just had all my PIP stopped despite having end of life COPD — Scope | Disability forum
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just had all my PIP stopped despite having end of life COPD

EastEndgirl
EastEndgirl Member Posts: 2 Listener
edited March 2019 in PIP, DLA, and AA
Hi there. Joined because was reading what everyone has been saying. I am 67yrs and just had all my PIP stopped despite having end of life COPD. I am gutted. The accessor didn't even mention my breathing. Have already complained, but it's the waiting and the hardship. Am in for a long fight. X

Comments

  • Ami2301
    Ami2301 Member, Community Co-Production Group Posts: 7,945 Disability Gamechanger
    Hi @EastEndgirl welcome to the community! I am sorry to hear what has happened. Many of our community members have been in the same position as yourself and I'm sure they will be happy to get in contact with you to offer support. Let us know if we can help you with anything and keep us updated :)
    Disability Gamechanger - 2019
  • EastEndgirl
    EastEndgirl Member Posts: 2 Listener
    Thanks that's good to know. Just so angry but in the end I will get there. X
  • Ami2301
    Ami2301 Member, Community Co-Production Group Posts: 7,945 Disability Gamechanger
    We understand, it really is a frustrating experience!
    Disability Gamechanger - 2019
  • Adrian_Scope
    Adrian_Scope Posts: 8,578 Scope online community team
    Hi @EastEndgirl, I'm really sorry to hear about your PIP decision. I assume you've already put in for a Mandatory Reconsideration? In the meantime, please keep in touch and get involved with the discussions around here and if you have any questions, feel free to ask!
    Community Manager
    Scope

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  • CockneyRebel
    CockneyRebel Member Posts: 5,212 Disability Gamechanger
    Hi @EastEndgirl and welcome

    As a fellow COPD sufferer I can understand how frustated you must be.
    In many ways COPD can seem like an invisible condition, so it is important to send as much evidence as you can.
    Do you have a Community Respiritory Team looking after you ?
    What medication do you take ?
    Do you have home oxygen therapy ?

    These are all things that can help to show you are not just a bit out of breath
    Be all you can be, make  every day count. Namaste

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