PIP, DLA and AA
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just had all my PIP stopped despite having end of life COPD

EastEndgirlEastEndgirl Member Posts: 2 Listener
edited March 2019 in PIP, DLA and AA
Hi there. Joined because was reading what everyone has been saying. I am 67yrs and just had all my PIP stopped despite having end of life COPD. I am gutted. The accessor didn't even mention my breathing. Have already complained, but it's the waiting and the hardship. Am in for a long fight. X

Replies

  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    Hi @EastEndgirl welcome to the community! I am sorry to hear what has happened. Many of our community members have been in the same position as yourself and I'm sure they will be happy to get in contact with you to offer support. Let us know if we can help you with anything and keep us updated :)
    Disability Gamechanger - 2019
  • EastEndgirlEastEndgirl Member Posts: 2 Listener
    Thanks that's good to know. Just so angry but in the end I will get there. X
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    We understand, it really is a frustrating experience!
    Disability Gamechanger - 2019
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,997

    Scope community team

    Hi @EastEndgirl, I'm really sorry to hear about your PIP decision. I assume you've already put in for a Mandatory Reconsideration? In the meantime, please keep in touch and get involved with the discussions around here and if you have any questions, feel free to ask!
    Senior Community Partner
    Scope
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Hi @EastEndgirl and welcome

    As a fellow COPD sufferer I can understand how frustated you must be.
    In many ways COPD can seem like an invisible condition, so it is important to send as much evidence as you can.
    Do you have a Community Respiritory Team looking after you ?
    What medication do you take ?
    Do you have home oxygen therapy ?

    These are all things that can help to show you are not just a bit out of breath
    Be all you can be, make  every day count. Namaste
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