid the award you have until a new decision is made
    Be all you can be, make  every day count. Namaste
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @hvc19oct   Thank you for reply. Sorry to hear all this. Please can I suggest try to put some of the things I have advised into place.

    No one wants to lose their independence the loss of dignity.

    I live on my own and know need to put plans, guidelines into place to prevent myself from being ill.

    Having a illness or condition or disability is how you deal with it. Always difficult to cope some days not good some days average other days.

    It is finding an equal balance. 

    I am not an expert, professional but we all of us have talents, skills, abilities we use with out realising it.

    The most important thing about coping an dealing with anything is to make it simple.  Why rush about shopping instead on line choosing and paying your goods . In a warm house. Anytime you wish to.

    Also make everything simple that needs to be simple.  Stress and anxiety are my enemies so why do I need to bring them to my mind.

    You mentioned Physio accident waiting to happen.  Then do small steps think and plan. Get a diary make some plans and goals to cope.

    Stress if causing these issues and problems find sensible, practical solutions to deal with any of it.

    Reasons I do a lot of the statements in my post to you.  What I do. Except the cooking do that.  Have fingers missing, standing issues and cutting, dicing food.  Memory problems.

    Use time savers, short cuts, blenders, food processors. Limited ingredients.

    Need a plan always.  Write down what I need to do tonight.

    Same with anything phoning some one or speaking to some one.

    These are just suggestions and ideas.  Over a long thirty years been on my own every day.

    Please can I add why do you need the hassle of a car if it is being a problem.  Adding controls and more expense.

    More stress may I add. Plus anxiety.

    Something to think about.

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @samantha21   Thank you for kind words.

    I am unfortunately not too good with benefits knowledge as my friend @CockneyRebel .

    Who I thank and look to for advising on the issues of Motability.

    Much appreciated.

    I would also consider the various options made to you.

    I myself could have appealed but lost the car decided to hand it back. Took the financial incentive.

    Use taxis and lots of stuff on line all helpful.  Plus realised the constant anxiety be heightened. If I wished to appeal.

    Like your self.

    Add to that am middle fifties this year do I need this hassle again. If I won only three years again could lose the car again. All over again something to think about.

    Have been stories on here exactly like that.

    Best wishes what ever outcome you decide we are here to support you.

    Take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • samantha21samantha21 Member Posts: 64 Connected
    hi, and thank-you to  @CockneyRebel for letting me know about keeping the award they have already set me.

    All these problems are sent to test us. I need to make up mind about the appeal now it is all more stress.

    I was going to hand back the car if things did not go my way as tired of the fight but three days before I had my award letter I had a fall and that was all part of my mobility problems long term back pain and sciatica with left knee damaged in previous fall and now arthritis in it. All this was on PIP form but a not so good assessor  said my legs were just weak and so no points for mobility, and then as I say another fall exactly same knee  and still in pain been referred back to usual place of physio and also appointment at pain management. I feel the assessor report got me this  In fact I would have handed the car back when the letter came but I was in no fit state after the fall and basically hobbled about the house for almost three  weeks with family calling in and helping me out, I told them this on mandatory reconsideration but no change out of them, so lost the chance for handing the car back and taking the offer they give to you, I think you have to hand the car back in first four weeks and now I have missed it.

    If they gave you a bit longer for the car that would have been okay so maybe I might have to appeal.  Sorry to bore you and waffle on.
      thanks.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    No problem, You should seek trained help from an advice centre near you to help with appeal
    Be all you can be, make  every day count. Namaste
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